Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism – A Scoping Review by Kaja Kristensen, Julia Quitmann, Stefanie Witt

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Health‐related quality of life and patient‐reported outcome measurements in patients with cystinosis by Stefanie Witt, Kaja Kristensen, Katharina Hohenfellner, Julia Quitmann

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Living with a rare disease - experiences and needs in pediatric patients and their parents by Stefanie Witt, Katharina Schuett, Silke Wiegand-Grefe, Johannes Boettcher, Julia Quitmann

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Quality of life of children with achondroplasia and their parents - a German cross-sectional study by Stefanie Witt, Beate Kolb, Janika Bloemeke, Klaus Mohnike, Monika Bullinger, Julia Quitmann

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Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia by Stefanie Witt, Jens Dingemann, Michaela Dellenmark-Blom, Michaela Dellenmark-Blom, Julia Quitmann

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Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment by Janika Bloemeke, Neuza Silva, Monika Bullinger, Stefanie Witt, Helmuth-Günther Dörr, Julia Quitmann

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Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany by Stefanie Witt, Kaja Kristensen, Silke Wiegand-Grefe, Johannes Boettcher, Janika Bloemeke, Christina Wingartz, Monika Bullinger, Julia Quitmann, und die CARE-FAM-NET Studiengruppe

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Networks in Auxology – proceedings of the 31st Aschauer Soiree, held at Aschau, Germany, June 17th 2023 by Michael Hermanussen, Christiane Scheffler, Melanie Dammhahn, Detlef Groth, Cédric Moris, Tim Hake, Barry Bogin, Piotr Fedurek, Jesper Boldsen, Takashi Satake, Stef van Buuren, Jani Söderhäll, Chris Jefferies, Yehuda Limony, Jovanna Dahlgren, Julia Quitmann, Ingo Scheffler, Nino Nazirishvili, Ekaterine Kvaratskhelia, Annamaria Zsakai, Martin Musalek, Basak Koca Özer, Cansev Meşe Yavuz, Janina Tutkuviene, Laura Kasperiunaite, Simona Gervickaite, Sylvia Kirchengast, Slawomir Koziel, Aleksandra Gomula, Zbyszek Czapla, Antonia Rösler, Leslie Lieberman, Stephen Lieberman, Martin Brüne

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Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): a prospective, controlled trial with a two-phase... by Helge Hebestreit, Anne-Marie Lapstich, Lilly Brandstetter, Christian Krauth, Jürgen Deckert, Kirsten Haas, Lisa Pfister, Stefanie Witt, Christopher Schippers, Jan Dieris-Hirche, Tim Maisch, Oliver Tüscher, Lavinia Bârlescu, Alexandra Berger, Mark Berneburg, Vanessa Britz, Anna Deibele, Holm Graeßner, Harald Gündel, Gereon Heuft, Thomas Lücke, Christine Mundlos, Julia Quitmann, Frank Rutsch, Katharina Schubert, Jörg Bernhard Schulz, Susann Schweiger, Cornelia Zeidler, Lena Zeltner, Martina de Zwaan, Federica Akkaya, Christine Babka, Lisa Bannert, Anja Bärsch-Michelmann, Leonie Böhm, Folke Brinkmann, Monika Bullinger, Holger Cario, Moritz de Greck, Klaus-Michael Debatin, Katrin Dillmann-Jehn, Jutta Eymann, Julia Frisch, Anja Glode, Vega Gödecke, Corinna Grasemann, Eva Grauer, Astrid Haas, Lea Haisch, Isabell, Heinrich, Melissa Held, Julia Hennermann, Stephan Herpertz, Anne Herrmann-Werner, Julian Hett, Peter Heuschmann, Bettina Hilbig, Laura Holthöfer, Christiane Imhof, Florian Junne, Jan Kassubek, Kevin-Thomas Koschitzki, Heike Krassort, Birgit Kropff, Julia Kuhn, Philipp Latzko, Thomas Loew, Albert C. Ludolph, Torsten Meyer, Isabell Meyer dos Santos, Klaus Mohnike, Martina Monninger, Martin Mücke, Susanne Müller, Thomas Musacchio, Margret Nießen, Mariel Nöhre, Stephan Ott, Andrea Petermann-Meyer, Christina Pfeifer-Duck, Lea-Sophie Piduhn, Carina Rampp, Olaf Rieß, Kristina Schaubert, Annika Schmidt, Simone Schneider, Ludger Schoels, Martina Schwalba, Udo Selig, Alexandra Sroka, Toni Steinbüchel, Sebastian Stösser, Steffi Suchant, Kathrin Ungethüm, Matthias Vogel, Daniela Volk, Christoph Vollmuth, Solange Volnov, Thomas O.F. Wagner, Sabrina Walter, Bodo Warrings, Kamil Zajt, Karola Zenker, David Zhang, Stephan Zipfel, Helge Hebestreit, Anne-Marie Lapstich, Lilly Brandstetter, Christian Krauth, Jürgen Deckert, Kirsten Haas, Lisa Pfister, Stefanie Witt, Christopher Schippers, Jan Dieris-Hirche, Tim Maisch, Oliver Tüscher, Lavinia Aurelia Bârlescu, Alexandra Berger, Mark Berneburg, Vanessa Britz, Anna Deibele, Holm Graeßner, Harald Gündel, Gereon Heuft, Thomas Lücke, Christine Mundlos, Julia Hannah Quitmann, Frank Rutsch, Katharina Schubert, Jörg B. Schulz, Susann Schweiger, Cornelia Zeidler, Lena Margarete Zeltner, Martina de Zwaan

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