Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum
Omar F Khabour,1 Ahmed Abu-Siniyeh1–31Department of Medical Laboratory Sciences, Faculty of Applied Medical Sciences, Jordan University of Science and Technology, Irbid, Jordan; 2Department of Medical Laboratory Sciences, Faculty of Science, Al-Balqa’ Applied University, As Salt,...
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| Format: | Article |
| Language: | English |
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Dove Medical Press
2019-03-01
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| Series: | Journal of Multidisciplinary Healthcare |
| Subjects: | |
| Online Access: | https://www.dovepress.com/challenges-that-face-the-establishment-of-diabetes-biobank-in-jordan-a-peer-reviewed-article-JMDH |
| _version_ | 1811298323019071488 |
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| author | Khabour OF Abu-Siniyeh A |
| author_facet | Khabour OF Abu-Siniyeh A |
| author_sort | Khabour OF |
| collection | DOAJ |
| description | Omar F Khabour,1 Ahmed Abu-Siniyeh1–31Department of Medical Laboratory Sciences, Faculty of Applied Medical Sciences, Jordan University of Science and Technology, Irbid, Jordan; 2Department of Medical Laboratory Sciences, Faculty of Science, Al-Balqa’ Applied University, As Salt, Jordan; 3Clinical Laboratory Sciences Department, College of Applied Medical Sciences, Taif University, Taif, Kingdom of Saudi ArabiaIntroduction: Diabetes is common in Jordan with a prevalence of about 13% of the population. Establishment of a diabetes biobank in Jordan could have an enormous impact on the management and prevention of the disease.Methods: In the current study, ethical challenges that might face the establishment of a biobank were examined by 28 researchers from the Middle East and North Africa region using an online discussion forum.Results: All participants agreed on the importance of the establishment of a diabetes biobank in Jordan. The possible challenges that were discussed included confidentiality and privacy, informed consent, specimen ownership and participants’ rights, data sharing, returning of research results and incidental findings, lack of legislations, and importance of social awareness and public engagements with biobanks.Conclusion: In conclusion, participants support the establishment of a diabetes biobank in Jordan; however, some ethical issues should be considered to ensure the success of the biobank.Keywords: diabetes, biobank, Jordan, MENA, ethics |
| first_indexed | 2024-04-13T06:17:44Z |
| format | Article |
| id | doaj.art-00507fc5d9b54e40b0ebee8d61234387 |
| institution | Directory Open Access Journal |
| issn | 1178-2390 |
| language | English |
| last_indexed | 2024-04-13T06:17:44Z |
| publishDate | 2019-03-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | Journal of Multidisciplinary Healthcare |
| spelling | doaj.art-00507fc5d9b54e40b0ebee8d612343872022-12-22T02:58:45ZengDove Medical PressJournal of Multidisciplinary Healthcare1178-23902019-03-01Volume 1222923444851Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forumKhabour OFAbu-Siniyeh AOmar F Khabour,1 Ahmed Abu-Siniyeh1–31Department of Medical Laboratory Sciences, Faculty of Applied Medical Sciences, Jordan University of Science and Technology, Irbid, Jordan; 2Department of Medical Laboratory Sciences, Faculty of Science, Al-Balqa’ Applied University, As Salt, Jordan; 3Clinical Laboratory Sciences Department, College of Applied Medical Sciences, Taif University, Taif, Kingdom of Saudi ArabiaIntroduction: Diabetes is common in Jordan with a prevalence of about 13% of the population. Establishment of a diabetes biobank in Jordan could have an enormous impact on the management and prevention of the disease.Methods: In the current study, ethical challenges that might face the establishment of a biobank were examined by 28 researchers from the Middle East and North Africa region using an online discussion forum.Results: All participants agreed on the importance of the establishment of a diabetes biobank in Jordan. The possible challenges that were discussed included confidentiality and privacy, informed consent, specimen ownership and participants’ rights, data sharing, returning of research results and incidental findings, lack of legislations, and importance of social awareness and public engagements with biobanks.Conclusion: In conclusion, participants support the establishment of a diabetes biobank in Jordan; however, some ethical issues should be considered to ensure the success of the biobank.Keywords: diabetes, biobank, Jordan, MENA, ethicshttps://www.dovepress.com/challenges-that-face-the-establishment-of-diabetes-biobank-in-jordan-a-peer-reviewed-article-JMDHdiabetesbiobankJordanMENAethics |
| spellingShingle | Khabour OF Abu-Siniyeh A Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum Journal of Multidisciplinary Healthcare diabetes biobank Jordan MENA ethics |
| title | Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum |
| title_full | Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum |
| title_fullStr | Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum |
| title_full_unstemmed | Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum |
| title_short | Challenges that face the establishment of diabetes biobank in Jordan: a qualitative analysis of an online discussion forum |
| title_sort | challenges that face the establishment of diabetes biobank in jordan a qualitative analysis of an online discussion forum |
| topic | diabetes biobank Jordan MENA ethics |
| url | https://www.dovepress.com/challenges-that-face-the-establishment-of-diabetes-biobank-in-jordan-a-peer-reviewed-article-JMDH |
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