A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born preterm

Early intervention programs involving both the parent and the infant born preterm have demonstrated positive effects on developmental outcomes for the children. However, studies have also shown that parental engagement and adherence when implementing intervention programs can be challenging. The aim...

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Main Authors: Gunn Kristin Øberg, Marit Sørvoll, Cathrine Labori, Gay L. Girolami, Ragnhild B. Håkstad
Format: Article
Language:English
Published: Frontiers Media S.A. 2023-07-01
Series:Frontiers in Psychology
Subjects:
Online Access:https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1172578/full
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author Gunn Kristin Øberg
Gunn Kristin Øberg
Marit Sørvoll
Cathrine Labori
Gay L. Girolami
Ragnhild B. Håkstad
author_facet Gunn Kristin Øberg
Gunn Kristin Øberg
Marit Sørvoll
Cathrine Labori
Gay L. Girolami
Ragnhild B. Håkstad
author_sort Gunn Kristin Øberg
collection DOAJ
description Early intervention programs involving both the parent and the infant born preterm have demonstrated positive effects on developmental outcomes for the children. However, studies have also shown that parental engagement and adherence when implementing intervention programs can be challenging. The aim of this review was to provide a comprehensive description and new insights into key messages gleaned from the parent reports on participating in early intervention with their infant born preterm; knowledge vital to facilitate implementation of early interventions into clinical practice when using a model of direct parent involvement. Early intervention is broadly defined as a multi-interdisciplinary field provided to children from birth to five years of age to foster child health, wellbeing, development, adapting parenting and family function. For this systematic synthesis we define early intervention as programs with specific activities completed with the infant during the first year after birth. We assembled qualitative interview studies on parents’ experiences with participation in early intervention and applied Malterud’s qualitative systematic meta-synthesis to synthesize and translate the original findings across studies. In the analysis we applied enactive concepts of embodiment, autonomy, participatory sensemaking, and agency. 10 qualitative studies were identified and included. The systematic synthesis reveals how parents’ successful and meaningful participation in early intervention programs were facilitated by their “active embodied doing.” The “embodied doing” appeared as the basis for the parents’ sense-making processes, development of confidence, and the ability for parents to see new possibilities for actions within themselves, with and in the child. In that respect, a perception of mutuality in the interaction between parent, infant and interventionist was central. Consequently, an important consideration when implementing early intervention into clinical practice is to promote embodied parent–infant interactions as well as trust between the parent and the interventionist.
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spelling doaj.art-067c270565ea42719b365a086975d61f2023-07-13T22:10:16ZengFrontiers Media S.A.Frontiers in Psychology1664-10782023-07-011410.3389/fpsyg.2023.11725781172578A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born pretermGunn Kristin Øberg0Gunn Kristin Øberg1Marit Sørvoll2Cathrine Labori3Gay L. Girolami4Ragnhild B. Håkstad5Department of Health and Care Sciences, Faculty of Health Sciences, UiT the Arctic University of Norway, Tromsø, NorwayDepartment of Clinical Therapeutic Services, University Hospital North Norway, Tromsø, NorwayDepartment of Health and Care Sciences, Faculty of Health Sciences, UiT the Arctic University of Norway, Tromsø, NorwayDepartment of Clinical Therapeutic Services, University Hospital North Norway, Tromsø, NorwayDepartment of Physical Therapy, College of Applied Health Sciences, University of Illinois at Chicago, Chicago, IL, United StatesDepartment of Health and Care Sciences, Faculty of Health Sciences, UiT the Arctic University of Norway, Tromsø, NorwayEarly intervention programs involving both the parent and the infant born preterm have demonstrated positive effects on developmental outcomes for the children. However, studies have also shown that parental engagement and adherence when implementing intervention programs can be challenging. The aim of this review was to provide a comprehensive description and new insights into key messages gleaned from the parent reports on participating in early intervention with their infant born preterm; knowledge vital to facilitate implementation of early interventions into clinical practice when using a model of direct parent involvement. Early intervention is broadly defined as a multi-interdisciplinary field provided to children from birth to five years of age to foster child health, wellbeing, development, adapting parenting and family function. For this systematic synthesis we define early intervention as programs with specific activities completed with the infant during the first year after birth. We assembled qualitative interview studies on parents’ experiences with participation in early intervention and applied Malterud’s qualitative systematic meta-synthesis to synthesize and translate the original findings across studies. In the analysis we applied enactive concepts of embodiment, autonomy, participatory sensemaking, and agency. 10 qualitative studies were identified and included. The systematic synthesis reveals how parents’ successful and meaningful participation in early intervention programs were facilitated by their “active embodied doing.” The “embodied doing” appeared as the basis for the parents’ sense-making processes, development of confidence, and the ability for parents to see new possibilities for actions within themselves, with and in the child. In that respect, a perception of mutuality in the interaction between parent, infant and interventionist was central. Consequently, an important consideration when implementing early intervention into clinical practice is to promote embodied parent–infant interactions as well as trust between the parent and the interventionist.https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1172578/fullearly interventionparental involvementinfants born preterminteractionembodiment
spellingShingle Gunn Kristin Øberg
Gunn Kristin Øberg
Marit Sørvoll
Cathrine Labori
Gay L. Girolami
Ragnhild B. Håkstad
A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born preterm
Frontiers in Psychology
early intervention
parental involvement
infants born preterm
interaction
embodiment
title A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born preterm
title_full A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born preterm
title_fullStr A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born preterm
title_full_unstemmed A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born preterm
title_short A systematic synthesis of qualitative studies on parents’ experiences of participating in early intervention programs with their infant born preterm
title_sort systematic synthesis of qualitative studies on parents experiences of participating in early intervention programs with their infant born preterm
topic early intervention
parental involvement
infants born preterm
interaction
embodiment
url https://www.frontiersin.org/articles/10.3389/fpsyg.2023.1172578/full
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