Patient involvement in rare diseases research: a scoping review of the literature and mixed method evaluation of Norwegian researchers’ experiences and perceptions by Gry Velvin, Thale Hartman, Trine Bathen

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Experienced fatigue in people with rare disorders: a scoping review on characteristics of existing research by Trine Bathen, Heidi Johansen, Hilde Strømme, Gry Velvin

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Fatigue in patients with syndromic heritable thoracic aortic disease: a systematic review of the literature and a qualitative study of patients’ experiences and perceptions by Gry Velvin, Heidi Johansen, Amy Østertun-Geirdal, Trine Bathen

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Education and work participation among adults with congenital unilateral upper limb deficiency in Norway: A cross-sectional study. by Heidi Johansen, Trine Bathen, Liv Øinæs Andersen, Svend Rand-Hendriksen, Kristin Østlie

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Chronic pain and fatigue in adults with congenital unilateral upper limb deficiency in Norway. A cross-sectional study. by Heidi Johansen, Trine Bathen, Liv Øinæs Andersen, Svend Rand-Hendriksen, Kristin Østlie

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Work participation in adults with rare genetic diseases - a scoping review by Gry Velvin, Brede Dammann, Trond Haagensen, Heidi Johansen, Hilde Strømme, Amy Østertun Geirdal, Trine Bathen

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