Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden
Abstract Background People with profound intellectual and multiple disabilities (PIMD) have combined severe intellectual and physical disability and need extensive health care support. They cannot communicate by spoken language and need around the clock support. The health care for people with PIMD...
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| Format: | Article |
| Language: | English |
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BMC
2022-02-01
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| Series: | BMC Health Services Research |
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| Online Access: | https://doi.org/10.1186/s12913-022-07641-y |
| _version_ | 1819277882113916928 |
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| author | Marie Matérne Marie Holmefur |
| author_facet | Marie Matérne Marie Holmefur |
| author_sort | Marie Matérne |
| collection | DOAJ |
| description | Abstract Background People with profound intellectual and multiple disabilities (PIMD) have combined severe intellectual and physical disability and need extensive health care support. They cannot communicate by spoken language and need around the clock support. The health care for people with PIMD is typically provided by a number of different health care services in collaboration with residential care staff and their managers. The quality of health care for people with PIMD are important due to their limited ability to communicate their needs. The aim of this study was to explore residential care staff and manager’s experiences and views of health care services for adults with PIMD. Methods Thirteen semi-structured interviews with residential care staff (n = 7) and managers (n = 6) were conducted and analysed using qualitative content analysis. Results The informants expressed a variety of experiences, under the theme was Quality of health care is enhanced through residential care staff. The theme was comprised of four subthemes: (1) Individually tailored support promotes quality, (2) Accessibility requires adaptation and prioritization by healthcare providers, (3) Disability competence promotes quality and safety and (4) Complex collaboration conditions between the person with PIMD, residential care staff and disability health care. Conclusions The residential care staff create quality of care in their role as representatives for adults with PIMD. The care situation is complex and requires adequate competence in the disability, the individual’s needs and adaptations to ensure quality of health care. It is also important to build collaboration with other services that are involved in the care of people with PIMD. |
| first_indexed | 2024-12-24T00:03:10Z |
| format | Article |
| id | doaj.art-064bbb6e8c4141228bbbbe8bcbb6b55e |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-12-24T00:03:10Z |
| publishDate | 2022-02-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-064bbb6e8c4141228bbbbe8bcbb6b55e2022-12-21T17:25:04ZengBMCBMC Health Services Research1472-69632022-02-012211910.1186/s12913-022-07641-yResidential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in SwedenMarie Matérne0Marie Holmefur1Faculty of Medicine and Health, University Health Care Research Center, Örebro UniversitySchool of Health Sciences, Faculty of Medicine and Health, Örebro UniversityAbstract Background People with profound intellectual and multiple disabilities (PIMD) have combined severe intellectual and physical disability and need extensive health care support. They cannot communicate by spoken language and need around the clock support. The health care for people with PIMD is typically provided by a number of different health care services in collaboration with residential care staff and their managers. The quality of health care for people with PIMD are important due to their limited ability to communicate their needs. The aim of this study was to explore residential care staff and manager’s experiences and views of health care services for adults with PIMD. Methods Thirteen semi-structured interviews with residential care staff (n = 7) and managers (n = 6) were conducted and analysed using qualitative content analysis. Results The informants expressed a variety of experiences, under the theme was Quality of health care is enhanced through residential care staff. The theme was comprised of four subthemes: (1) Individually tailored support promotes quality, (2) Accessibility requires adaptation and prioritization by healthcare providers, (3) Disability competence promotes quality and safety and (4) Complex collaboration conditions between the person with PIMD, residential care staff and disability health care. Conclusions The residential care staff create quality of care in their role as representatives for adults with PIMD. The care situation is complex and requires adequate competence in the disability, the individual’s needs and adaptations to ensure quality of health care. It is also important to build collaboration with other services that are involved in the care of people with PIMD.https://doi.org/10.1186/s12913-022-07641-yHealth careContent analysisProfound intellectual and multiple disabilities (PIMD)Social careQuality of care |
| spellingShingle | Marie Matérne Marie Holmefur Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden BMC Health Services Research Health care Content analysis Profound intellectual and multiple disabilities (PIMD) Social care Quality of care |
| title | Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden |
| title_full | Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden |
| title_fullStr | Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden |
| title_full_unstemmed | Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden |
| title_short | Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden |
| title_sort | residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in sweden |
| topic | Health care Content analysis Profound intellectual and multiple disabilities (PIMD) Social care Quality of care |
| url | https://doi.org/10.1186/s12913-022-07641-y |
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