Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy
Background:For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support...
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| Format: | Article |
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Frontiers Media S.A.
2022-05-01
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| Series: | Frontiers in Public Health |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fpubh.2022.842462/full |
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| author | Marieke van der Gaag Monique Heijmans Marta Ballester Marta Ballester Marta Ballester Carola Orrego Carola Orrego Carola Orrego Ena Niño de Guzmán Ena Niño de Guzmán Lyudmil Ninov Jany Rademakers Jany Rademakers |
| author_facet | Marieke van der Gaag Monique Heijmans Marta Ballester Marta Ballester Marta Ballester Carola Orrego Carola Orrego Carola Orrego Ena Niño de Guzmán Ena Niño de Guzmán Lyudmil Ninov Jany Rademakers Jany Rademakers |
| author_sort | Marieke van der Gaag |
| collection | DOAJ |
| description | Background:For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support is most effective when tailored to the needs and preferences of patients. Therefore, this study explores the preferences regarding self-management outcomes of chronically ill patients with limited health literacy.MethodsA total of 35 patients with limited health literacy were invited to a concept-mapping procedure consisting of two card sorting tasks. Patients ranked 60 outcomes, which are often found in literature in relation to self-management, to the level that was important for themselves. Means were calculated for each outcome and domain, and differences within the group were analyzed.ResultsFor patients with limited health literacy, satisfaction with care is the most important outcome domain. This domain includes overall satisfaction, the communication with health care providers, the provision of information and trust. At an outcome level, outcomes related to symptom management and improving competences to self-management scored very high. No differences between patient groups for age and sex were found.ConclusionChronically ill patients with limited health literacy prefer a wide variety of outcomes for their self-management. Next to health related outcomes, patients mostly prefer to work on their competences for self-management. For health care professionals, acting on these patient preferences and building a solid relationship will enhance successful self-management. |
| first_indexed | 2024-04-14T00:02:41Z |
| format | Article |
| id | doaj.art-06c03342ef4f418681fb06fd2aaf4a90 |
| institution | Directory Open Access Journal |
| issn | 2296-2565 |
| language | English |
| last_indexed | 2024-04-14T00:02:41Z |
| publishDate | 2022-05-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Public Health |
| spelling | doaj.art-06c03342ef4f418681fb06fd2aaf4a902022-12-22T02:23:39ZengFrontiers Media S.A.Frontiers in Public Health2296-25652022-05-011010.3389/fpubh.2022.842462842462Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health LiteracyMarieke van der Gaag0Monique Heijmans1Marta Ballester2Marta Ballester3Marta Ballester4Carola Orrego5Carola Orrego6Carola Orrego7Ena Niño de Guzmán8Ena Niño de Guzmán9Lyudmil Ninov10Jany Rademakers11Jany Rademakers12Netherlands Institute for Health Services Research, Utrecht, NetherlandsNetherlands Institute for Health Services Research, Utrecht, NetherlandsRed de investigación en servicios de salud en enfermedades crónicas, Madrid, SpainAvedis Donabedian Research Institute (FAD), Barcelona, SpainUniversitat Autònoma de Barcelona, Barcelona, SpainRed de investigación en servicios de salud en enfermedades crónicas, Madrid, SpainAvedis Donabedian Research Institute (FAD), Barcelona, SpainUniversitat Autònoma de Barcelona, Barcelona, SpainDepartment of Clinical Epidemiology and Public Health, Sant Pau Institute for Biomedical Research, Barcelona, SpainIbero-American Cochrane Center (CCIb), Barcelona, SpainEuropean Patients Forum, Brussels, BelgiumNetherlands Institute for Health Services Research, Utrecht, NetherlandsDepartment of Family Medicine, Care and Public Health Research Institute, Maastricht University, Maastricht, NetherlandsBackground:For many chronically ill patients self-management of their disease is difficult. This may be especially true for people with limited health literacy as they are faced with additional challenges in the day-to-day management of their disease. Research has shown that self-management support is most effective when tailored to the needs and preferences of patients. Therefore, this study explores the preferences regarding self-management outcomes of chronically ill patients with limited health literacy.MethodsA total of 35 patients with limited health literacy were invited to a concept-mapping procedure consisting of two card sorting tasks. Patients ranked 60 outcomes, which are often found in literature in relation to self-management, to the level that was important for themselves. Means were calculated for each outcome and domain, and differences within the group were analyzed.ResultsFor patients with limited health literacy, satisfaction with care is the most important outcome domain. This domain includes overall satisfaction, the communication with health care providers, the provision of information and trust. At an outcome level, outcomes related to symptom management and improving competences to self-management scored very high. No differences between patient groups for age and sex were found.ConclusionChronically ill patients with limited health literacy prefer a wide variety of outcomes for their self-management. Next to health related outcomes, patients mostly prefer to work on their competences for self-management. For health care professionals, acting on these patient preferences and building a solid relationship will enhance successful self-management.https://www.frontiersin.org/articles/10.3389/fpubh.2022.842462/fullhealth literacychronic diseaseself-managementpatient preferenceconcept mapping |
| spellingShingle | Marieke van der Gaag Monique Heijmans Marta Ballester Marta Ballester Marta Ballester Carola Orrego Carola Orrego Carola Orrego Ena Niño de Guzmán Ena Niño de Guzmán Lyudmil Ninov Jany Rademakers Jany Rademakers Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy Frontiers in Public Health health literacy chronic disease self-management patient preference concept mapping |
| title | Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy |
| title_full | Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy |
| title_fullStr | Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy |
| title_full_unstemmed | Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy |
| title_short | Preferences Regarding Self-Management Intervention Outcomes of Dutch Chronically Ill Patients With Limited Health Literacy |
| title_sort | preferences regarding self management intervention outcomes of dutch chronically ill patients with limited health literacy |
| topic | health literacy chronic disease self-management patient preference concept mapping |
| url | https://www.frontiersin.org/articles/10.3389/fpubh.2022.842462/full |
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