Benefits and risks of sharing genomic data for research: comparing the views of rare disease patients, informal carers and healthcare professionals by Amorim, M, Silva, S, Machado, H, Teles, EL, Baptista, MJ, Maia, T, Nwebonyi, N, de Freitas, C

Feedback of individual genetic results to research participants: is it feasible in Europe? by Budin-Ljøsne, I, Mascalzoni, D, Soini, S, Machado, H, Kaye, J, Bentzen, HB, Rial-Sebbag, E, D'Abramo, F, Witt, M, Schamps, G, Katić, V, Krajnovic, D, Harris, JR