Translating patient-reported outcome measures: a multi-step process is essential by Catherine Acquadro, Ana Bayles, Elizabeth Juniper

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To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases by Sally Lanar, Catherine Acquadro, James Seaton, Isabelle Savre, Benoit Arnould

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Assessing patients’ acceptance of their medication to reveal unmet needs: results from a large multi-diseases study using a patient online community by Jérémy Lambert, Michael Chekroun, Hélène Gilet, Catherine Acquadro, Benoit Arnould

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Linguistic Validation of the Phenylketonuria - Quality of Life (PKU-QOL) Questionnaire Into Brazilian Portuguese by Fabíola Vicente, Elaina Jurecki, Daniela Giovannetti, Ana Rita Ferreira, Efigênia Leite, Luciana Giugliani, Catherine Acquadro

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Good practices for the translation, cultural adaptation, and linguistic validation of clinician-reported outcome, observer-reported outcome, and performance outcome measures by Shawn McKown, Catherine Acquadro, Caroline Anfray, Benjamin Arnold, Sonya Eremenco, Christelle Giroudet, Mona Martin, Dana Weiss

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Reflection paper on copyright, patient-reported outcome instruments and their translations by Caroline Anfray, Benjamin Arnold, Mona Martin, Sonya Eremenco, Donald L. Patrick, Katrin Conway, Catherine Acquadro, on behalf of the ISOQOL Translation and Cultural Special Interest Group (TCA-SIG)

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Developing fit-for-purpose self-report instruments for assessing consumer responses to tobacco and nicotine products: the ABOUT™ Toolbox initiative [version 1; referees: 2 approved... by Christelle Chrea, Catherine Acquadro, Esther F. Afolalu, Erica Spies, Thomas Salzberger, Linda Abetz-Webb, Stefan Cano, Benoit Arnould, Nelly Mainy, Jed Rose, Rolf Weitkunat

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Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures by Catherine Acquadro, Donald L. Patrick, Sonya Eremenco, Mona L. Martin, Dagmara Kuliś, Helena Correia, Katrin Conway, on behalf of the International Society for Quality of Life Research (ISOQOL) Translation and Cultural Adaptation Special Interest Group (TCA-SIG)

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