Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies
We conducted a literature review to identify commonly used recruitment and retention strategies in research among adolescent and young adult (AYA) cancer survivors 15-39 years of age and examine the effectiveness of these strategies based on the reported recruitment and retention rates. We identifie...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2023-01-01
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| Series: | Journal of Clinical and Translational Science |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866123006696/type/journal_article |
| _version_ | 1827752565633187840 |
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| author | Ruixiao Rachel Wang Julie B. Schweitzer Samantha Hernandez Silvia C. Molina Theresa H.M. Keegan |
| author_facet | Ruixiao Rachel Wang Julie B. Schweitzer Samantha Hernandez Silvia C. Molina Theresa H.M. Keegan |
| author_sort | Ruixiao Rachel Wang |
| collection | DOAJ |
| description | We conducted a literature review to identify commonly used recruitment and retention strategies in research among adolescent and young adult (AYA) cancer survivors 15-39 years of age and examine the effectiveness of these strategies based on the reported recruitment and retention rates. We identified 18 publications published after 2010, including 14 articles describing recruitment strategies and four articles discussing retention strategies and addressing reasons for AYA cancer patients dropping out of the studies. In terms of recruitment, Internet and social networking strategies were used most frequently and resulted in higher participation rates of AYA cancer survivors compared to other conventional methods, such as hospital-based outreach, mailings, and phone calls. In terms of retention, investigators used monetary incentives in all four studies and regular emails in two studies. There was no association between the number of strategies employed and the overall recruitment (p = 0.09) and retention rates (p = 0.33). Future research and planned studies testing recruitment and retention strategies are needed to identify optimal, modern communication procedures to increase AYA participation and adherence. More education should be provided to AYAs to increase their knowledge of research studies and strengthen the connection between AYA cancer survivors and their health providers. |
| first_indexed | 2024-03-11T07:18:10Z |
| format | Article |
| id | doaj.art-038f39aef529406aa752d03648506d64 |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-03-11T07:18:10Z |
| publishDate | 2023-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-038f39aef529406aa752d03648506d642023-11-17T08:08:17ZengCambridge University PressJournal of Clinical and Translational Science2059-86612023-01-01710.1017/cts.2023.669Strategies for recruitment and retention of adolescent and young adult cancer patients in research studiesRuixiao Rachel Wang0https://orcid.org/0009-0004-6071-2218Julie B. Schweitzer1Samantha Hernandez2Silvia C. Molina3Theresa H.M. Keegan4Clinical and Translational Science Center, University of California Davis, Sacramento, CA, USAClinical and Translational Science Center, University of California Davis, Sacramento, CA, USA Department of Psychiatry and Behavioral Sciences, MIND Institute, University of California Davis, Sacramento, CA, USAClinical and Translational Science Center, University of California Davis, Sacramento, CA, USAClinical and Translational Science Center, University of California Davis, Sacramento, CA, USAClinical and Translational Science Center, University of California Davis, Sacramento, CA, USA Division of Hematology and Oncology, Center for Oncology Hematology Outcomes Research and Training (COHORT), University of California, Davis Comprehensive Cancer Center, Sacramento, CA, USAWe conducted a literature review to identify commonly used recruitment and retention strategies in research among adolescent and young adult (AYA) cancer survivors 15-39 years of age and examine the effectiveness of these strategies based on the reported recruitment and retention rates. We identified 18 publications published after 2010, including 14 articles describing recruitment strategies and four articles discussing retention strategies and addressing reasons for AYA cancer patients dropping out of the studies. In terms of recruitment, Internet and social networking strategies were used most frequently and resulted in higher participation rates of AYA cancer survivors compared to other conventional methods, such as hospital-based outreach, mailings, and phone calls. In terms of retention, investigators used monetary incentives in all four studies and regular emails in two studies. There was no association between the number of strategies employed and the overall recruitment (p = 0.09) and retention rates (p = 0.33). Future research and planned studies testing recruitment and retention strategies are needed to identify optimal, modern communication procedures to increase AYA participation and adherence. More education should be provided to AYAs to increase their knowledge of research studies and strengthen the connection between AYA cancer survivors and their health providers.https://www.cambridge.org/core/product/identifier/S2059866123006696/type/journal_articleAdolescentyoung adultcancerrecruitmentretentionclinical triallongitudinal study |
| spellingShingle | Ruixiao Rachel Wang Julie B. Schweitzer Samantha Hernandez Silvia C. Molina Theresa H.M. Keegan Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies Journal of Clinical and Translational Science Adolescent young adult cancer recruitment retention clinical trial longitudinal study |
| title | Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies |
| title_full | Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies |
| title_fullStr | Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies |
| title_full_unstemmed | Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies |
| title_short | Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies |
| title_sort | strategies for recruitment and retention of adolescent and young adult cancer patients in research studies |
| topic | Adolescent young adult cancer recruitment retention clinical trial longitudinal study |
| url | https://www.cambridge.org/core/product/identifier/S2059866123006696/type/journal_article |
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