Extending the data collection from a clinical trial: The Extended Salford Lung Study research cohort by Wilhelmine Meeraus, Qinggong Fu, George Mu, Mark Fry, Lucy Frith, Jeanne M. Pimenta

Get full text

Higher rates of non-skeletal complications and greater healthcare needs in achondroplasia compared to the general UK population: a matched cohort study using the CPRD database by Jeanne M. Pimenta, Melita Irving, Moira Cheung, Louise Mazzeo, Sarah Landis, Swati Mukherjee

Get full text

Identifying Barriers to Enrollment in Patient Pregnancy Registries: Building Evidence Through Crowdsourcing by Jeanne M Pimenta, Jeffery L Painter, Kim Gemzoe, Roger Abramino Levy, Marcy Powell, Paige Meizlik, Gregory Powell

Get full text

Lifetime Impact Study for Achondroplasia (LISA): Findings from an observational and multinational study focused on health-related quality of life in individuals with achondroplasia... by Juan Llerena, Jr, Pablo Rosselli, Amanda Aragão, Cristina Valenzuela, Debora Bertola, Yaneth Mendez, Mariana del Pino, Nicolette Calvacanti, Paula Thomazinho, Jeanne M. Pimenta, Shelda Cohen, Tom Butt, José C. Thomaz, Jr, Renée Shediac, Richard Rowell, Tatiana S.P.C. Magalhães, Chong Kim, Virginia Fano

Get full text