Computational tools for genomic data de-identification: facilitating data protection law compliance by Alexander Bernier, Hanshi Liu, Bartha Maria Knoppers

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A policy Delphi study to validate the key implications of data sharing (KIDS) framework for pediatric genomics in Canada by Vasiliki Rahimzadeh, Gillian Bartlett, Bartha Maria Knoppers

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A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research by Gratien Dalpé, Adrian Thorogood, Bartha Maria Knoppers

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From the principles of genomic data sharing to the practices of data access committees by Mahsa Shabani, Bartha Maria Knoppers, Pascal Borry

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A marathon, not a sprint – neuroimaging, Open Science and ethics by Michael J.S. Beauvais, Bartha Maria Knoppers, Judy Illes

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Overcoming barriers to facilitate the regulation of multi-centre regenerative medicine clinical trials by Erika Kleiderman, Audrey Boily, Craig Hasilo, Bartha Maria Knoppers

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An international policy on returning genomic research results by Anna C. F. Lewis, Bartha Maria Knoppers, Robert C. Green

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“The Stakes Are Higher”- Patient and Caregiver Perspectives on Cystic Fibrosis Research and Personalized Medicine by Terese Knoppers, Marie Cosquer, Julie Hagan, Minh Thu Nguyen, Bartha Maria Knoppers

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Health professionals’ perspectives on breast cancer risk stratification: understanding evaluation of risk versus screening for disease by Svetlana Puzhko, Justin Gagnon, Jacques Simard, Bartha Maria Knoppers, Sophia Siedlikowski, Gillian Bartlett

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Re-contact Following Withdrawal of Minors from Research by Dimitri Patrinos, Bartha Maria Knoppers, Erika Kleiderman, Noriyeh Rahbari, David P. Laplante, Ashley Wazana

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Bridging the European Data Sharing Divide in Genomic Science by Fruzsina Molnár-Gábor, Michael J S Beauvais, Alexander Bernier, Maria Pilar Nicolas Jimenez, Mikel Recuero, Bartha Maria Knoppers

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Canada's Assisted Human Reproduction Act: Pragmatic Reforms in Support of Research by Tania Bubela, Erika Kleiderman, Zubin Master, Zubin Master, Ubaka Ogbogu, Vardit Ravitsky, Amy Zarzeczny, Bartha Maria Knoppers

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Sharing and Safeguarding Pediatric Data by Dimitri Patrinos, Bartha Maria Knoppers, David P. Laplante, David P. Laplante, Noriyeh Rahbari, Noriyeh Rahbari, Ashley Wazana, Ashley Wazana

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Human gene editing: revisiting Canadian policy by Bartha Maria Knoppers, Rosario Isasi, Timothy Caulfield, Erika Kleiderman, Patrick Bedford, Judy Illes, Ubaka Ogbogu, Vardit Ravitsky, Michael Rudnicki

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Corrigendum: Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility by Michael J. S. Beauvais, Adrian M. Thorogood, Michael J. Szego, Michael J. Szego, Karine Sénécal, Ma'n H. Zawati, Bartha Maria Knoppers

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Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility by Michael J. S. Beauvais, Adrian M. Thorogood, Michael J. Szego, Michael J. Szego, Karine Sénécal, Ma'n H. Zawati, Bartha Maria Knoppers

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Model consent clauses for rare disease research by Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kaufmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, Anne Marie Tassé, Durhane Wong-Rieger, Bartha Maria Knoppers, on behalf of the IRDiRC-GA4GH Model Consent Clauses Task Force

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Research ethics recommendations for whole-genome research: consensus statement. by Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha Maria Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons

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Data and Tools Integration in the Canadian Open Neuroscience Platform by Jean-Baptiste Poline, Samir Das, Tristan Glatard, Cécile Madjar, Erin W. Dickie, Xavier Lecours, Thomas Beaudry, Natacha Beck, Brendan Behan, Shawn T. Brown, David Bujold, Michael Beauvais, Bryan Caron, Candice Czech, Moyez Dharsee, Mathieu Dugré, Ken Evans, Tom Gee, Giulia Ippoliti, Gregory Kiar, Bartha Maria Knoppers, Tristan Kuehn, Diana Le, Derek Lo, Mandana Mazaheri, Dave MacFarlane, Naser Muja, Emmet A. O’Brien, Liam O’Callaghan, Santiago Paiva, Patrick Park, Darcy Quesnel, Henri Rabelais, Pierre Rioux, Mélanie Legault, Jennifer Tremblay-Mercier, David Rotenberg, Jessica Stone, Ted Strauss, Ksenia Zaytseva, Joey Zhou, Simon Duchesne, Ali R. Khan, Sean Hill, Alan C. Evans

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The commitment of the human cell atlas to humanity by Ido Amit, Kristin Ardlie, Fabiana Arzuaga, Gordon Awandare, Gary Bader, Alexander Bernier, Piero Carninci, Stacey Donnelly, Roland Eils, Alistair R. R. Forrest, Henry T. Greely, Roderic Guigo, Nir Hacohen, Muzlifah Haniffa, Emily Sarah Kirby, Bartha Maria Knoppers, Arnold Kriegstein, Ed S. Lein, Sten Linnarsson, Partha P. Majumder, Miriam Merad, Kerstin Meyer, Musa M. Mhlanga, Garry Nolan, Ntobeko A. B. Ntusi, Dana Pe’er, Shyam Prabhakar, Maili Raven-Adams, Aviv Regev, Orit Rozenblatt-Rosen, Senjuti Saha, Andrea Saltzman, Alex K. Shalek, Jay W. Shin, Henk Stunnenberg, Sarah A. Teichmann, Timothy Tickle, Alexandra-Chloe Villani, Christine Wells, Barbara Wold, Huanming Yang, Xiaowei Zhuang

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