Hereditary renal cancer patient and public involvement group: A collaborative, consensus decision process to develop a communication tool for patient use
Patient and public involvement (PPI) must be more frequently embedded within clinical research to ensure translational outcomes are patient-led and meet patient needs. Active partnerships with patients and public groups are an important opportunity to hear patient voices, understand patient needs, a...
Main Authors: | Ellen Colvin, Stephanie Ng, John Hepworth, Janice Hepworth, Thomas Hartley, Nicola Godfrey, Karen Tricker, Jeanette Rothwell, Glenda Beaman, Emma R. Woodward |
---|---|
Format: | Article |
Language: | English |
Published: |
Cambridge University Press
2023-01-01
|
Series: | Journal of Clinical and Translational Science |
Subjects: | |
Online Access: | https://www.cambridge.org/core/product/identifier/S2059866123000390/type/journal_article |
Similar Items
-
Bilateral fumarate hydratase deficient renal cell carcinoma in a patient with hereditary leiomyomatosis and renal cell cancer syndrome
by: Akihiro Ono, et al.
Published: (2024-03-01) -
Hereditary Leiomyomatosis and Renal Cell Cancer-Recognizing Patterns May Save Lives
by: Catarina Tavares, et al.
Published: (2022-05-01) -
Response to Combination of Pembrolizumab and Axitinib in Hereditary Leyomiomatosis and Renal Cell Cancer (HLRCC)
by: Ibon Gurruchaga Sotés, et al.
Published: (2021-06-01) -
Hereditary Renal Cancer Syndromes
by: Grigory A. Yanus, et al.
Published: (2024-02-01) -
Detection Rate and Spectrum of Pathogenic Variations in a Cohort of 83 Patients with Suspected Hereditary Risk of Kidney Cancer
by: Zangbéwendé Guy Ouedraogo, et al.
Published: (2023-10-01)