Understanding men’s beliefs and concerns about linking health data in the context of precision medicine by Caitlin G. Allen, Melanie Jefferson, Gayenell Magwood, Cathy Melvin, Oluwole Adeyemi Babatunde, Chanita Hughes Halbert

Get full text

What does it mean to be affiliated with care?: Delphi consensus on the definition of "unaffiliation" and "specialist" in sickle cell disease. by Andrea E Lamont, Lewis L Hsu, Sara Jacobs, Robert Gibson, Marsha Treadwell, Yumei Chen, Richard Lottenberg, Kathleen Axelrod, Taniya Varughese, Cathy Melvin, Sharon Smith, Ifeanyi Beverly Chukwudozie, Julie Kanter, Sickle Cell Disease Implementation Consortium

Get full text

Burden of Aging: Health Outcomes Among Adolescents and Young Adults With Sickle Cell Disease by Kristen E. Howell, Norma Pugh, Jennifer Longoria, Nirmish Shah, Abdullah Kutlar, Victor R. Gordeuk, Allison A. King, Jeffrey Glassberg, Mariam Kayle, Cathy Melvin, Marsha Treadwell, Jane S. Hankins, Jerlym S. Porter, on behalf of the Sickle Cell Disease Implementation Consortium*

Get full text