Patient communication and experiences in cancer clinical drug trials: a mixed-method study at a specialist clinical trials unit by Rowan Forbes Shepherd, Ashleigh Bradford, Marian Lieschke, Kylie Shackleton, Amelia Hyatt

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Living with rare genetic disease during the COVID-19 pandemic: A qualitative study of adolescents and young adults with Li-Fraumeni syndrome by Allison Werner-Lin, Payal P. Khincha, Ashley S. Thompson, Camella Rising, Alix Sleight, Catherine Wilsnack, Patrick Boyd, Alexandra Feldman, Rowan Forbes Shepherd, Sharon A. Savage

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A “rotating menu” of medical uncertainty for families affected by telomere biology disorders: A qualitative interview study by Emily E. Pearce, Alina Majid, Toniya Brown, Catherine Wilsnack, Camella Rising, Ashley S. Thompson, Rowan Forbes Shepherd, Arman Niknafs, Allison Werner-Lin, Melissa B. Gilkey, Kurt M. Ribisl, Sadie P. Hutson, Paul K.J. Han, Sharon A. Savage

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“Crying in the Wilderness”—The Use of Web-Based Support in Telomere Biology Disorders: Thematic Analysis by Emily Eidenier Pearce, Alina Majid, Toniya Brown, Rowan Forbes Shepherd, Camella Rising, Catherine Wilsnack, Ashley S Thompson, Melissa B Gilkey, Kurt M Ribisl, Allison J Lazard, Paul KJ Han, Allison Werner-Lin, Sadie P Hutson, Sharon A Savage

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