Health-Related Quality of Life of Children and Adolescents With Congenital Hyperinsulinism – A Scoping Review von Kaja Kristensen, Julia Quitmann, Stefanie Witt

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Caregiving burden and special needs of parents in the care of their short-statured children – a qualitative approach von Lea Lackner, Julia Hannah Quitmann, Stefanie Witt

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Health‐related quality of life and patient‐reported outcome measurements in patients with cystinosis von Stefanie Witt, Kaja Kristensen, Katharina Hohenfellner, Julia Quitmann

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Development and Psychometric Evaluation of the IDMUQ: A Short Measure to Assess Increased Digital Media Use in Preschool Children von Lutz Wartberg, Hannah Schmidt, Ingo Menrath, Stefanie Witt, Silke Pawils

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Living with a rare disease - experiences and needs in pediatric patients and their parents von Stefanie Witt, Katharina Schuett, Silke Wiegand-Grefe, Johannes Boettcher, Julia Quitmann

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Quality of life of children with achondroplasia and their parents - a German cross-sectional study von Stefanie Witt, Beate Kolb, Janika Bloemeke, Klaus Mohnike, Monika Bullinger, Julia Quitmann

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Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal Atresia von Stefanie Witt, Jens Dingemann, Michaela Dellenmark-Blom, Michaela Dellenmark-Blom, Julia Quitmann

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Psychometric properties of the quality of life in short statured youth (QoLISSY) questionnaire within the course of growth hormone treatment von Janika Bloemeke, Neuza Silva, Monika Bullinger, Stefanie Witt, Helmuth-Günther Dörr, Julia Quitmann

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Increased Digital Media Use in Preschool Children: Exploring the Links with Parental Stress and Their Problematic Media Use von Elena Kattein, Hannah Schmidt, Stefanie Witt, Hannah Lea Jörren, Ingo Menrath, Hans-Jürgen Rumpf, Lutz Wartberg, Silke Pawils

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Rare pediatric diseases and pathways to psychosocial care: a qualitative interview study with professional experts working with affected families in Germany von Stefanie Witt, Kaja Kristensen, Silke Wiegand-Grefe, Johannes Boettcher, Janika Bloemeke, Christina Wingartz, Monika Bullinger, Julia Quitmann, und die CARE-FAM-NET Studiengruppe

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Factors of family impact in a Swedish–German cohort of children born with esophageal atresia von Michaela Dellenmark-Blom, Kate Abrahamsson, Jens Dingemann, Stefanie Witt, Carmen Dingemann, Linus Jönsson, Vladimir Gatzinsky, Monika Bullinger, Benno M. Ure, John E. Chaplin, Julia H. Quitmann

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Parent–child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish–German cross-sectional study von Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Eric Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann

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Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2–7 across 14 countries von The International EA-QOL Group, Michaela Dellenmark Blom, Stefanie Witt, Benjamin Zendejas, Ivana Sabolić, Juan Domingo Porras-Hernandez, Natalie Durkin, Simon Eaton, Kjersti Birketvedt, Alba Sánchez Galán, Katalin Eszter Müller, Anna Rozensztrauch, Tutku Soyer, Siqi Li, Anastasia Fourtaka, Corne de Vos, Graham Slater, Ana Špoljarić, John Bennett, Ragnhild Emblem, Zita Andrásdi, Robert Smigiel, Dariusz Patkowski, Çiğdem Ulukaya Durakbaşa, Marina Stilinović, Frederic Gottrand, Dora Škrljak Šoša, Tomislav Luetić, Sylwester Gerus, Shen Yang, Yong Zhao, Yichao Gu, Shuangshuang Li, Diego Rodriguez-Alvirde, Orsolya Kadenczki, Miram Pasini, Vuokko Wallace, Anke Widenmann, Feliciana Milagres Sikwete, Jinshi Huang, Leopoldo Martínez Martínez, Kate Abrahamsson, Shawn Izadi, Benno M Ure, Daniel Sidler, Julia H Quitmann, Jens Dingemann

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Effect of the addition of a mental health specialist for evaluation of undiagnosed patients in centres for rare diseases (ZSE-DUO): a prospective, controlled trial with a two-phase... von Helge Hebestreit, Anne-Marie Lapstich, Lilly Brandstetter, Christian Krauth, Jürgen Deckert, Kirsten Haas, Lisa Pfister, Stefanie Witt, Christopher Schippers, Jan Dieris-Hirche, Tim Maisch, Oliver Tüscher, Lavinia Bârlescu, Alexandra Berger, Mark Berneburg, Vanessa Britz, Anna Deibele, Holm Graeßner, Harald Gündel, Gereon Heuft, Thomas Lücke, Christine Mundlos, Julia Quitmann, Frank Rutsch, Katharina Schubert, Jörg Bernhard Schulz, Susann Schweiger, Cornelia Zeidler, Lena Zeltner, Martina de Zwaan, Federica Akkaya, Christine Babka, Lisa Bannert, Anja Bärsch-Michelmann, Leonie Böhm, Folke Brinkmann, Monika Bullinger, Holger Cario, Moritz de Greck, Klaus-Michael Debatin, Katrin Dillmann-Jehn, Jutta Eymann, Julia Frisch, Anja Glode, Vega Gödecke, Corinna Grasemann, Eva Grauer, Astrid Haas, Lea Haisch, Isabell, Heinrich, Melissa Held, Julia Hennermann, Stephan Herpertz, Anne Herrmann-Werner, Julian Hett, Peter Heuschmann, Bettina Hilbig, Laura Holthöfer, Christiane Imhof, Florian Junne, Jan Kassubek, Kevin-Thomas Koschitzki, Heike Krassort, Birgit Kropff, Julia Kuhn, Philipp Latzko, Thomas Loew, Albert C. Ludolph, Torsten Meyer, Isabell Meyer dos Santos, Klaus Mohnike, Martina Monninger, Martin Mücke, Susanne Müller, Thomas Musacchio, Margret Nießen, Mariel Nöhre, Stephan Ott, Andrea Petermann-Meyer, Christina Pfeifer-Duck, Lea-Sophie Piduhn, Carina Rampp, Olaf Rieß, Kristina Schaubert, Annika Schmidt, Simone Schneider, Ludger Schoels, Martina Schwalba, Udo Selig, Alexandra Sroka, Toni Steinbüchel, Sebastian Stösser, Steffi Suchant, Kathrin Ungethüm, Matthias Vogel, Daniela Volk, Christoph Vollmuth, Solange Volnov, Thomas O.F. Wagner, Sabrina Walter, Bodo Warrings, Kamil Zajt, Karola Zenker, David Zhang, Stephan Zipfel, Helge Hebestreit, Anne-Marie Lapstich, Lilly Brandstetter, Christian Krauth, Jürgen Deckert, Kirsten Haas, Lisa Pfister, Stefanie Witt, Christopher Schippers, Jan Dieris-Hirche, Tim Maisch, Oliver Tüscher, Lavinia Aurelia Bârlescu, Alexandra Berger, Mark Berneburg, Vanessa Britz, Anna Deibele, Holm Graeßner, Harald Gündel, Gereon Heuft, Thomas Lücke, Christine Mundlos, Julia Hannah Quitmann, Frank Rutsch, Katharina Schubert, Jörg B. Schulz, Susann Schweiger, Cornelia Zeidler, Lena Margarete Zeltner, Martina de Zwaan

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