The PID Life Index: an interactive tool to measure the status of the PID healthcare environment in any given country by Leire Solís, Julia Nordin, Johan Prevot, Nizar Mahlaoui, Silvia Sánchez-Ramón, Adli Ali, Elodie Cassignol, John W. Seymour, Martine Pergent

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Newborn screening as a fully integrated system to stimulate equity in neonatal screening in Europe by Maurizio Scarpa, James R. Bonham, Carlo Dionisi-Vici, Johan Prevot, Martine Pergent, Isabelle Meyts, Nizar Mahlaoui, Peter C.J.I. Schielen

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Newborn Screening Today and Tomorrow: A Brief Report from the International Primary Immunodeficiencies Congress by Leire Solis, Samya Van Coillie, James R. Bonham, Fabian Hauck, Lennart Hammarström, Frank J. T. Staal, Bruce Lim, Martine Pergent, Johan Prévot

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It’s long-term, well it’s for life basically: Understanding and exploring the burden of immunoglobulin treatment in patients with primary immunodeficiency disorders by Georgina Jones, Eva Brown Hajdukova, Esmee Hanna, Rosie Duncan, Brendan Gough, Jane Hughes, Debbie Hughes, Fran Ashworth, Johan Prevot, Jose Drabwell, Leire Solis, Nizar Mahlaoui, Anna Shrimpton

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Primary immunodeficiencies (PID) Life Index in Southeast Asia: A comparative analysis of PID Principles of Care (PoC) by Chee Mun Chan, Chee Mun Chan, Nizar Mahlaoui, Nizar Mahlaoui, Silvia Sánchez−Ramón, Silvia Sánchez−Ramón, Martine Pergent, Leire Solis, Johan Prevot, Adli Ali, Adli Ali, Adli Ali, Adli Ali

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The PID Principles of Care: Where Are We Now? A Global Status Report Based on the PID Life Index by Julia Nordin, Leire Solís, Johan Prévot, Nizar Mahlaoui, Nizar Mahlaoui, Helen Chapel, Silvia Sánchez-Ramón, Silvia Sánchez-Ramón, Adli Ali, Adli Ali, John W. Seymour, John W. Seymour, Martine Pergent

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Towards Achieving Equity and Innovation in Newborn Screening across Europe by Jaka Sikonja, Urh Groselj, Maurizio Scarpa, Giancarlo la Marca, David Cheillan, Stefan Kölker, Rolf H. Zetterström, Viktor Kožich, Yann Le Cam, Gulcin Gumus, Valentina Bottarelli, Mirjam van der Burg, Eugenie Dekkers, Tadej Battelino, Johan Prevot, Peter C. J. I. Schielen, James R. Bonham

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The PID Odyssey 2030: outlooks, unmet needs, hurdles, and opportunities — proceedings from the IPOPI global multi-stakeholders’ summit (June 2022) by Susan Tadros, Johan Prévot, Isabelle Meyts, Isabelle Meyts, Silvia Sánchez-Ramón, Nahla H. Erwa, Alain Fischer, Alain Fischer, Alain Fischer, Alain Fischer, Guillaume Lefevre, Guillaume Lefevre, Matthew Hotchko, Peter M. Jaworski, Helen Leavis, Cornelis Boersma, Cornelis Boersma, Cornelis Boersma, Jose Drabwell, Martin van Hagen, Martin van Hagen, Samya Van Coillie, Martine Pergent, Siobhan O. Burns, Nizar Mahlaoui, Nizar Mahlaoui, Nizar Mahlaoui

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Charting a course for global progress in PIDs by 2030 — proceedings from the IPOPI global multi-stakeholders’ summit (September 2023) by Samya Van Coillie, Johan Prévot, Silvia Sánchez-Ramón, David M. Lowe, David M. Lowe, Michael Borg, Brigitte Autran, Gesmar Segundo, Antonio Pecoraro, Nicolas Garcelon, Cornelis Boersma, Cornelis Boersma, Cornelis Boersma, Susana L. Silva, Susana L. Silva, Jose Drabwell, Isabella Quinti, Isabelle Meyts, Adli Ali, Adli Ali, Siobhan O. Burns, Siobhan O. Burns, Martin van Hagen, Martin van Hagen, Martine Pergent, Nizar Mahlaoui, Nizar Mahlaoui

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