Stigma of dementia during the COVID-19 pandemic: a scoping review protocol
Introduction Dementia-related stigma reduces the quality of life of people living with dementia and their care partners. However, there is a dearth of literature synthesising knowledge on stigma of dementia during the COVID-19 pandemic. This scoping review protocol outlines a methodology that will b...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2023-08-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/13/8/e076300.full |
| _version_ | 1797729074857115648 |
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| author | Claire Webster Zahra Rahemi Juanita-Dawne R Bacsu Kate Nanson Myrna Norman Raymond J Spiteri |
| author_facet | Claire Webster Zahra Rahemi Juanita-Dawne R Bacsu Kate Nanson Myrna Norman Raymond J Spiteri |
| author_sort | Claire Webster |
| collection | DOAJ |
| description | Introduction Dementia-related stigma reduces the quality of life of people living with dementia and their care partners. However, there is a dearth of literature synthesising knowledge on stigma of dementia during the COVID-19 pandemic. This scoping review protocol outlines a methodology that will be used to understand the impact of stigma on people living with dementia during the pandemic. Addressing dementia-related stigma is critical to promoting timely dementia diagnoses and enhancing the quality of life for people living with dementia and their care partners.Methods and analysis This review will follow the Arksey and O’Malley methodological framework and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews checklist. The review will focus on English-language, peer-reviewed literature published between 13 January 2020 and 30 June 2023. Stigma will be broadly defined according to pre-established components (stereotypes, prejudice and discrimination). We will search six databases including CINAHL, EMBASE, Google Scholar, Medline, PsycINFO and Web of Science. We will also hand-search the reference lists of relevant articles to identify additional manuscripts. Two reviewers will develop the data extraction table, as well as independently conduct the data screening. Any disagreements will be resolved through open discussion between the two researchers, and if necessary, by consulting the full team to achieve consensus. Data synthesis will be conducted using an inductive thematic analysis approach.Ethics and dissemination This review will be the first to explore the impact of dementia-related stigma during the COVID-19 pandemic. An advisory panel including a person living with dementia and a care partner will be consulted to inform our review’s findings and support the data dissemination process. The results of this scoping review will be shared and disseminated through publication in a peer-reviewed journal, presentations at academic conferences, a community workshop and webinars with various stakeholders. |
| first_indexed | 2024-03-12T11:23:41Z |
| format | Article |
| id | doaj.art-0576ca1b178246e0ab4d086fb12f7ec4 |
| institution | Directory Open Access Journal |
| issn | 2044-6055 |
| language | English |
| last_indexed | 2024-03-12T11:23:41Z |
| publishDate | 2023-08-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj.art-0576ca1b178246e0ab4d086fb12f7ec42023-09-01T11:25:07ZengBMJ Publishing GroupBMJ Open2044-60552023-08-0113810.1136/bmjopen-2023-076300Stigma of dementia during the COVID-19 pandemic: a scoping review protocolClaire Webster0Zahra Rahemi1Juanita-Dawne R Bacsu2Kate Nanson3Myrna Norman4Raymond J Spiteri5Caregiver Crosswalk Inc, Montreal, Québec, CanadaSchool of Nursing, Clemson University, Clemson, South Carolina, USASchool of Nursing, Thompson Rivers University, Kamloops, British Columbia, CanadaSchool of Nursing, Thompson Rivers University, Kamloops, British Columbia, CanadaEngagement of People with Lived Experience of Dementia (EPLED), Maple Ridge, British Columbia, CanadaDepartment of Computer Science, University of Saskatchewan, Saskatoon, Saskatchewan, CanadaIntroduction Dementia-related stigma reduces the quality of life of people living with dementia and their care partners. However, there is a dearth of literature synthesising knowledge on stigma of dementia during the COVID-19 pandemic. This scoping review protocol outlines a methodology that will be used to understand the impact of stigma on people living with dementia during the pandemic. Addressing dementia-related stigma is critical to promoting timely dementia diagnoses and enhancing the quality of life for people living with dementia and their care partners.Methods and analysis This review will follow the Arksey and O’Malley methodological framework and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews checklist. The review will focus on English-language, peer-reviewed literature published between 13 January 2020 and 30 June 2023. Stigma will be broadly defined according to pre-established components (stereotypes, prejudice and discrimination). We will search six databases including CINAHL, EMBASE, Google Scholar, Medline, PsycINFO and Web of Science. We will also hand-search the reference lists of relevant articles to identify additional manuscripts. Two reviewers will develop the data extraction table, as well as independently conduct the data screening. Any disagreements will be resolved through open discussion between the two researchers, and if necessary, by consulting the full team to achieve consensus. Data synthesis will be conducted using an inductive thematic analysis approach.Ethics and dissemination This review will be the first to explore the impact of dementia-related stigma during the COVID-19 pandemic. An advisory panel including a person living with dementia and a care partner will be consulted to inform our review’s findings and support the data dissemination process. The results of this scoping review will be shared and disseminated through publication in a peer-reviewed journal, presentations at academic conferences, a community workshop and webinars with various stakeholders.https://bmjopen.bmj.com/content/13/8/e076300.full |
| spellingShingle | Claire Webster Zahra Rahemi Juanita-Dawne R Bacsu Kate Nanson Myrna Norman Raymond J Spiteri Stigma of dementia during the COVID-19 pandemic: a scoping review protocol BMJ Open |
| title | Stigma of dementia during the COVID-19 pandemic: a scoping review protocol |
| title_full | Stigma of dementia during the COVID-19 pandemic: a scoping review protocol |
| title_fullStr | Stigma of dementia during the COVID-19 pandemic: a scoping review protocol |
| title_full_unstemmed | Stigma of dementia during the COVID-19 pandemic: a scoping review protocol |
| title_short | Stigma of dementia during the COVID-19 pandemic: a scoping review protocol |
| title_sort | stigma of dementia during the covid 19 pandemic a scoping review protocol |
| url | https://bmjopen.bmj.com/content/13/8/e076300.full |
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