Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences

Development of a Cystic Fibrosis Primary Palliative Care Intervention: Qualitative Analysis of Patient and Family Caregiver Preferences

To prevent or mitigate chronic illness burden, people with cystic fibrosis (pwCF) and their family caregivers need primary (generalist-level) palliative care from the time of diagnosis forward. We used qualitative methods to explore their preferences about a screening-and-triage model (“ Improving L...

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Bibliographic Details
Main Authors: Melissa J Basile PhD, Lara Dhingra PhD, Stephanie DiFiglia PhD, Jennifer Polo MS, Russell Portenoy MD, Janice Wang MD, Patricia Walker MD, Brandi Middour-Oxler DNP, Rachel W Linnemann MD, Catherine Kier MD, Deborah Friedman PhD, Maria Berdella MD, Robert Abdullah MD, Lael M Yonker MD, Martha Markovitz MSW, Denis Hadjiliadis MD, Melissa Shiffman MA, LMSW, Francine Fischer, Sophie Pollinger BA, Margot Hardcastle BA, Nivedita Chaudhary MPH, Anna M Georgiopoulos MD
Format: Article
Language:English
Published: SAGE Publishing 2023-03-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/23743735231161486

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