Decision-making and referral processes for patients with motor neurone disease: a qualitative study of GP experiences and evaluation of a new decision-support tool by Susan Baxter, Christopher J. McDermott

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Factors influencing decisions people with motor neuron disease make about gastrostomy placement and ventilation: A qualitative evidence synthesis by Sean White, Alicia O'Cathain, Vanessa Halliday, Liz Croot, Christopher J. McDermott

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Identifying key signs of motor neurone disease in primary care: a nested case–control study using the QResearch database by Aleksandar Radunović, Carol Coupland, Julia Hippisley-Cox, Christopher J McDermott, Tom A Ranger, Judith Burchardt, Xue W Mei

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A new zebrafish model produced by TILLING of SOD1-related amyotrophic lateral sclerosis replicates key features of the disease and represents a tool for in vivo therapeutic screeni... by Marc M. J. Da Costa, Claire E. Allen, Adrian Higginbottom, Tennore Ramesh, Pamela J. Shaw, Christopher J. McDermott

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Delivery of noninvasive ventilation to people living with motor neuron disease in the UK by Lucy S. Musson, Susan K. Baxter, Paul Norman, David O'Brien, Mark Elliott, Stephen Bianchi, Georgios Kaltsakas, Christopher J. McDermott, Theocharis Stavroulakis, Esther V. Hobson

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Janus kinase inhibitors are potential therapeutics for amyotrophic lateral sclerosis by Peter J. Richardson, Daniel P. Smith, Alex de Giorgio, Xenia Snetkov, Joshua Almond-Thynne, Sara Cronin, Richard J. Mead, Christopher J. McDermott, Pamela J. Shaw

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Informal Caregivers in Amyotrophic Lateral Sclerosis: A Multi-Centre, Exploratory Study of Burden and Difficulties by Éilís Conroy, Polly Kennedy, Mark Heverin, Iracema Leroi, Emily Mayberry, Anita Beelen, Theocharis Stavroulakis, Leonard H. van den Berg, Christopher J. McDermott, Orla Hardiman, Miriam Galvin

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Developing a web-based patient decision aid for gastrostomy in motor neuron disease: a study protocol by Claire Foster, Anne Hogden, Alejandra Recio-Saucedo, Christopher J McDermott, Peter Williams, Sean White, Rose Maunsell, Suzanne Bloomfield, Clare Erridge, Maggi Hardcastle, Alison Kidd, Dominika Lisiecka, Karen Morrison, Louise Rickenbach, Sally J Wheelwright

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A randomized double-blind clinical trial on safety and efficacy of tauroursodeoxycholic acid (TUDCA) as add-on treatment in patients affected by amyotrophic lateral sclerosis (ALS)... by Flavia L. Lombardo, Stefania Spila Alegiani, Flavia Mayer, Marta Cipriani, Maria Lo Giudice, Albert Christian Ludolph, Christopher J. McDermott, Philippe Corcia, Philip Van Damme, Leonard H. Van den Berg, Orla Hardiman, Gabriele Nicolini, Nicola Vanacore, Brian Dickie, Alberto Albanese, Maria Puopolo, TUDCA-ALS Study Group

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A randomised controlled trial of acceptance and commitment therapy plus usual care compared to usual care alone for improving psychological health in people with motor neuron disea... by Rebecca L. Gould, Benjamin J. Thompson, Charlotte Rawlinson, Pavithra Kumar, David White, Marc A. Serfaty, Christopher D. Graham, Lance M. McCracken, Matt Bursnall, Mike Bradburn, Tracey Young, Robert J. Howard, Ammar Al-Chalabi, Laura H. Goldstein, Vanessa Lawrence, Cindy Cooper, Pamela J. Shaw, Christopher J. McDermott

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A Road Map for Remote Digital Health Technology for Motor Neuron Disease by Ruben P A van Eijk, Anita Beelen, Esther T Kruitwagen, Deirdre Murray, Ratko Radakovic, Esther Hobson, Liam Knox, Jochem Helleman, Tom Burke, Miguel Ángel Rubio Pérez, Evy Reviers, Angela Genge, Frederik J Steyn, Shyuan Ngo, John Eaglesham, Kit C B Roes, Leonard H van den Berg, Orla Hardiman, Christopher J McDermott

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Acceptance and Commitment Therapy for people living with motor neuron disease: an uncontrolled feasibility study by Rebecca L. Gould, Charlotte Rawlinson, Ben Thompson, Kirsty Weeks, Rebecca Gossage-Worrall, Hannah Cantrill, Marc A. Serfaty, Christopher D. Graham, Lance M. McCracken, David White, Robert J. Howard, Matt Bursnall, Mike Bradburn, Ammar Al-Chalabi, Richard Orrell, Suresh K. Chhetri, Rupert Noad, Aleksandar Radunovic, Tim Williams, Carolyn A. Young, David Dick, Vanessa Lawrence, Laura H. Goldstein, Tracey Young, John Ealing, Hamish McLeod, Nicola Williams, Helen Weatherly, Richard Cave, Theresa Chiwera, Francesco Pagnini, Cindy Cooper, Pamela J. Shaw, Christopher J. McDermott, and the COMMEND Collaboration Group

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DiPALS: Diaphragm Pacing in patients with Amyotrophic Lateral Sclerosis – a randomised controlled trial by Christopher J McDermott, Mike J Bradburn, Chin Maguire, Cindy L Cooper, Wendy O Baird, Susan K Baxter, Judith Cohen, Hannah Cantrill, Simon Dixon, Roger Ackroyd, Simon Baudouin, Andrew Bentley, Richard Berrisford, Stephen Bianchi, Stephen C Bourke, Roy Darlison, John Ealing, Mark Elliott, Patrick Fitzgerald, Simon Galloway, Hisham Hamdalla, C Oliver Hanemann, Philip Hughes, Ibrahim Imam, Dayalan Karat, Roger Leek, Nick Maynard, Richard W Orrell, Abeezar Sarela, John Stradling, Kevin Talbot, Lyn Taylor, Martin Turner, Anita K Simonds, Tim Williams, Wisia Wedzicha, Carolyn Young, Pamela J Shaw

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Targeted Genetic Screen in Amyotrophic Lateral Sclerosis Reveals Novel Genetic Variants with Synergistic Effect on Clinical Phenotype by Johnathan Cooper-Knock, Henry Robins, Isabell Niedermoser, Matthew Wyles, Paul R. Heath, Adrian Higginbottom, Theresa Walsh, Mbombe Kazoka, Project MinE ALS Sequencing Consortium, Paul G. Ince, Guillaume M. Hautbergue, Christopher J. McDermott, Janine Kirby, Pamela J. Shaw, Ahmad Al Kheifat, Ammar Al-Chalabi, Nazli Basak, Ian Blair, Annelot Dekker, Orla Hardiman, Winston Hide, Alfredo Iacoangeli, Kevin Kenna, John Landers, Russel McLaughlin, Jonathan Mill, Bas Middelkoop, Mattieu Moisse, Jesus Mora Pardina, Karen Morrison, Stephen Newhouse, Sara Pulit, Aleksey Shatunov, Chris Shaw, William Sproviero, Gijs Tazelaar, Philip van Damme, Leonard van den Berg, Rick van der Spek, Kristelvan Eijk, Michael van Es, Wouter van Rheenen, Joke van Vugt, Jan Veldink, Maarten Kooyman, Jonathan Glass, Wim Robberecht, Marc Gotkine, Vivian Drory, Matthew Kiernan, Miguel Mitne Neto, Mayana Ztaz, Philippe Couratier, Philippe Corcia, Vincenzo Silani, Adriano Chio, Mamede de Carvalho, Susana Pinto, Alberto Garcia Redondo, Peter Andersen, Markus Weber, Nicola Ticozzi

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Tauroursodeoxycholic acid in patients with amyotrophic lateral sclerosis: The TUDCA-ALS trial protocol by Alberto Albanese, Albert Christian Ludolph, Albert Christian Ludolph, Christopher J. McDermott, Philippe Corcia, Philippe Corcia, Philippe Corcia, Philippe Corcia, Philip Van Damme, Leonard H. Van den Berg, Orla Hardiman, Orla Hardiman, Gilberto Rinaldi, Nicola Vanacore, Brian Dickie, TUDCA-ALS Study Group, Paolo Tornese, Antoniangela Cocco, Maria Lo Giudice, Michela Matteoli, Eliana Lauranzano, Maria Luisa Malosio, Chiara Adriana Elia, Flavia Lombardo, Flavia Mayer, Maria Puopolo, Stefania Spila Alegiani, Adriano Chiò, Umberto Manera, Cristina Moglia, Andrea Calvo, Paolina Salamone, Giuseppe Fuda, Carlo Colosimo, Cristina Spera, Prabha Cristina Ranchicchio, Giuseppe Stipa, Domenico Frondizi, Christian Lunetta, Valeria Sansone, Claudia Tarlarini, Francesca Gerardi, Vincenzo Silani, Alberto Doretti, Eleonora Colombo, Gianluca Demirtzidis, Gioacchino Tedeschi, Francesca Trojsi, Carla Passaniti, Stefania Ballestrero, Johannes Dorst, Ulrike Weiland, Andrea Fromm, Maximilian Wiesenfarth, Katharina Kandler, Simon Witzel, Markus Otto, Joachim Schuster, Thomas Meyer, André Maier, Dagmar Kettemann, Susanne Petri, Lars Müschen, Camilla Wohnrade, Anastasia Sarikidi, Alma Osmanovic, Julian Grosskreutz, Annekathrin Rödiger, Robert Steinbach, Benjamin Ilse, Uta Smesny, Robert Untucht, René Günther, Maximilian Vidovic, Pamela Shaw, Alexis Collins, Helen Wollff, Theresa Walsh, Lee Tuddenham, Mbombe Kazoka, David White, Stacy Young, Benjamin Thompson, Daniel Madarshahian, Suresh K. Chhetri, Amina Chaouch, Carolyn A. Young, Heike Arndt, Oliver C Hanemann, Thomas Lambert, Stephane Beltran, Philippe Couratier, Florence Esselin, William Camu, Elisa De, La Cruz, Gwendal Lemasson, Pegah Masrori, Sinead Maguire, Liz Fogarty, Toyosi Atoyebi, Niamh Ní Obáin

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