Pain and Health-Related Quality of Life in Autosomal Dominant Polycystic Kidney Disease: Results from a National Patient-Powered Registry Bằng Elise Hoover, Vanessa Holliday, Nicole Merullo, Dorothee Oberdhan, Ronald D. Perrone, Chris Rusconi, Meyeon Park, Milind A. Phadnis, Nadeesha Thewarapperuma, Neera K. Dahl

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Total Kidney Volume Is a Prognostic Biomarker of Renal Function Decline and Progression to End-Stage Renal Disease in Patients With Autosomal Dominant Polycystic Kidney Disease Bằng Ronald D. Perrone, Mohamad-Samer Mouksassi, Klaus Romero, Frank S. Czerwiec, Arlene B. Chapman, Berenice Y. Gitomer, Vicente E. Torres, Dana C. Miskulin, Steve Broadbent, Jean F. Marier

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The effect of disease severity markers on quality of life in autosomal dominant polycystic kidney disease: a systematic review, meta-analysis and meta-regression Bằng Myrte K. Neijenhuis, Wietske Kievit, Ronald D. Perrone, Jeff A. Sloan, Patricia Erwin, Mohammad Hassan Murad, Tom J. G. Gevers, Marie C. Hogan, Joost P. H. Drenth

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Prognostic Enrichment Design in Clinical Trials for Autosomal Dominant Polycystic Kidney Disease: The TEMPO 3:4 Clinical Trial Bằng Maria V. Irazabal, Jaime D. Blais, Ronald D. Perrone, Ron T. Gansevoort, Arlene B. Chapman, Olivier Devuyst, Eiji Higashihara, Peter C. Harris, Wen Zhou, John Ouyang, Frank S. Czerwiec, Vicente E. Torres

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OVERTURE: A Worldwide, Prospective, Observational Study of Disease Characteristics in Patients With ADPKD Bằng Ronald D. Perrone, Dorothee Oberdhan, John Ouyang, Daniel G. Bichet, Klemens Budde, Arlene B. Chapman, Berenice Y. Gitomer, Shigeo Horie, Albert C.M. Ong, Vicente E. Torres, A. Neil Turner, Holly Krasa

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The STAGED-PKD 2-Stage Adaptive Study With a Patient Enrichment Strategy and Treatment Effect Modeling for Improved Study Design Efficiency in Patients With ADPKDPlain-Language Sum... Bằng Ronald D. Perrone, Ali Hariri, Pascal Minini, Curie Ahn, Arlene B. Chapman, Shigeo Horie, Bertrand Knebelmann, Michal Mrug, Albert C.M. Ong, York P.C. Pei, Vicente E. Torres, Vijay Modur, Ronald T. Gansevoort

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Patient-reported outcome measures for pain in autosomal dominant polycystic kidney disease: A systematic review. Bằng Patrizia Natale, Elyssa Hannan, Bénédicte Sautenet, Angela Ju, Ronald D Perrone, Eva Burnette, Niek Casteleijn, Arlene Chapman, Sarah Eastty, Ron Gansevoort, Marie Hogan, Shigeo Horie, Bertrand Knebelmann, Richard Lee, Reem A Mustafa, Richard Sandford, Amanda Baumgart, Allison Tong, Giovanni F M Strippoli, Jonathan C Craig, Gopala K Rangan, Yeoungjee Cho

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