Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries
Introduction: Traumatic brain injury, spinal cord injury, and burn injury can cause lifelong disability and changes in quality of life. In order to meet the challenges of postinjury life, various types of health information are needed. We sought to identify preferred sources of health information an...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2016-09-01
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| Series: | Journal of Patient Experience |
| Online Access: | https://doi.org/10.1177/2374373516667007 |
| _version_ | 1818305360719511552 |
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| author | Nathan T Coffey MPH Ali A Weinstein PhD Cindy Cai PhD Jimmy Cassese MS Rebecca Jones MPH Dahlia Shaewitz MA Steven Garfinkel PhD |
| author_facet | Nathan T Coffey MPH Ali A Weinstein PhD Cindy Cai PhD Jimmy Cassese MS Rebecca Jones MPH Dahlia Shaewitz MA Steven Garfinkel PhD |
| author_sort | Nathan T Coffey MPH |
| collection | DOAJ |
| description | Introduction: Traumatic brain injury, spinal cord injury, and burn injury can cause lifelong disability and changes in quality of life. In order to meet the challenges of postinjury life, various types of health information are needed. We sought to identify preferred sources of health information and services for persons with these injuries and discover how accessibility could be improved. Methods: Thirty-three persons with injury participated in semistructured interviews. Responses to interview questions were coded using NVivo. Results: Participants’ difficulties accessing health information varied by injury type and individually. The majority of respondents found information via the Internet and advocated its use when asked to describe their ideal health information system. Nearly all participants supported the development of a comprehensive care website. When searching for health information, participants sought doctor and support group networks, long-term health outcomes, and treatments specific to their injury. Conclusion: To optimize the quality of health information resources, Internet-based health-care platforms should add or highlight access points to connect patients to medical professionals and support networks while aggregating specialized, injury-specific research and treatment information. |
| first_indexed | 2024-12-13T06:25:21Z |
| format | Article |
| id | doaj.art-04a14cfbbdac4bb4a238e48d478391f6 |
| institution | Directory Open Access Journal |
| issn | 2374-3743 2374-3735 |
| language | English |
| last_indexed | 2024-12-13T06:25:21Z |
| publishDate | 2016-09-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Journal of Patient Experience |
| spelling | doaj.art-04a14cfbbdac4bb4a238e48d478391f62022-12-21T23:56:45ZengSAGE PublishingJournal of Patient Experience2374-37432374-37352016-09-01310.1177/237437351666700710.1177_2374373516667007Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn InjuriesNathan T Coffey MPH0Ali A Weinstein PhD1Cindy Cai PhD2Jimmy Cassese MS3Rebecca Jones MPH4Dahlia Shaewitz MA5Steven Garfinkel PhD6 Center for Study of Chronic Illness and Disability, College of Health and Human Services, George Mason University, Fairfax, VA, USA Center for Study of Chronic Illness and Disability, College of Health and Human Services, George Mason University, Fairfax, VA, USA American Institutes for Research, Washington, DC, USA Center for Study of Chronic Illness and Disability, College of Health and Human Services, George Mason University, Fairfax, VA, USA Center for Study of Chronic Illness and Disability, College of Health and Human Services, George Mason University, Fairfax, VA, USA American Institutes for Research, Washington, DC, USA American Institutes for Research, Washington, DC, USAIntroduction: Traumatic brain injury, spinal cord injury, and burn injury can cause lifelong disability and changes in quality of life. In order to meet the challenges of postinjury life, various types of health information are needed. We sought to identify preferred sources of health information and services for persons with these injuries and discover how accessibility could be improved. Methods: Thirty-three persons with injury participated in semistructured interviews. Responses to interview questions were coded using NVivo. Results: Participants’ difficulties accessing health information varied by injury type and individually. The majority of respondents found information via the Internet and advocated its use when asked to describe their ideal health information system. Nearly all participants supported the development of a comprehensive care website. When searching for health information, participants sought doctor and support group networks, long-term health outcomes, and treatments specific to their injury. Conclusion: To optimize the quality of health information resources, Internet-based health-care platforms should add or highlight access points to connect patients to medical professionals and support networks while aggregating specialized, injury-specific research and treatment information.https://doi.org/10.1177/2374373516667007 |
| spellingShingle | Nathan T Coffey MPH Ali A Weinstein PhD Cindy Cai PhD Jimmy Cassese MS Rebecca Jones MPH Dahlia Shaewitz MA Steven Garfinkel PhD Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries Journal of Patient Experience |
| title | Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries |
| title_full | Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries |
| title_fullStr | Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries |
| title_full_unstemmed | Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries |
| title_short | Identifying and Understanding the Health Information Experiences and Preferences of Individuals With TBI, SCI, and Burn Injuries |
| title_sort | identifying and understanding the health information experiences and preferences of individuals with tbi sci and burn injuries |
| url | https://doi.org/10.1177/2374373516667007 |
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