The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey by Lydia Rihm, Mareike Dreier, Farhad Rezvani, Silke Wiegand-Grefe, Jörg Dirmaier

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Living with a rare disease - experiences and needs in pediatric patients and their parents by Stefanie Witt, Katharina Schuett, Silke Wiegand-Grefe, Johannes Boettcher, Julia Quitmann

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Different perspectives in psychiatry: how family-oriented are professionals in Germany? by Carolin Laser, Silke Pawils, Anne Daubmann, Antonia Zapf, Silke Wiegand-Grefe

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The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspe... by Jessika Johannsen, Lena Fuhrmann, Benjamin Grolle, Lydia Morgenstern, Silke Wiegand-Grefe, Jonas Denecke

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Are 6 more accurate than 4? The influence of different modes of delivery on postpartum depression and PTSD by Franziska Marie Lea Beck-Hiestermann, Lisa Kathrin Hartung, Nadine Richert, Sandra Miethe, Silke Wiegand-Grefe

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Perceived mental health in parents of children with rare congenital surgical diseases: a double ABCX model considering gender by Johannes Boettcher, Holger Zapf, Mareike Fuerboeter, Rojin Nazarian, Konrad Reinshagen, Silke Wiegand-Grefe, Michael Boettcher

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The cost-utility of an intervention for children and adolescents with a parent having a mental illness in the framework of the German health and social care system: a health econom... by Tamara Waldmann, Jochen Schaible, Maja Stiawa, Thomas Becker, Karl Wegscheider, Bonnie Adema, Silke Wiegand-Grefe, Reinhold Kilian

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Quality of life and mental health of children with rare congenital surgical diseases and their parents during the COVID-19 pandemic by Mareike Fuerboeter, Johannes Boettcher, Claus Barkmann, Holger Zapf, Rojin Nazarian, Silke Wiegand-Grefe, Konrad Reinshagen, Michael Boettcher

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Clinical- and Cost Effectiveness of a Guided Internet-Based Intervention for Children (12–18 Years) of Parents With Mental Disorders (iCHIMPS): Study Protocol of a Multicentered Cl... by Patrick Dülsen, Katja Barck, Anne Daubmann, Alexandra Höller, Jan Zeidler, Reinhold Kilian, Silke Wiegand-Grefe, Harald Baumeister

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Risk and Protective Factors Associated With Health-Related Quality of Life of Parents With Mental Illness by Alina Radicke, Marlit Sell, Bonnie Adema, Anne Daubmann, Reinhold Kilian, Mareike Busmann, Sibylle M. Winter, Martin Lambert, Karl Wegscheider, Silke Wiegand-Grefe

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Clinical Trial Data: Both Parents Having Psychiatric Symptoms as Risk Factor for Children’s Mental Illness by Hannah Suess, Silke Wiegand-Grefe, Bonnie Adema, Anne Daubmann, Reinhold Kilian, Antonia Zapf, Sibylle M. Winter, Martin Lambert, Karl Wegscheider, Mareike Busmann

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Parents with mental health problems and their children in a German population based sample: Results of the BELLA study. by Angela Plass-Christl, Anne-Catherine Haller, Christiane Otto, Claus Barkmann, Silke Wiegand-Grefe, Heike Hölling, Michael Schulte-Markwort, Ulrike Ravens-Sieberer, Fionna Klasen

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Associations of Family Functioning and Social Support With Psychopathology in Children of Mentally Ill Parents: Multilevel Analyses From Different Rating Perspectives by Marlit Sell, Claus Barkmann, Bonnie Adema, Anne Daubmann, Reinhold Kilian, Maja Stiawa, Mareike Busmann, Sibylle M. Winter, Martin Lambert, Karl Wegscheider, Silke Wiegand-Grefe

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Health-Related Quality of Life and mental health of families with children and adolescents affected by rare diseases and high disease burden: the perspective of affected children a... by Silke Wiegand-Grefe, Anna Liedtke, Lydia Morgenstern, Antonia Hoff, Anikó Csengoe-Norris, Jessika Johannsen, Jonas Denecke, Claus Barkmann, Benjamin Grolle, Anne Daubmann, Karl Wegscheider, Johannes Boettcher

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Evaluation of a Family-Based Intervention Program for Children of Mentally Ill Parents: Study Protocol for a Randomized Controlled Multicenter Trial by Silke Wiegand-Grefe, Bonnie Filter, Mareike Busmann, Reinhold Kilian, Klaus-Thomas Kronmüller, Martin Lambert, Christine Norra, Kai von Klitzing, Kurt Albermann, Sibylle Maria Winter, Anne Daubmann, Karl Wegscheider, Angela Plass-Christl

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Evaluation of two family-based intervention programs for children affected by rare disease and their families – research network (CARE-FAM-NET): study protocol for a rater-blinded,... by Johannes Boettcher, Bonnie Filter, Jonas Denecke, Amra Hot, Anne Daubmann, Antonia Zapf, Karl Wegscheider, Jan Zeidler, J.-Matthias Graf von der Schulenburg, Monika Bullinger, Miriam Rassenhofer, Michael Schulte-Markwort, Silke Wiegand-Grefe

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