Motivations and Barriers to Sharing Biological Samples: A Case Study by Stacey Pereira

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Framing the Family: A Qualitative Exploration of Factors That Shape Family-Level Experience of Pediatric Genomic Sequencing by Hadley Stevens Smith, Emily S. Bonkowski, Madison R. Hickingbotham, Raymond Belanger Deloge, Stacey Pereira

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Do privacy and security regulations need a status update? Perspectives from an intergenerational survey. by Stacey Pereira, Jill Oliver Robinson, Hayley A Peoples, Amanda M Gutierrez, Mary A Majumder, Amy L McGuire, Mark A Rothstein

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P858: Optimism and pessimism about genome sequencing in pediatric health care: Preliminary findings in the BabySeq Project* by Hadley Smith, Madison Hickingbotham, Bethany Zettler, Tanner Coleman, Kelly East, Stacey Pereira, Amy McGuire, Ingrid Holm, Robert Green, Kurt Christensen

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P410: The effect of newborn genomic screening on downstream health care utilization and costs: Evidence from the BabySeq Project* by Hadley Smith, Pankaj Agrawal, Dmitry Dukhovny, Casie Genetti, Ingrid Holm, Amy McGuire, Stacey Pereira, Ann Wu, Alan Beggs, Robert Green, Richard Parad, Kurt Christensen

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P491: Enrollment of a diverse population into a trial of newborn genomic sequencing: Preliminary data from the BabySeq Project by Kurt Christensen, Hadley Smith, Madison Hickingbotham, Bethany Zettler, Stacey Pereira, Bruce Korf, Bruce Gelb, Carol Horowitz, Ramin Homayouni, Amy McGuire, Ingrid Holm, Robert Green

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Pediatric Oncologists’ Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care by Rebecca L. Hsu, Amanda M. Gutierrez, Sophie K. Schellhammer, Jill O. Robinson, Sarah Scollon, Richard L. Street, Alyssa N. Salisbury, Stacey Pereira, Sharon E. Plon, Janet Malek, D. Williams Parsons, Amy L. McGuire

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Researchers’ Ethical Concerns About Using Adaptive Deep Brain Stimulation for Enhancement by Kristin Kostick-Quenet, Lavina Kalwani, Barbara Koenig, Laura Torgerson, Clarissa Sanchez, Katrina Munoz, Rebecca L. Hsu, Demetrio Sierra-Mercado, Jill Oliver Robinson, Simon Outram, Stacey Pereira, Amy McGuire, Peter Zuk, Gabriel Lazaro-Munoz, Gabriel Lazaro-Munoz

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Researcher Perspectives on Data Sharing in Deep Brain Stimulation by Peter Zuk, Clarissa E. Sanchez, Kristin Kostick, Laura Torgerson, Katrina A. Muñoz, Rebecca Hsu, Lavina Kalwani, Demetrio Sierra-Mercado, Demetrio Sierra-Mercado, Jill O. Robinson, Simon Outram, Barbara A. Koenig, Stacey Pereira, Amy L. McGuire, Gabriel Lázaro-Muñoz

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Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost by Gabriel Lázaro-Muñoz, Michelle T. Pham, Katrina A. Muñoz, Kristin Kostick-Quenet, Clarissa E. Sanchez, Laura Torgerson, Jill Robinson, Stacey Pereira, Simon Outram, Barbara A. Koenig, Philip A. Starr, Aysegul Gunduz, Kelly D. Foote, Michael S. Okun, Wayne Goodman, Amy L. McGuire, Peter Zuk

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Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial by Amanda R. Merner, Kristin Kostick-Quenet, Tiffany A. Campbell, Michelle T. Pham, Clarissa E. Sanchez, Laura Torgerson, Jill Robinson, Stacey Pereira, Simon Outram, Barbara A. Koenig, Philip A. Starr, Aysegul Gunduz, Kelly D. Foote, Michael S. Okun, Wayne Goodman, Amy L. McGuire, Peter Zuk, Gabriel Lázaro-Muñoz

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Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research by Simon Outram, Katrina A. Muñoz, Kristin Kostick-Quenet, Clarissa E. Sanchez, Lavina Kalwani, Richa Lavingia, Laura Torgerson, Demetrio Sierra-Mercado, Demetrio Sierra-Mercado, Jill O. Robinson, Stacey Pereira, Barbara A. Koenig, Philip A. Starr, Aysegul Gunduz, Aysegul Gunduz, Kelly D. Foote, Michael S. Okun, Wayne K. Goodman, Amy L. McGuire, Peter Zuk, Gabriel Lázaro-Muñoz

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Parental Attitudes Toward Standard Newborn Screening and Newborn Genomic Sequencing: Findings From the BabySeq Study by Brittan Armstrong, Kurt D. Christensen, Kurt D. Christensen, Casie A. Genetti, Richard B. Parad, Richard B. Parad, Jill Oliver Robinson, Carrie L. Blout Zawatsky, Carrie L. Blout Zawatsky, Carrie L. Blout Zawatsky, Carrie L. Blout Zawatsky, Bethany Zettler, Alan H. Beggs, Alan H. Beggs, Alan H. Beggs, Ingrid A. Holm, Ingrid A. Holm, Ingrid A. Holm, Robert C. Green, Robert C. Green, Robert C. Green, Robert C. Green, Amy L. McGuire, Hadley Stevens Smith, Stacey Pereira, The BabySeq Project Team

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