Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners.
<h4>Objectives</h4>In England, Electronic Palliative Care Coordination Systems (EPaCCS) were introduced in 2008 to support care coordination and delivery in accordance with patient preferences. Despite policy supporting their implementation, there has been a lack of rigorous evaluation o...
| Main Authors: | , , , , , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Public Library of Science (PLoS)
2022-01-01
|
| Series: | PLoS ONE |
| Online Access: | https://doi.org/10.1371/journal.pone.0275991 |
| _version_ | 1811250825713942528 |
|---|---|
| author | Jacqueline Birtwistle Pablo Millares-Martin Catherine J Evans Robbie Foy Samuel Relton Suzanne Richards Katherine E Sleeman Maureen Twiddy Michael I Bennett Matthew J Allsop |
| author_facet | Jacqueline Birtwistle Pablo Millares-Martin Catherine J Evans Robbie Foy Samuel Relton Suzanne Richards Katherine E Sleeman Maureen Twiddy Michael I Bennett Matthew J Allsop |
| author_sort | Jacqueline Birtwistle |
| collection | DOAJ |
| description | <h4>Objectives</h4>In England, Electronic Palliative Care Coordination Systems (EPaCCS) were introduced in 2008 to support care coordination and delivery in accordance with patient preferences. Despite policy supporting their implementation, there has been a lack of rigorous evaluation of EPaCCS and it is not clear how they have been translated into practice. This study sought to examine the current national implementation of EPaCCS, including their intended impact on patient and service outcomes, and barriers and facilitators for implementation.<h4>Methods</h4>We conducted a national cross-sectional online survey of end-of-life care commissioning leads for Clinical Commissioning Groups (CCGs) in England. We enquired about the current implementation status of EPaCCS, their role in information sharing and intended impact, and requested routine patient-level data relating to EPaCCS.<h4>Results</h4>Out of 135 CCGs, 85 (63.0%) responded, with 57 (67.1%) having operational EPaCCS. Use of EPaCCS were confined to healthcare providers with most systems (67%) not supporting information sharing with care homes and social care providers. Most systems (68%) sought to facilitate goal concordant care, although there was inconsonance between intended impacts and monitoring measures used. Common challenges to implementation included healthcare professionals' limited engagement. Only one-third of patients had an EPaCCS record at death with limited recording of patient preferences.<h4>Conclusions</h4>Critical gaps exist in engagement with EPaCCS and their ability to facilitate information sharing across care providers. The limited alignment between stated goals of EPaCCS and their monitoring impedes efforts to understand which characteristics of systems can best support care delivery. |
| first_indexed | 2024-04-12T16:10:32Z |
| format | Article |
| id | doaj.art-032a6e00c78244bdb0b6dd8a789e96b0 |
| institution | Directory Open Access Journal |
| issn | 1932-6203 |
| language | English |
| last_indexed | 2024-04-12T16:10:32Z |
| publishDate | 2022-01-01 |
| publisher | Public Library of Science (PLoS) |
| record_format | Article |
| series | PLoS ONE |
| spelling | doaj.art-032a6e00c78244bdb0b6dd8a789e96b02022-12-22T03:25:55ZengPublic Library of Science (PLoS)PLoS ONE1932-62032022-01-011710e027599110.1371/journal.pone.0275991Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners.Jacqueline BirtwistlePablo Millares-MartinCatherine J EvansRobbie FoySamuel ReltonSuzanne RichardsKatherine E SleemanMaureen TwiddyMichael I BennettMatthew J Allsop<h4>Objectives</h4>In England, Electronic Palliative Care Coordination Systems (EPaCCS) were introduced in 2008 to support care coordination and delivery in accordance with patient preferences. Despite policy supporting their implementation, there has been a lack of rigorous evaluation of EPaCCS and it is not clear how they have been translated into practice. This study sought to examine the current national implementation of EPaCCS, including their intended impact on patient and service outcomes, and barriers and facilitators for implementation.<h4>Methods</h4>We conducted a national cross-sectional online survey of end-of-life care commissioning leads for Clinical Commissioning Groups (CCGs) in England. We enquired about the current implementation status of EPaCCS, their role in information sharing and intended impact, and requested routine patient-level data relating to EPaCCS.<h4>Results</h4>Out of 135 CCGs, 85 (63.0%) responded, with 57 (67.1%) having operational EPaCCS. Use of EPaCCS were confined to healthcare providers with most systems (67%) not supporting information sharing with care homes and social care providers. Most systems (68%) sought to facilitate goal concordant care, although there was inconsonance between intended impacts and monitoring measures used. Common challenges to implementation included healthcare professionals' limited engagement. Only one-third of patients had an EPaCCS record at death with limited recording of patient preferences.<h4>Conclusions</h4>Critical gaps exist in engagement with EPaCCS and their ability to facilitate information sharing across care providers. The limited alignment between stated goals of EPaCCS and their monitoring impedes efforts to understand which characteristics of systems can best support care delivery.https://doi.org/10.1371/journal.pone.0275991 |
| spellingShingle | Jacqueline Birtwistle Pablo Millares-Martin Catherine J Evans Robbie Foy Samuel Relton Suzanne Richards Katherine E Sleeman Maureen Twiddy Michael I Bennett Matthew J Allsop Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners. PLoS ONE |
| title | Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners. |
| title_full | Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners. |
| title_fullStr | Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners. |
| title_full_unstemmed | Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners. |
| title_short | Mapping and characterising electronic palliative care coordination systems and their intended impact: A national survey of end-of-life care commissioners. |
| title_sort | mapping and characterising electronic palliative care coordination systems and their intended impact a national survey of end of life care commissioners |
| url | https://doi.org/10.1371/journal.pone.0275991 |
| work_keys_str_mv | AT jacquelinebirtwistle mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT pablomillaresmartin mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT catherinejevans mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT robbiefoy mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT samuelrelton mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT suzannerichards mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT katherineesleeman mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT maureentwiddy mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT michaelibennett mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners AT matthewjallsop mappingandcharacterisingelectronicpalliativecarecoordinationsystemsandtheirintendedimpactanationalsurveyofendoflifecarecommissioners |