A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany
Abstract Background The Cystic Fibrosis (CF) center in Roscoff (Brittany) has been involved in therapeutic education programs (TEP) since 2006 and took part in the pilot phase of the French quality improvement program (QIP) since 2011. The aim was to improve the nutritional status of children with c...
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| Format: | Article |
| Language: | English |
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BMC
2018-02-01
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| Series: | Orphanet Journal of Rare Diseases |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s13023-017-0746-6 |
| _version_ | 1818879417556926464 |
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| author | Krista Revert Laurence Audran Jocelyne Pengam Pascal Lesne Dominique Pougheon Bertrand |
| author_facet | Krista Revert Laurence Audran Jocelyne Pengam Pascal Lesne Dominique Pougheon Bertrand |
| author_sort | Krista Revert |
| collection | DOAJ |
| description | Abstract Background The Cystic Fibrosis (CF) center in Roscoff (Brittany) has been involved in therapeutic education programs (TEP) since 2006 and took part in the pilot phase of the French quality improvement program (QIP) since 2011. The aim was to improve the nutritional status of children with cystic fibrosis aged 2-12 years old in order to optimize their health status as they enter adolescence. Methods A multidisciplinary quality team was created in order to select and address a specific health problem among our pediatric population. Following analysis of yearly indicators for our CF center, our team chose to improve quality of care concerning nutritional status of children aged 2-12 years old. Factors influencing efficacy were studied, tools were developed to implement a new nutritional program, results were analyzed on a real-time basis. Results Over the 3 year period, all patients from 2 years of age, were monitored with the new follow-up program (2012: N = 34; 2014: N = 44). Each patient was followed up at every clinic visit, their BMI z-score was calculated to decide their nutritional risk and personalize their follow-up program consequently. Between 1/1/2012 and 31/12/2014, the mean BMI z-score of the open cohort improved from −0.49 to −0.22. Conclusions Since 2014, focus on nutrition using the newly-adapted program has become routine practice at each follow-up visit. Patients and parents expressed a high level of satisfaction (75% very satisfied). The follow-up program aimed at improving nutritional status for children aged 2-12 years old was successfully implemented and integrated into routine practice; it was therefore extended to all children with CF (1 month - 18 years) in our center. The relationship among professional and patients and parents was strengthened. |
| first_indexed | 2024-12-19T14:29:45Z |
| format | Article |
| id | doaj.art-01630a5130ed4de0ad1ece8ce26e8f56 |
| institution | Directory Open Access Journal |
| issn | 1750-1172 |
| language | English |
| last_indexed | 2024-12-19T14:29:45Z |
| publishDate | 2018-02-01 |
| publisher | BMC |
| record_format | Article |
| series | Orphanet Journal of Rare Diseases |
| spelling | doaj.art-01630a5130ed4de0ad1ece8ce26e8f562022-12-21T20:17:29ZengBMCOrphanet Journal of Rare Diseases1750-11722018-02-0113S1273610.1186/s13023-017-0746-6A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, BrittanyKrista Revert0Laurence Audran1Jocelyne Pengam2Pascal Lesne3Dominique Pougheon Bertrand4CF center Roscoff, Fondation ildysCF center Roscoff, Fondation ildysCF center Roscoff, Fondation ildysCF center Roscoff, Fondation ildysLEPS EA3412, Sorbonne Paris Cité UniversityAbstract Background The Cystic Fibrosis (CF) center in Roscoff (Brittany) has been involved in therapeutic education programs (TEP) since 2006 and took part in the pilot phase of the French quality improvement program (QIP) since 2011. The aim was to improve the nutritional status of children with cystic fibrosis aged 2-12 years old in order to optimize their health status as they enter adolescence. Methods A multidisciplinary quality team was created in order to select and address a specific health problem among our pediatric population. Following analysis of yearly indicators for our CF center, our team chose to improve quality of care concerning nutritional status of children aged 2-12 years old. Factors influencing efficacy were studied, tools were developed to implement a new nutritional program, results were analyzed on a real-time basis. Results Over the 3 year period, all patients from 2 years of age, were monitored with the new follow-up program (2012: N = 34; 2014: N = 44). Each patient was followed up at every clinic visit, their BMI z-score was calculated to decide their nutritional risk and personalize their follow-up program consequently. Between 1/1/2012 and 31/12/2014, the mean BMI z-score of the open cohort improved from −0.49 to −0.22. Conclusions Since 2014, focus on nutrition using the newly-adapted program has become routine practice at each follow-up visit. Patients and parents expressed a high level of satisfaction (75% very satisfied). The follow-up program aimed at improving nutritional status for children aged 2-12 years old was successfully implemented and integrated into routine practice; it was therefore extended to all children with CF (1 month - 18 years) in our center. The relationship among professional and patients and parents was strengthened.http://link.springer.com/article/10.1186/s13023-017-0746-6Cystic FibrosisQuality improvement programTherapeutic patient educationNutritional carePediatric careBMI |
| spellingShingle | Krista Revert Laurence Audran Jocelyne Pengam Pascal Lesne Dominique Pougheon Bertrand A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany Orphanet Journal of Rare Diseases Cystic Fibrosis Quality improvement program Therapeutic patient education Nutritional care Pediatric care BMI |
| title | A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany |
| title_full | A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany |
| title_fullStr | A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany |
| title_full_unstemmed | A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany |
| title_short | A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany |
| title_sort | quality improvement program to improve nutritional status of children with cystic fibrosis aged 2 12 years old over a 3 year period at cf center roscoff brittany |
| topic | Cystic Fibrosis Quality improvement program Therapeutic patient education Nutritional care Pediatric care BMI |
| url | http://link.springer.com/article/10.1186/s13023-017-0746-6 |
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