A review of physical activity and exercise for people with familial thoracic aortic aneurysms and aortic dissections by Gry Velvin, Heidi Johansen

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Patient involvement in rare diseases research: a scoping review of the literature and mixed method evaluation of Norwegian researchers’ experiences and perceptions by Gry Velvin, Thale Hartman, Trine Bathen

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Education and employment status among adults with Loeys-Dietz syndrome and vascular Ehlers-Danlos syndrome in Norway, a questionnaire based study. by Heidi Johansen, Gry Velvin, Ingeborg B Lidal

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Experienced fatigue in people with rare disorders: a scoping review on characteristics of existing research by Trine Bathen, Heidi Johansen, Hilde Strømme, Gry Velvin

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Parental Intervention Program for Preschool children with Rare Diseases – a mixed methods evaluation of parents’ experiences and utility by Gry Velvin, Vigdis Johnsen, Ingeborg Beate Lidal, Ellen Berg

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Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients’ experiences and perceptions by Gry Velvin, Heidi Johansen, Amy Østertun-Geirdal, Trine Bathen

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Work participation in adults with rare genetic diseases - a scoping review by Gry Velvin, Brede Dammann, Trond Haagensen, Heidi Johansen, Hilde Strømme, Amy Østertun Geirdal, Trine Bathen

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