Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia
Abstract Background Maximizing quality of life (QoL) is a major goal of care for people with dementia in nursing homes (NHs). Social determinants are critical for residents' QoL. However, similar to the United States and other countries, most Canadian NHs routinely monitor and publicly report q...
| Main Authors: | , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2024-02-01
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| Series: | BMC Geriatrics |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12877-024-04710-1 |
| _version_ | 1797273289313222656 |
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| author | Matthias Hoben Emily Dymchuk Malcolm B. Doupe Janice Keefe Katie Aubrecht Christine Kelly Kelli Stajduhar Sube Banerjee Hannah M. O’Rourke Stephanie Chamberlain Anna Beeber Jordana Salma Pamela Jarrett Amit Arya Kyle Corbett Rashmi Devkota Melissa Ristau Shovana Shrestha Carole A. Estabrooks |
| author_facet | Matthias Hoben Emily Dymchuk Malcolm B. Doupe Janice Keefe Katie Aubrecht Christine Kelly Kelli Stajduhar Sube Banerjee Hannah M. O’Rourke Stephanie Chamberlain Anna Beeber Jordana Salma Pamela Jarrett Amit Arya Kyle Corbett Rashmi Devkota Melissa Ristau Shovana Shrestha Carole A. Estabrooks |
| author_sort | Matthias Hoben |
| collection | DOAJ |
| description | Abstract Background Maximizing quality of life (QoL) is a major goal of care for people with dementia in nursing homes (NHs). Social determinants are critical for residents' QoL. However, similar to the United States and other countries, most Canadian NHs routinely monitor and publicly report quality of care, but not resident QoL and its social determinants. Therefore, we lack robust, quantitative studies evaluating the association of multiple intersecting social determinants with NH residents’ QoL. The goal of this study is to address this critical knowledge gap. Methods We will recruit a random sample of 80 NHs from 5 Canadian provinces (Alberta, British Columbia, Manitoba, Nova Scotia, Ontario). We will stratify facilities by urban/rural location, for-profit/not-for-profit ownership, and size (above/below median number of beds among urban versus rural facilities in each province). In video-based structured interviews with care staff, we will complete QoL assessments for each of ~ 4,320 residents, using the DEMQOL-CH, a validated, feasible tool for this purpose. We will also assess resident’s social determinants of QoL, using items from validated Canadian population surveys. Health and quality of care data will come from routinely collected Resident Assessment Instrument – Minimum Data Set 2.0 records. Knowledge users (health system decision makers, Alzheimer Societies, NH managers, care staff, people with dementia and their family/friend caregivers) have been involved in the design of this study, and we will partner with them throughout the study. We will share and discuss study findings with knowledge users in web-based summits with embedded focus groups. This will provide much needed data on knowledge users' interpretations, usefulness and intended use of data on NH residents’ QoL and its health and social determinants. Discussion This large-scale, robust, quantitative study will address a major knowledge gap by assessing QoL and multiple intersecting social determinants of QoL among NH residents with dementia. We will also generate evidence on clusters of intersecting social determinants of QoL. This study will be a prerequisite for future studies to investigate in depth the mechanisms leading to QoL inequities in LTC, longitudinal studies to identify trajectories in QoL, and robust intervention studies aiming to reduce these inequities. |
| first_indexed | 2024-03-07T14:41:20Z |
| format | Article |
| id | doaj.art-03fb0ba4a4844c4989c2d83a5b44c86e |
| institution | Directory Open Access Journal |
| issn | 1471-2318 |
| language | English |
| last_indexed | 2024-03-07T14:41:20Z |
| publishDate | 2024-02-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Geriatrics |
| spelling | doaj.art-03fb0ba4a4844c4989c2d83a5b44c86e2024-03-05T20:12:36ZengBMCBMC Geriatrics1471-23182024-02-0124111110.1186/s12877-024-04710-1Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementiaMatthias Hoben0Emily Dymchuk1Malcolm B. Doupe2Janice Keefe3Katie Aubrecht4Christine Kelly5Kelli Stajduhar6Sube Banerjee7Hannah M. O’Rourke8Stephanie Chamberlain9Anna Beeber10Jordana Salma11Pamela Jarrett12Amit Arya13Kyle Corbett14Rashmi Devkota15Melissa Ristau16Shovana Shrestha17Carole A. Estabrooks18School of Health Policy and Management, Faculty of Health, York UniversityFaculty of Nursing, College of Health Sciences, University of AlbertaRady Faculty of Health Sciences, Max Rady College of Medicine, University of ManitobaNova Scotia Centre on Aging, Mount Saint Vincent UniversityDepartment of Sociology, Faculty of Arts, St. Francis Xavier UniversityRady Faculty of Health Sciences, Max Rady College of Medicine, University of ManitobaSchool of Nursing, Faculty of Human & Social Development, University of VictoriaFaculty of Medicine and Health Sciences, University of NottinghamFaculty of Nursing, College of Health Sciences, University of AlbertaFaculty of Nursing, College of Health Sciences, University of AlbertaSchool of Nursing, Johns Hopkins UniversityFaculty of Nursing, College of Health Sciences, University of AlbertaFaculty of Medicine, Dalhousie UniversityFreeman Centre for the Advancement of Palliative Care, North York General HospitalFaculty of Nursing, College of Health Sciences, University of AlbertaFaculty of Nursing, College of Health Sciences, University of AlbertaDr. Gerald Zetter Care Centre, The Good Samaritan SocietyFaculty of Nursing, College of Health Sciences, University of AlbertaFaculty of Nursing, College of Health Sciences, University of AlbertaAbstract Background Maximizing quality of life (QoL) is a major goal of care for people with dementia in nursing homes (NHs). Social determinants are critical for residents' QoL. However, similar to the United States and other countries, most Canadian NHs routinely monitor and publicly report quality of care, but not resident QoL and its social determinants. Therefore, we lack robust, quantitative studies evaluating the association of multiple intersecting social determinants with NH residents’ QoL. The goal of this study is to address this critical knowledge gap. Methods We will recruit a random sample of 80 NHs from 5 Canadian provinces (Alberta, British Columbia, Manitoba, Nova Scotia, Ontario). We will stratify facilities by urban/rural location, for-profit/not-for-profit ownership, and size (above/below median number of beds among urban versus rural facilities in each province). In video-based structured interviews with care staff, we will complete QoL assessments for each of ~ 4,320 residents, using the DEMQOL-CH, a validated, feasible tool for this purpose. We will also assess resident’s social determinants of QoL, using items from validated Canadian population surveys. Health and quality of care data will come from routinely collected Resident Assessment Instrument – Minimum Data Set 2.0 records. Knowledge users (health system decision makers, Alzheimer Societies, NH managers, care staff, people with dementia and their family/friend caregivers) have been involved in the design of this study, and we will partner with them throughout the study. We will share and discuss study findings with knowledge users in web-based summits with embedded focus groups. This will provide much needed data on knowledge users' interpretations, usefulness and intended use of data on NH residents’ QoL and its health and social determinants. Discussion This large-scale, robust, quantitative study will address a major knowledge gap by assessing QoL and multiple intersecting social determinants of QoL among NH residents with dementia. We will also generate evidence on clusters of intersecting social determinants of QoL. This study will be a prerequisite for future studies to investigate in depth the mechanisms leading to QoL inequities in LTC, longitudinal studies to identify trajectories in QoL, and robust intervention studies aiming to reduce these inequities.https://doi.org/10.1186/s12877-024-04710-1Quality of lifeDementiaNursing homesSocial determinants of health |
| spellingShingle | Matthias Hoben Emily Dymchuk Malcolm B. Doupe Janice Keefe Katie Aubrecht Christine Kelly Kelli Stajduhar Sube Banerjee Hannah M. O’Rourke Stephanie Chamberlain Anna Beeber Jordana Salma Pamela Jarrett Amit Arya Kyle Corbett Rashmi Devkota Melissa Ristau Shovana Shrestha Carole A. Estabrooks Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia BMC Geriatrics Quality of life Dementia Nursing homes Social determinants of health |
| title | Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia |
| title_full | Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia |
| title_fullStr | Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia |
| title_full_unstemmed | Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia |
| title_short | Counting what counts: assessing quality of life and its social determinants among nursing home residents with dementia |
| title_sort | counting what counts assessing quality of life and its social determinants among nursing home residents with dementia |
| topic | Quality of life Dementia Nursing homes Social determinants of health |
| url | https://doi.org/10.1186/s12877-024-04710-1 |
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