Digital patient engagement at a perioperative surgical home implemented community hospital by Srinivasan Sridhar, Amy Hunter, Bernadette McCrory

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Mental health care for rare disease in the UK – recommendations from a quantitative survey and multi-stakeholder workshop by Rosa Spencer-Tansley, Nick Meade, Farhana Ali, Amy Simpson, Amy Hunter

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EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&D); Guidance for Pharmaceutical Industry-Led Medicines R&D by Kay Warner, Wolf See, David Haerry, Ingrid Klingmann, Amy Hunter, Matthew May

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EUPATI and Patients in Medicines Research and Development: Guidance for Patient Involvement in Ethical Review of Clinical Trials by Ingrid Klingmann, Andrea Heckenberg, Kay Warner, David Haerry, Amy Hunter, Matthew May, Wolf See

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Factors affecting overall care experience for people living with rare conditions in the UK: exploratory analysis of a quantitative patient experience survey by Jennifer Jones, Marie Cruddas, Amy Simpson, Nick Meade, Daphnee Pushparajah, Michelle Peter, Amy Hunter

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EUPATI Guidance for Patient Involvement in Medicines Research and Development: Health Technology Assessment by Amy Hunter, Amy Hunter, Karen Facey, Karen Facey, Victoria Thomas, Victoria Thomas, David Haerry, David Haerry, Kay Warner, Kay Warner, Ingrid Klingmann, Ingrid Klingmann, Matthew May, Matthew May, Wolf See, Wolf See

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Standard questions for a bowel diary to assess fecal incontinence in adults: A consensus project of the International Continence Society by Donna Z. Bliss, Paula Igualada-Martinez, Sandra Engberg, Julia H. Herbert, Olga V. Gurvich, Carlene Igbedioh, Amy Hunter, Jenniffer Voelkl, Karina Cuiñas León, Alexis M.P. Schizas

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Development of models of care coordination for rare conditions: a qualitative study by Holly Walton, Amy Simpson, Angus I. G. Ramsay, Amy Hunter, Jennifer Jones, Pei Li Ng, Kerry Leeson-Beevers, Lara Bloom, Joe Kai, Maria Kokocinska, Alastair G. Sutcliffe, Stephen Morris, Naomi J. Fulop

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Developing a taxonomy of care coordination for people living with rare conditions: a qualitative study by Holly Walton, Amy Simpson, Angus I. G. Ramsay, Emma Hudson, Amy Hunter, Jennifer Jones, Pei Li Ng, Kerry Leeson-Beevers, Lara Bloom, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Alastair G. Sutcliffe, Stephen Morris, Naomi J. Fulop

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Rare musculoskeletal diseases in adults: a research priority setting partnership with the James Lind Alliance by Gerda Mickute, Kristina Staley, Heather Delaney, Oliver Gardiner, Amy Hunter, Richard Keen, Lorraine Lockhart, Nick Meade, Maria Newman, Stuart Ralston, Elaine Rush, Sheela Upadhyaya, Sandra Regan, Laura Watts, Jennifer Walsh, Paul White, Roger M. Francis, M. Kassim Javaid

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Experiences of coordinated care for people in the UK affected by rare diseases: cross-sectional survey of patients, carers, and healthcare professionals by Holly Walton, Pei Li Ng, Amy Simpson, Lara Bloom, Lyn S. Chitty, Naomi J. Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Sharon Parkes, Angus I. G. Ramsay, Alastair Sutcliffe, Christine Taylor, Stephen Morris

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Co-ordinated care for people affected by rare diseases: the CONCORD mixed-methods study by Stephen Morris, Emma Hudson, Lara Bloom, Lyn S Chitty, Naomi J Fulop, Amy Hunter, Jennifer Jones, Joe Kai, Larissa Kerecuk, Maria Kokocinska, Kerry Leeson-Beevers, Pei Li Ng, Sharon Parkes, Angus IG Ramsay, Amy Simpson, Alastair Sutcliffe, Christine Taylor, Holly Walton

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8th European Conference on Rare Diseases & Orphan Products (ECRD 2016) by Michael Schlander, Søren Holm, Erik Nord, Jeff Richardson, Silvio Garattini, Peter Kolominsky-Rabas, Deborah Marshall, Ulf Persson, Maarten Postma, Steven Simoens, Oriol de Solà Morales, Keith Tolley, Mondher Toumi, Harry Telser, James R Bonham, Helmut Hintner, Anja Diem, Martin Laimer, Réjean Hébert, Nabarun Dasgupta, Carrie E. Pierce, Melissa Jordan, Barbara Bori, Mohanad Fors, Emilie Prazakova, Simon Day, Thomas J. Croce, Jonas Fransson, Philip Wood, Anne-Grethe Lauridsen, Joanne Higgs, Vesna Stojmirova Aleksovska, Christina Olsen, Ritchie Head, Antonio Asero, Vincenzo Papa, Christa van Kan, Loic Favennec, Silvana Venturella, Michela Salvador, Alan Krol, Stephanie J. Nielsen, Birthe B. Holm, Daniel Lewi, Patricia Durão, Heather Band, Andrea West, Marinda J. A. Hammann, Marije C. Effing-Boele, Hanka K. Dekker, Amy Hunter, Amy Simpson, Gumei Liu, Katherine Needleman, Debra Lewis, Gayatri Rao, Amy Simpson, Amy Hunter, Martin J. Whitaker, Raquel Castro

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