A Qualitative Study on Engaged Families’ Experiences with Long-Term Follow-Up Care in the Colorado/Wyoming Newborn Screening System by Stacey Quesada, Lauren Barringer, Marci K. Sontag, Yvonne Kellar-Guenther

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Implementing Statewide Newborn Screening for New Disorders: U.S. Program Experiences by Yvonne Kellar-Guenther, Sarah McKasson, Kshea Hale, Sikha Singh, Marci K. Sontag, Jelili Ojodu

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NewSTEPs: The Establishment of a National Newborn Screening Technical Assistance Resource Center by Jelili Ojodu, Sikha Singh, Yvonne Kellar-Guenther, Careema Yusuf, Elizabeth Jones, Thalia Wood, Mei Baker, Marci K. Sontag

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Newborn Screening for Cystic Fibrosis: A Qualitative Study of Successes and Challenges from Universal Screening in the United States by Marci K. Sontag, Joshua I. Miller, Sarah McKasson, Amy Gaviglio, Stacey L. Martiniano, Rhonda West, Marisol Vazquez, Clement L. Ren, Philip M. Farrell, Susanna A. McColley, Yvonne Kellar-Guenther

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Evaluating the Discriminatory Ability of the Sickle Cell Data Collection Program’s Administrative Claims Case Definition in Identifying Adults With Sickle Cell Disease: Validation... by Ashima Singh, Marci K Sontag, Mei Zhou, Mahua Dasgupta, Tessa Crume, Morgan McLemore, Najibah Galadanci, Eldrida Randall, Nicole Steiner, Amanda M Brandow, Kathryn Koch, Joshua J Field, Kathryn Hassell, Angela B Snyder, Julie Kanter

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Defining the Minimal Long-Term Follow-Up Data Elements for Newborn Screening by Yvonne Kellar-Guenther, Lauren Barringer, Katherine Raboin, Ginger Nichols, Kathy Y. F. Chou, Kathy Nguyen, Amy R. Burke, Sandy Fawbush, Joyal B. Meyer, Morna Dorsey, Amy Brower, Kee Chan, Mei Lietsch, Jennifer Taylor, Michele Caggana, Marci K. Sontag

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