Quantitative 99mTc-albumin colloid nasal mucociliary clearance as an outcome in primary ciliary dyskinesia by June K. Marthin, Kim G. Nielsen, Jann Mortensen

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Current and Future Treatments in Primary Ciliary Dyskinesia by Tamara Paff, Heymut Omran, Kim G. Nielsen, Eric G. Haarman

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Pulmonary radioaerosol mucociliary clearance assessment: searching for genotype-specific differences and potential as an outcome measure in primary ciliary dyskinesia by June K. Marthin, Mathias G. Holgersen, Kim G. Nielsen, Jann Mortensen

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Multiple breath washout and oscillometry after allogenic HSCT: a scoping review by Nicole Sonneveld, Jonathan H. Rayment, Jakob Usemann, Kim G. Nielsen, Paul D. Robinson

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Correction: The Single-Breath Diffusing Capacity of CO and NO in Healthy Children of European Descent. by Astrid Thomas, Birgitte Hanel, Jacob L Marott, Frederik Buchvald, Jann Mortensen, Kim G Nielsen

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Associations of physical activity with childhood asthma, a population study based on the WHO - health behaviour in school-aged children survey by Lene Lochte, Poul Erik Petersen, Kim G. Nielsen, Anette Andersen, Thomas A. E. Platts-Mills

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Exhaled breath analysis using electronic nose in cystic fibrosis and primary ciliary dyskinesia patients with chronic pulmonary infections. by Odin Joensen, Tamara Paff, Eric G Haarman, Ib M Skovgaard, Peter Ø Jensen, Thomas Bjarnsholt, Kim G Nielsen

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The effect of time-of-day and chest physiotherapy on multiple breath washout measures in children with clinically stable cystic fibrosis. by Christian Voldby, Kent Green, Susanne Rosthøj, Thomas Kongstad, Lue Philipsen, Frederik Buchvald, Marianne Skov, Tania Pressler, Per Gustafsson, Kim G Nielsen

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Registries and collaborative studies for primary ciliary dyskinesia in Europe by Cristina Ardura-Garcia, Myrofora Goutaki, Siobhán B. Carr, Suzanne Crowley, Florian S. Halbeisen, Kim G. Nielsen, Petra Pennekamp, Johanna Raidt, Guillaume Thouvenin, Panayiotis K. Yiallouros, Heymut Omran, Claudia E. Kuehni

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Nationwide lung function monitoring from infancy in newborn-screened children with cystic fibrosis by Rikke M. Sandvik, Marika N. Schmidt, Christian M. Voldby, Frederik F. Buchvald, Hanne V. Olesen, Jørgen Olsen, Maja V. Kragh, Sune L.M. Rubak, Tacjana Pressler, Paul D. Robinson, Per M. Gustafsson, Marianne Skov, Kim G. Nielsen

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An international survey on nasal nitric oxide measurement practices for the diagnosis of primary ciliary dyskinesia by Nicole Beydon, Thomas Ferkol, Amanda Lea Harris, Murielle Colas, Stephanie D. Davis, Eric Haarman, Claire Hogg, Emma Kilbride, Panayotis Kouis, Claudia E. Kuehni, Philipp Latzin, Diana Marangu, June Marthin, Kim G. Nielsen, Phil Robinson, Nisreen Rumman, Matthew Rutter, Woolf Walker, Jane S. Lucas

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Towards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force by Rima Nabbout, Galliano Zanello, Dixie Baker, Lora Black, Isabella Brambilla, Orion J. Buske, Laurie S. Conklin, Elin Haf Davies, Daria Julkowska, Yeonju Kim, Thomas Klopstock, Harumasa Nakamura, Kim G. Nielsen, Anne R. Pariser, Jose Carlos Pastor, Maurizio Scarpa, Maureen Smith, Domenica Taruscio, Stephen Groft

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International BEAT-PCD consensus statement for infection prevention and control for primary ciliary dyskinesia in collaboration with ERN-LUNG PCD Core Network and patient represent... by June K. Marthin, Jane S. Lucas, Mieke Boon, Carmen Casaulta, Suzanne Crowley, Damien M.S. Destouches, Ernst Eber, Amparo Escribano, Eric Haarman, Claire Hogg, Bernard Maitre, Gemma Marsh, Vendula Martinu, Antonio Moreno-Galdó, Huda Mussaffi, Heymut Omran, Petr Pohunek, Bernhard Rindlisbacher, Phil Robinson, Deborah Snijders, Woolf T. Walker, Panayiotis Yiallouros, Helle Krogh Johansen, Kim G. Nielsen

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Access to medicines for rare diseases: beating the drum for primary ciliary dyskinesia by Suzanne Crowley, Inês Azevedo, Mieke Boon, Andrew Bush, Ernst Eber, Eric Haarman, Bulent Karadag, Karsten Kötz, Margaret Leigh, Antonio Moreno-Galdó, Huda Mussaffi, Kim G. Nielsen, Heymut Omran, Jean-François Papon, Petr Pohunek, Kostas Priftis, Bernhard Rindlisbacher, Francesca Santamaria, Arunas Valiulis, Michal Witt, Panayiotis Yiallouros, Zorica Zivkovic, Claudia E. Kuehni, Jane S. Lucas

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Proceedings of the 4th BEAT-PCD Conference and 5th PCD Training School by Laura E. Gardner, Katie L. Horton, Amelia Shoemark, Jane S. Lucas, Kim G. Nielsen, Helene Kobbernagel, Bruna Rubbo, Robert A. Hirst, Panayiotis Kouis, Nicola Ullmann, Ana Reula, Nisreen Rumman, Hannah M. Mitchison, Andreia Pinto, Charlotte Richardson, Anne Schmidt, James Thompson, René Gaupmann, Maciej Dabrowski, Pleasantine Mill, Siobhan B. Carr, Dominic P. Norris, Claudia E. Kuehni, Myrofora Goutaki, Claire Hogg

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A BEAT-PCD consensus statement: a core outcome set for pulmonary disease interventions in primary ciliary dyskinesia by Renate Kos, Myrofora Goutaki, Helene E. Kobbernagel, Bruna Rubbo, Amelia Shoemark, Stefano Aliberti, Josje Altenburg, Pinelopi Anagnostopoulou, Rodrigo A. Athanazio, Nicole Beydon, Sharon D. Dell, Nagehan Emiralioglu, Thomas W. Ferkol, Michael R. Loebinger, Natalie Lorent, Bernard Maître, June Marthin, Lucy C. Morgan, Kim G. Nielsen, Felix C. Ringshausen, Michal Shteinberg, Harm A.W.M. Tiddens, Anke H. Maitland-Van der Zee, James D. Chalmers, Jane S.A. Lucas, Eric G. Haarman

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Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials by Jane S. Lucas, Florian Gahleitner, Adelina Amorim, Mieke Boon, Philippa Brown, Carolina Constant, Simon Cook, Suzanne Crowley, Damien M.S. Destouches, Ernst Eber, Huda Mussaffi, Eric Haarman, Amanda Harris, Cordula Koerner-Rettberg, Claudia E. Kuehni, Philipp Latzin, Michael R. Loebinger, Natalie Lorent, Bernard Maitre, Antonio Moreno-Galdó, Kim G. Nielsen, Uğur Özçelik, Lue Katrine Drasbæk Philipsen, Petr Pohunek, Eva Polverino, Jessica Rademacher, Phil Robinson, Deborah Snijders, Panayiotis Yiallouros, Siobhán B. Carr

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The disease-specific clinical trial network for primary ciliary dyskinesia: PCD-CTN by Johanna Raidt, Bernard Maitre, Petra Pennekamp, Josje Altenburg, Pinelopi Anagnostopoulou, Miguel Armengot, Lizan D. Bloemsma, Mieke Boon, Melissa Borrelli, Folke Brinkmann, Siobhan B. Carr, Mary P. Carroll, Silvia Castillo-Corullón, André Coste, Renato Cutrera, Eleonora Dehlink, Damien M.S. Destouches, Maria E. Di Cicco, Lucy Dixon, Nagehan Emiralioglu, Ela Erdem Eralp, Eric G. Haarman, Claire Hogg, Bulent Karadag, Helene E. Kobbernagel, Natalie Lorent, Marcus A. Mall, June K. Marthin, Vendula Martinu, Manjith Narayanan, Ugur Ozcelik, Daniel Peckham, Massimo Pifferi, Petr Pohunek, Eva Polverino, Simon Range, Felix C. Ringshausen, Evie Robson, Jobst Roehmel, Sandra Rovira-Amigo, Francesca Santamaria, Anne Schlegtendal, Zsolt Szépfalusi, Petra Tempels, Guillaume Thouvenin, Nicola Ullmann, Woolf T. Walker, Martin Wetzke, Panayiotis Yiallouros, Heymut Omran, Kim G. Nielsen

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