Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals

Pulmonary rehabilitation (PR) is an effective intervention for people with chronic respiratory diseases (CRD); however, its effects fade after 6–12 months. Community-based strategies might be valuable to sustain PR benefits, but this has been little explored. People with CRD, informal carers, and he...

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Main Authors: Sara Souto-Miranda, Cláudia Dias, Cristina Jácome, Elsa Melo, Alda Marques
Format: Article
Language:English
Published: MDPI AG 2022-01-01
Series:Healthcare
Subjects:
Online Access:https://www.mdpi.com/2227-9032/10/1/119
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author Sara Souto-Miranda
Cláudia Dias
Cristina Jácome
Elsa Melo
Alda Marques
author_facet Sara Souto-Miranda
Cláudia Dias
Cristina Jácome
Elsa Melo
Alda Marques
author_sort Sara Souto-Miranda
collection DOAJ
description Pulmonary rehabilitation (PR) is an effective intervention for people with chronic respiratory diseases (CRD); however, its effects fade after 6–12 months. Community-based strategies might be valuable to sustain PR benefits, but this has been little explored. People with CRD, informal carers, and healthcare professionals (HCPs) were recruited from pulmonology appointments of two local hospitals, two primary care centres, and one community institutional practice and through snowballing technique. Focus groups were conducted using a semi-structured guide. Data were thematically analysed. Twenty-nine people with CRD (24% female, median 69 years), 5 informal carers (100% female, median 69 years), and 16 HCPs (75% female, median 36 years) were included. Three themes were identified: “Maintaining an independent and active lifestyle” which revealed common strategies adopted by people with “intrinsic motivation and professional and peer support” as key elements to maintain benefits, and that “access to information and partnerships with city councils’ physical activities” were necessary future steps to sustain active lifestyles. This study suggests that motivation, and professional and peer support are key elements to maintaining the benefits of PR in people with CRD, and that different physical activity options (independent or group activities) considering peoples’ preferences, should be available through partnerships with the community, namely city councils.
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spelling doaj.art-036fee7fdbac40b2ba0020d5acd7f4982023-11-23T13:56:02ZengMDPI AGHealthcare2227-90322022-01-0110111910.3390/healthcare10010119Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare ProfessionalsSara Souto-Miranda0Cláudia Dias1Cristina Jácome2Elsa Melo3Alda Marques4Lab3R—Respiratory Research and Rehabilitation Laboratory, School of Health Sciences (ESSUA), University of Aveiro, 3810-193 Aveiro, PortugalHome Care Department, Linde Healthcare, 1200-217 Lisbon, PortugalCenter for Health Technology and Services Research (CINTESIS), Faculty of Medicine, University of Porto, 4200-450 Porto, PortugaliBiMED—Institute of Biomedicine, School of Health Sciences (ESSUA), University of Aveiro, 3810-193 Aveiro, PortugalLab3R—Respiratory Research and Rehabilitation Laboratory, School of Health Sciences (ESSUA), University of Aveiro, 3810-193 Aveiro, PortugalPulmonary rehabilitation (PR) is an effective intervention for people with chronic respiratory diseases (CRD); however, its effects fade after 6–12 months. Community-based strategies might be valuable to sustain PR benefits, but this has been little explored. People with CRD, informal carers, and healthcare professionals (HCPs) were recruited from pulmonology appointments of two local hospitals, two primary care centres, and one community institutional practice and through snowballing technique. Focus groups were conducted using a semi-structured guide. Data were thematically analysed. Twenty-nine people with CRD (24% female, median 69 years), 5 informal carers (100% female, median 69 years), and 16 HCPs (75% female, median 36 years) were included. Three themes were identified: “Maintaining an independent and active lifestyle” which revealed common strategies adopted by people with “intrinsic motivation and professional and peer support” as key elements to maintain benefits, and that “access to information and partnerships with city councils’ physical activities” were necessary future steps to sustain active lifestyles. This study suggests that motivation, and professional and peer support are key elements to maintaining the benefits of PR in people with CRD, and that different physical activity options (independent or group activities) considering peoples’ preferences, should be available through partnerships with the community, namely city councils.https://www.mdpi.com/2227-9032/10/1/119chronic respiratory diseasesmaintenance strategiespulmonary rehabilitationphysical activity
spellingShingle Sara Souto-Miranda
Cláudia Dias
Cristina Jácome
Elsa Melo
Alda Marques
Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals
Healthcare
chronic respiratory diseases
maintenance strategies
pulmonary rehabilitation
physical activity
title Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals
title_full Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals
title_fullStr Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals
title_full_unstemmed Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals
title_short Long-Term Maintenance Strategies after Pulmonary Rehabilitation: Perspectives of People with Chronic Respiratory Diseases, Informal Carers, and Healthcare Professionals
title_sort long term maintenance strategies after pulmonary rehabilitation perspectives of people with chronic respiratory diseases informal carers and healthcare professionals
topic chronic respiratory diseases
maintenance strategies
pulmonary rehabilitation
physical activity
url https://www.mdpi.com/2227-9032/10/1/119
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