Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study
Abstract Aim The purpose of this study was to understand the caregiving experiences of breast cancer family caregivers and explore the profound impacts of those experiences on their quality of life. Design A qualitative research method was used. Methods We extended invitations to 23 family caregiver...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2024-03-01
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| Series: | Nursing Open |
| Subjects: | |
| Online Access: | https://doi.org/10.1002/nop2.2139 |
| _version_ | 1797235298260746240 |
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| author | Chaoyue Gao Min Li Linfang Guo Haoran Duan Peili Zhang Yongxia Ding |
| author_facet | Chaoyue Gao Min Li Linfang Guo Haoran Duan Peili Zhang Yongxia Ding |
| author_sort | Chaoyue Gao |
| collection | DOAJ |
| description | Abstract Aim The purpose of this study was to understand the caregiving experiences of breast cancer family caregivers and explore the profound impacts of those experiences on their quality of life. Design A qualitative research method was used. Methods We extended invitations to 23 family caregivers of outpatients and inpatients receiving breast surgery and oncology treatments in Taiyuan, China, to participate in semi‐structured interviews. The interviews were audio‐recorded and transcribed verbatim. Thematic analysis was employed to analyse the interview data. Results Four themes and associated categories were identified: (1) changes in family dynamics, (2) the socio‐medical context, (3) interactions between family and society, (4) self‐efficacy and nine subthemes and their related categories, where virtually all participants expressed future uncertainty, emotional contagion, and personal challenges, and self‐efficacy had a moderating influence on the first three themes. Patient or Public Contribution This study did not involve direct participation of patients or the public. However, their experiences and perspectives on caregiving were indirectly reflected through the insights provided by the family caregivers who participated in the interviews. Their valuable input contributed to a deeper understanding of the caregiving experience and its impact on the quality of life for Chinese breast cancer family caregivers. |
| first_indexed | 2024-04-24T16:45:44Z |
| format | Article |
| id | doaj.art-0562263c834e40b0bdd371e181ee7094 |
| institution | Directory Open Access Journal |
| issn | 2054-1058 |
| language | English |
| last_indexed | 2024-04-24T16:45:44Z |
| publishDate | 2024-03-01 |
| publisher | Wiley |
| record_format | Article |
| series | Nursing Open |
| spelling | doaj.art-0562263c834e40b0bdd371e181ee70942024-03-29T07:12:29ZengWileyNursing Open2054-10582024-03-01113n/an/a10.1002/nop2.2139Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative studyChaoyue Gao0Min Li1Linfang Guo2Haoran Duan3Peili Zhang4Yongxia Ding5School of nursing Shanxi Medical University Taiyuan ChinaSchool of nursing Shanxi Medical University Taiyuan ChinaSchool of nursing Shanxi Medical University Taiyuan ChinaThe Second Affiliated Hospital Zhejiang University School of Medicine Hangzhou ChinaFirst Hospital of Shanxi Medical university Taiyuan ChinaSchool of nursing Shanxi Medical University Taiyuan ChinaAbstract Aim The purpose of this study was to understand the caregiving experiences of breast cancer family caregivers and explore the profound impacts of those experiences on their quality of life. Design A qualitative research method was used. Methods We extended invitations to 23 family caregivers of outpatients and inpatients receiving breast surgery and oncology treatments in Taiyuan, China, to participate in semi‐structured interviews. The interviews were audio‐recorded and transcribed verbatim. Thematic analysis was employed to analyse the interview data. Results Four themes and associated categories were identified: (1) changes in family dynamics, (2) the socio‐medical context, (3) interactions between family and society, (4) self‐efficacy and nine subthemes and their related categories, where virtually all participants expressed future uncertainty, emotional contagion, and personal challenges, and self‐efficacy had a moderating influence on the first three themes. Patient or Public Contribution This study did not involve direct participation of patients or the public. However, their experiences and perspectives on caregiving were indirectly reflected through the insights provided by the family caregivers who participated in the interviews. Their valuable input contributed to a deeper understanding of the caregiving experience and its impact on the quality of life for Chinese breast cancer family caregivers.https://doi.org/10.1002/nop2.2139breast cancercaregiving experiencefamily caregiverquality of life |
| spellingShingle | Chaoyue Gao Min Li Linfang Guo Haoran Duan Peili Zhang Yongxia Ding Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study Nursing Open breast cancer caregiving experience family caregiver quality of life |
| title | Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study |
| title_full | Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study |
| title_fullStr | Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study |
| title_full_unstemmed | Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study |
| title_short | Developing a conceptual model for understanding caregiving experience and their impacts on quality of life for Chinese breast cancer family caregivers: A qualitative study |
| title_sort | developing a conceptual model for understanding caregiving experience and their impacts on quality of life for chinese breast cancer family caregivers a qualitative study |
| topic | breast cancer caregiving experience family caregiver quality of life |
| url | https://doi.org/10.1002/nop2.2139 |
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