Utility of Genetic Testing from the Perspective of Parents/Caregivers: A Scoping Review by Robin Z. Hayeems, Stephanie Luca, Daniel Assamad, Ayushi Bhatt, Wendy J. Ungar

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P373: Patients’ and parents’ perspectives on the use of digital tools to deliver genetic services by Daniel Assamad, Saumeh Saeedi, Sonya Grewal, Vedika Jha, Stephanie Luca, Marc Clausen, Angela Shaw, Whiwon Lee, Yvonne Bombard, Robin Hayeems, Genetics Navigator Study Team

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P391: What are patients’ perspectives on the privacy and security of digital genomic tools? A qualitative study by Vedika Jha, Saumeh Saeedi, Daniel Assamad, Sonya Grewal, Daena Hirjikaka, Whiwon Lee, Stephanie Luca, Angela Shaw, Robin Hayeems, Marc Clausen, Yvonne Bombard, Genetics Navigator Study Team

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P823: Insights and strategies for inclusive adolescent and young adult participation in genetics research by Tasha Wainstein, Courtney Cook, Daniel Assamad, Julia Heaton, Manraj Randhawa, David Yeung, Lauren Jennings, Robin Hayeems, Harpreet Chhina, Anthony Cooper, GenCOUNSEL. Study, Jehannine Austin, Alison Elliott

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P531: Developing the patient-reported Genetic testing Utility InDEx (P-GUIDE): Assessing value of genetic testing from patients’ perspectives in multiple clinical contexts by Elise Poole, Stephanie Luca, Daniel Assamad, Bowen Xiao, Joyce Yan, Pooja Banglorewala, Cheryl Xia, Wendy Ungar, Lesleigh Abbott, Linlea Armstrong, Patricia Birch, Kym Boycott, June Carroll, Lauren Chad, David Chitayat, Avram Denburg, Rebecca Deyell, Alison Elliott, Catherine Goudie, Anne-Marie Laberge, Melissa Maio, Iskra Peltekova, Becky Quinlan, Sarah Sawyer, Rachel Silver, Maureen Smith, Ronni Teitelbaum, Anita Villani, Tasha Wainstein, Robin Hayeems

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Genetics Navigator: protocol for a mixed methods randomized controlled trial evaluating a digital platform to deliver genomic services in Canadian pediatric and adult populations by Trevor Jamieson, Kevin Thorpe, Francois Bernier, Melyssa Aronson, Marc Clausen, Rita Kodida, Emma Reble, June C Carroll, Jordan Lerner-Ellis, Yvonne Bombard, Matthew Osmond, Muhammad Mamdani, Ronald Cohn, Emily Seto, Hanna Faghfoury, Josh Silver, Maureen Smith, Lauren Chad, Jan M Friedman, Robin Z Hayeems, Michael Brudno, Gregory Costain, Quynh Pham, Anne-Marie Laberge, Christian Marshall, Cheryl Shuman, Rebekah Jobling, Irfan Dhalla, Serena Shastri-Estrada, Daniel Assamad, Stephanie Luca, Stacy Hewson, Eriskay Liston, Frank Rudzicz, Wendy Ungar, Guylaine D'Amours

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P866: Exploring the impact of secondary findings in a cohort of patients and families receiving genome-wide sequencing by Katharine Fooks, Lydia Vermeer, Elise Poole, Stephanie Luca, Riyana Babul-Hirji, Lauren Chad, David Chitayat, Michael Mackley, Marci Schwartz, Wendy Ungar, Robin Hayeems, Secondary Findings Study Team, Joyce Yan, Abigail Hansen, Viji Venkataramanan, Daniel Assamad, Christian Marshall, Meredith Gillespie, Anna Szuto, Caitlin Chisholm, James Stavropoulos, Lijia Huang, Olga Jarinova, Lynette Lau, Whiwon Lee, Lauren Badalato, Tugce Balci, Cara Inglese, Virginie Beausejour Ladouceur, Chantal Morel, Julie Richer, Mark Tarnopolsky, Anita Villani, Laura Zahavich, Olivia Moran, Sarah Sawyer, Roberto Mendoza-Londono, Martin Somerville, Kym Boycott

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P873: “If you look for a problem, you’ll find one”: A qualitative study to understand why parents/adult patients decline secondary findings by Abigail Hansen, Stephanie Luca, Olivia Moran, Riyana Babul-Hirji, Joyce Yan, Katharine Fooks, Viji Venkataramanan, Wendy Ungar, Robin Hayeems, Secondary Findings Study Team, Elise Poole, Daniel Assamad, Pooja Banglorewala, Lydia Vermeer, Christian Marshall, Meredith Gillespie, Anna Szuto, Caitlin Chisholm, James Stavropoulos, Lijia Huang, Olga Jarinova, Lynette Lau, Whiwon Lee, Lauren Badalato, Tugce Balci, Lauren Chad, Cara Inglese, Virginie Ladouceur, Michael Mackley, Chantal Morel, Julie Richer, Mark Tarnopolsky, Anita Villani, Laura Zahavich, Sarah Sawyer, Roberto Mendoza-Londono, Martin Somerville, Kym Boycott, Wendy Ungar, Robin Hayeems

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