Perspectives on Building Sustainable Newborn Screening Programs for Sickle Cell Disease: Experience from Tanzania od Daima Bukini, Siana Nkya, Sheryl McCurdy, Columba Mbekenga, Karim Manji, Michael Parker, Julie Makani

Preuzmi cijeli tekst

A qualitative study on aspects of consent for genomic research in communities with low literacy od Daima Bukini, Columba Mbekenga, Siana Nkya, Lisa Purvis, Sheryl McCurdy, Michael Parker, Julie Makani

Preuzmi cijeli tekst

Enhanced REC collaborative review through videoconferencing od Richard Waddell, Daima Bukini, Muhsin Aboud, Susan Adams, Eligius Lyamuya, Lorri Wettemann, Elizabeth Bankert, Joyce Masalu

Preuzmi cijeli tekst

Responsible governance of genomics data and biospecimens in the context of broad consent: experiences of a pioneering access committee in Africa od Kobus Herbst, R Kerr, Daima Bukini, Ahmed Rebai, Akin Abayomi, P Andanda, J Mabuka, R Wamuyu, C Dandara

Preuzmi cijeli tekst

Consensus-driven target product profiles for curative sickle cell disease gene therapies od Daima Bukini, Julie Makani, Joseph McCune, Dennis Lee, Cathy Bansbach, Serena De Vita, Dominic Kemps, Elianna Amin, Jonathan Spector, John Tisdale

Preuzmi cijeli tekst

Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry od Nchangwi Syntia Munung, Victoria Nembaware, Lawrence Osei-Tutu, Marsha Treadwell, Okocha Emmanuel Chide, Daima Bukini, Hilda Tutuba, SickleInAfrica ELSI WG, Ambroise Wonkam

Preuzmi cijeli tekst

Strengthening advanced therapy for sickle cell disease in Africa: experience from sickle cell disease centre in Dar es Salaam, Tanzania od Grace Moshi, Julie Makani, Emmanuel Balandya, Daima Bukini, Janeth Manongi, Irene Kida Minja, Florence Urio, Aisha Rifai, Collin Kanza, Fredrick Luoga, Deogratius Maingu, Kassim Kassim, Jennifer Mashaka, Eka Patricia Kisali, Salmaan Karim, Mohamed Zahir Alimohamed, Winfrida Lema, Harrison Chuwa, Sisawo Konteh

Preuzmi cijeli tekst

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations od Nchangwi Syntia Munung, Nchangwi Syntia Munung, Victoria Nembaware, Victoria Nembaware, Jantina de Vries, Daima Bukini, Furahini Tluway, Marsha Treadwell, Marsha Treadwell, Raphael Zozimus Sangeda, Raphael Zozimus Sangeda, Gaston Mazandu, Gaston Mazandu, Mario Jonas, Mario Jonas, Vivian Paintsil, Obiageli E. Nnodu, Emmanuel Balandya, Julie Makani, Ambroise Wonkam, Ambroise Wonkam

Preuzmi cijeli tekst

Acceptability, barriers and facilitators of using dried blood spots-point-of-care testing for sickle cell disease in Africa: an implementation science protocol for a multinational... od Andre Pascal Kengne, Leon Tshilolo, Grace Ndeezi, Nicola Mulder, Moses Joloba, Victoria Nembaware, Nchangwi Syntia Munung, Vivian Paintsil, Emmanuel Peprah, Fred Stephen Sarfo, Deogratias Munube, Collen Masimirembwa, Ambroise Wonkam, Daniel Ansong, Kwaku Ohene-Frempong, Ezekiel Mupere, Sarah Kiguli, Julie Makani, Josephine Mgaya, Siana Nkya, Fred Semitala, Raphael Zozimus Sangeda, Emmanuel Balandya, Anazoeze Madu, Catherine Chunda-Liyoka, Yeya Dit Sadio Sarro, Daudi Jjingo, Obiageli Eunice Nnodu, Lulu Chirande, Boubacari Ali Touré, Aldiouma Guindo, Patience Kuona, Kevin Esoh, Mario Jonas, Maxwell Nwegbu, Upendo Masamu, Jack Morrice, Patrick Ohiani Moru, Valentina Ngo Bitoungui, Hans Ackerman, Alex Osei Akoto, Emmanuela Ambrose, Evans Amuzu, Samuel Asala, Biobele Brown, Mmbando Bruno, Daima Bukini, Pamela Gorejena, Abdul Aziz Hassan, Justin Hokororo, Jade Hotchkiss, Abdoul Malik Idris, Hezekiah Isa, Agnes Jonathan, Gwendoline Q. Kandawasvika, Daniel Kandonga, Ibrahima Keita, Sekou Kene, Frank Makundi, Janeth Manongi, Hamakwa Mantina, Jason Maro, Irene Kida Minja, Khuthala Mnika, Takudzwa Mtisi, Wilson Mupfururirwa, Ritah Mutagonda, Ruth Namazzi, Solomon Ofori-Aquah, Emmanuel Okocha, Fumni Olopade, Jesca Ondego, Chandré Oosterwyk-Liu, Nash Oyekanmi, Stella Paul, Cynthia Phiri, Paschal Ruggajo, Parker Ruhl, Ian Machingura Ruredzo, Pauline Sambo, Sawabati Shabani, Florence Urio, Robert Opoka

Preuzmi cijeli tekst