Showing 1 - 9 results of 9 for search 'Jill Jarecki', query time: 0.04s Refine Results
  1. 1
    Evaluating Perceived Fatigue within an Adult Spinal Muscular Atrophy Population

    Evaluating Perceived Fatigue within an Adult Spinal Muscular Atrophy Population by Lisa Belter, Ilse Peterson, Jill Jarecki

    Published 2023-10-01
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  2. 2
    Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey

    Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey by Lisa Belter, Rosángel Cruz, Jill Jarecki

    Published 2020-08-01
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  3. 3
    “I have SMA, SMA doesn’t have me”: a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA

    “I have SMA, SMA doesn’t have me”: a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA by Allison Mazzella, Mary Curry, Lisa Belter, Rosángel Cruz, Jill Jarecki

    Published 2021-02-01
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  4. 4
    The SMA Clinical Trial Readiness Program: creation and evaluation of a program to enhance SMA trial readiness in the United States

    The SMA Clinical Trial Readiness Program: creation and evaluation of a program to enhance SMA trial readiness in the United States by Ilse Peterson, Rosángel Cruz, Fatou Sarr, Ann Marie Stanley, Jill Jarecki

    Published 2020-05-01
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  5. 5
    Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA)

    Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA) by Mary Curry, Rosángel Cruz, Lisa Belter, Mary Schroth, Megan Lenz, Jill Jarecki

    Published 2021-05-01
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  6. 6
    Economic burden of spinal muscular atrophy: an analysis of claims data

    Economic burden of spinal muscular atrophy: an analysis of claims data by Lisa Belter, Rosángel Cruz, Sierra Kulas, Emily McGinnis, Omar Dabbous, Jill Jarecki

    Published 2020-01-01
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  7. 7
    Effects of the COVID-19 Pandemic on SMA Screening and Care: Physician and Community Insights

    Effects of the COVID-19 Pandemic on SMA Screening and Care: Physician and Community Insights by Mary Curry, Ilse Peterson, Lisa Belter, Fatou Sarr, Sarah Whitmire, Mary Schroth, Jill Jarecki

    Published 2023-06-01
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  8. 8
    Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

    Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’... by Tina Duong, Jessica Braid, Hannah Staunton, Aurelie Barriere, Fani Petridis, Johannes Reithinger, Rosangel Cruz, Jill Jarecki, Mencia De Lemus, Nicole Gusset, Ria Broekgaarden, Sharan Randhawa, Jessica Flynn, Rob Arbuckle, Sonia Reif, Lida Yang, Angela De Martini, Carole Vuillerot

    Published 2021-09-01
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  9. 9
    Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a two-part study

    Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a... by Tina Duong, Jessica Braid, Hannah Staunton, Aurelie Barriere, Fani Petridis, Johannes Reithinger, Rosangel Cruz, Jill Jarecki, Mencia De Lemus, Nicole Gusset, Ria Broekgaarden, Sharan Randhawa, Jessica Flynn, Rob Arbuckle, Sonia Reif, Lida Yang, Angela De Martini, Carole Vuillerot

    Published 2021-03-01
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