The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?

Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience...

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Main Authors: Wei Ling Chin, Tiina Jaaniste, Susan Trethewie
Format: Article
Language:English
Published: MDPI AG 2018-07-01
Series:Children
Subjects:
Online Access:http://www.mdpi.com/2227-9067/5/7/97
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author Wei Ling Chin
Tiina Jaaniste
Susan Trethewie
author_facet Wei Ling Chin
Tiina Jaaniste
Susan Trethewie
author_sort Wei Ling Chin
collection DOAJ
description Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered. Factors contributing to sibling resilience are detailed, including individual, family, and broader external and social factors. Given the limited research with siblings of children with LLC, literature has also been drawn from the siblings of children with serious and/or chronic medical conditions. Implications for clinical practice and future research are considered. Pediatric palliative care services may be well placed to contribute to this body of research as they have commonly extended relationships with the families of children with LLC, which span across the child’s disease trajectory.
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spelling doaj.art-052a7208c5c646378c37152257481d7f2022-12-21T18:57:07ZengMDPI AGChildren2227-90672018-07-01579710.3390/children5070097children5070097The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?Wei Ling Chin0Tiina Jaaniste1Susan Trethewie2Department of Palliative Care, Sydney Children’s Hospital, Randwick, NSW 2031, AustraliaDepartment of Palliative Care, Sydney Children’s Hospital, Randwick, NSW 2031, AustraliaDepartment of Palliative Care, Sydney Children’s Hospital, Randwick, NSW 2031, AustraliaSiblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered. Factors contributing to sibling resilience are detailed, including individual, family, and broader external and social factors. Given the limited research with siblings of children with LLC, literature has also been drawn from the siblings of children with serious and/or chronic medical conditions. Implications for clinical practice and future research are considered. Pediatric palliative care services may be well placed to contribute to this body of research as they have commonly extended relationships with the families of children with LLC, which span across the child’s disease trajectory.http://www.mdpi.com/2227-9067/5/7/97resiliencesiblinglife-limiting conditionpalliative carefunctioning
spellingShingle Wei Ling Chin
Tiina Jaaniste
Susan Trethewie
The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
Children
resilience
sibling
life-limiting condition
palliative care
functioning
title The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
title_full The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
title_fullStr The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
title_full_unstemmed The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
title_short The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?
title_sort role of resilience in the sibling experience of pediatric palliative care what is the theory and evidence
topic resilience
sibling
life-limiting condition
palliative care
functioning
url http://www.mdpi.com/2227-9067/5/7/97
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