Issues in the measurement of quality of life in hemophilia by Brian M. Feldman

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Developing a new scoring scheme for the Hemophilia Joint Health Score 2.1 by Tiago Ribeiro, Audrey Abad, Brian M. Feldman

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Resilience and its associations in children with Systemic Lupus Erythematosus and Juvenile Idiopathic Arthritis by Rebecca Trachtman, Julie Samuels, Emma Wojtal, Brian M Feldman

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Clinical outcomes in hemophilia: Towards development of a core set of standardized outcome measures for research by Saunya Dover, Victor S. Blanchette, Alok Srivastava, Kathelijn Fischer, Audrey Abad, Brian M. Feldman

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Securing reimbursement for patient centered haemophilia care: major collaborative efforts are needed by Karin C. Berger, Brian M. Feldman, Joan Wasserman, Wolfgang Schramm, Victor Blanchette, Kathelijn Fischer

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Social participation and hemophilia: Self‐perception, social support, and their influence on boys in Canada by Aubrey S. Chiu, Victor S. Blanchette, Maru Barrera, Pamela Hilliard, Nancy L. Young, Audrey Abad, Brian M. Feldman

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Currently recommended skin scores correlate highly in the assessment of patients with Juvenile Dermatomyositis (JDM) by Alexander Gebreamlak, Katherine M. Sawicka, Rose Garrett, Y. Ingrid Goh, Kayla M. Baker, Brian M. Feldman

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Working Out the Kinks: Testing the Feasibility of an Electronic Pain Diary for Adolescents with Arthritis by Jennifer N Stinson, Guy C Petroz, Bonnie J Stevens, Brian M Feldman, David Streiner, Patrick J McGrath, Navreet Gill

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Post‐thrombotic syndrome in children: Measurement properties of CAPTSure, a new diagnostic tool by Maria Laura Avila, Brian M. Feldman, Eleanor Pullenayegum, Celeste Lumia, Madeline I. Montoya, Jennifer Vincelli, Suzan Williams, Leonardo R. Brandão

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Lengthening sleep reduces pain in childhood arthritis: a crossover randomised controlled trial by Ronald M Laxer, Rayfel Schneider, Jennifer Stinson, Deborah Levy, George Tomlinson, Brian M Feldman, Lynn Spiegel, Bonnie Cameron, Indra Narang, Saunya Dover, Hayyah Clairman, Dean Beebe, Susan Paetkau, Samantha Stephens, Shirley Tse, Shelly Weiss, Kristi Whitney

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Teaching Adolescents With Type 1 Diabetes Self-Compassion (TADS) to Reduce Diabetes Distress: Protocol for a Randomized Controlled Trial by Saunya Dover, Alexandra Ahmet, Karen Bluth, Brian M Feldman, Ellen B Goldbloom, Gary S Goldfield, Sarah Hamilton, Omar Imran, Adam Khalif, Karine Khatchadourian, Sarah Lawrence, Andrew Leonard, Kuan Liu, Yongdong Ouyang, Corien Peeters, Jai Shah, Noah Spector, Caroline Zuijdwijk, Marie-Eve Robinson

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Developing comparative effectiveness studies for a rare, understudied pediatric disease: lessons learned from the CARRA juvenile localized scleroderma consensus treatment plan pilo... by Suzanne C. Li, Robert C. Fuhlbrigge, Ronald M. Laxer, Elena Pope, Maria F. Ibarra, Katie Stewart, Thomas Mason, Mara L. Becker, Sandy Hong, Fatma Dedeoglu, Kathryn S. Torok, C. Egla Rabinovich, Polly J. Ferguson, Marilynn Punaro, Brian M. Feldman, Tracy Andrews, Gloria C. Higgins, For the CARRA Registry Investigators

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Magnetic resonance imaging in boys with severe hemophilia A: Serial and end‐of‐study findings from the Canadian Hemophilia Primary Prophylaxis Study by Jennifer Stimec, Saunya Dover, Eleanor Pullenayegum, Victor S. Blanchette, Andrea S. Doria, Brian M. Feldman, Manuel Carcao, Georges E. Rivard, Sara J. Israels, Anthony K. Chan, MacGregor Steele, Stephanie Cloutier, Robert J. Klaassen, Victoria E. Price, Roona Sinha, Nicole Laferriere, Elizabeth Paradis, John K. M. Wu, Paul Babyn

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Hemophilia prophylaxis adherence and bleeding using a tailored, frequency‐escalated approach: The Canadian Hemophilia Primary Prophylaxis Study by Saunya Dover, Victor S. Blanchette, Darius Wrathall, Eleanor Pullenayegum, Daniel Kazandjian, Byron Song, Sue Ann Hawes, Stéphanie Cloutier, Geroges E. Rivard, Robert J. Klaassen, Elizabeth Paradis, Nicole Laferriere, Ann Marie Stain, Anthony K. Chan, Sara J. Israels, Roona Sinha, MacGregor Steele, John K. M. Wu, Brian M. Feldman

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The Hemophilia Joint Health Score version 2.1 Validation in Adult Patients Study: A multicenter international study by Jean St‐Louis, Audrey Abad, Sharon Funk, Merlyn Tilak, Stephen Classey, Nichan Zourikian, Paul McLaughlin, Sébastien Lobet, Grace Hernandez, Stacie Akins, Anna J. Wells, Marilyn Manco‐Johnson, Judy John, Steve Austin, Pratima Chowdary, Cedric Hermans, Diane Nugent, Nihal Bakeer, Sarah Mangles, Pamela Hilliard, Victor S. Blanchette, Brian M. Feldman

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Impact of prophylaxis on health‐related quality of life of boys with hemophilia: An analysis of pooled data from 9 countries by Koyo Usuba, Victoria E. Price, Victor Blanchette, Audrey Abad, Carmen Altisent, Loretta Buchner‐Daley, Jorge D. A. Carneiro, Brian M. Feldman, Kathelijn Fischer, John Grainger, Susanne Holzhauer, Koon‐Hung Luke, Sandrine Meunier, Margareth Ozelo, Ling Tang, Sandra V. Antunes, Paula Villaça, Cindy Wakefield, Gilian Wharfe, Runhui Wu, Nancy L. Young

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Musculoskeletal ultrasound in hemophilia: Results and recommendations from a global survey and consensus meeting by Nihal Bakeer, Saunya Dover, Paul Babyn, Brian M. Feldman, Annette vonDrygalski, Andrea S. Doria, Danial M. Ignas, Audrey Abad, Cindy Bailey, Ian Beggs, Eric Y. Chang, Amy Dunn, Sharon Funk, Sridhar Gibikote, Nicholas Goddard, Pamela Hilliard, Shyamkumar N. Keshava, Rebecca Kruse‐Jarres, Yingjia Li, Sébastien Lobet, Marilyn Manco‐Johnson, Carlo Martinoli, James S. O’Donnell, Olympia Papakonstantinou, Helen Pergantou, Pradeep Poonnoose, Felipe Querol, Alok Srivastava, Bruno Steiner, Karen Strike, Merel Timmer, Pascal N. Tyrrell, Logi Vidarsson, Victor S. Blanchette

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