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The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas by Alice Heaney, Jeanette Wilburn, Matthew Rouse, Shannon Langmead, Jaishri O. Blakeley, Susan Huson, Stephen P. McKenna
Published 2020-12-01
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The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation i... by Britt A. E. Dhaenens, Sarah A. van Dijk, Walter Taal, D. Christine Noordhoek, Anna Coffey, Stephen P. McKenna, Rianne Oostenbrink
Published 2024-03-01
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Adaptation and Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for Croatia by Ana Hećimović, Alice Heaney, Stephen P. McKenna, Latinka Basara, Marko Jakopović, Andrea Vukić Dugac, Gzim Redžepi, Cecilija Rotim, Miroslav Samaržija, Nataša Jokić-Begić, Sanja Popović-Grle
Published 2019-01-01
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