Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges

Abstract Aim To identify and summarize the challenges of conducting qualitative research exploring end‐of‐life communication between healthcare providers and bereaved family carers in nursing homes. Design A descriptive qualitative study based on in‐the‐field‐notes and research diaries collected dur...

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Main Authors: Silvia Gonella, Paola Di Giulio, Alvisa Palese, Valerio Dimonte, Sara Campagna
Format: Article
Language:English
Published: Wiley 2021-01-01
Series:Nursing Open
Subjects:
Online Access:https://doi.org/10.1002/nop2.617
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author Silvia Gonella
Paola Di Giulio
Alvisa Palese
Valerio Dimonte
Sara Campagna
author_facet Silvia Gonella
Paola Di Giulio
Alvisa Palese
Valerio Dimonte
Sara Campagna
author_sort Silvia Gonella
collection DOAJ
description Abstract Aim To identify and summarize the challenges of conducting qualitative research exploring end‐of‐life communication between healthcare providers and bereaved family carers in nursing homes. Design A descriptive qualitative study based on in‐the‐field‐notes and research diaries collected during a primary study involving 32 bereaved family carers and 14 nurses across 13 Italian nursing homes in 2018–2019. Methods Two trained female nurses conducted semi‐structured, in‐depth, open‐ended interviews and recorded “in action” (i.e. reflections reported as in‐the‐field‐notes) and “on action” (i.e. retrospective reflections within the team reported immediately in the research diaries) narratives, with the aim of identifying challenges encountered during the research process. A content analysis process was performed to analyse the narratives collected. Results We identified three major categories of challenges: (a) obtaining approval from the ethical committee; (b) approaching nursing homes and family carers; and (c) dealing with participant‐related impairments (i.e. memory, emotional, physical).
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spelling doaj.art-076038f08e264d388b265196849d1fab2022-12-21T22:21:18ZengWileyNursing Open2054-10582021-01-018118019010.1002/nop2.617Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challengesSilvia Gonella0Paola Di Giulio1Alvisa Palese2Valerio Dimonte3Sara Campagna4Department of Biomedicine and Prevention University of Roma Tor Vergata Roma ItalyDepartment of Public Health and Pediatrics University of Torino Torino ItalyDepartment of Medical Sciences University of Udine Udine ItalyAzienda Ospedaliero Universitaria Città della Salute e della Scienza di Torino Torino ItalyDepartment of Public Health and Pediatrics University of Torino Torino ItalyAbstract Aim To identify and summarize the challenges of conducting qualitative research exploring end‐of‐life communication between healthcare providers and bereaved family carers in nursing homes. Design A descriptive qualitative study based on in‐the‐field‐notes and research diaries collected during a primary study involving 32 bereaved family carers and 14 nurses across 13 Italian nursing homes in 2018–2019. Methods Two trained female nurses conducted semi‐structured, in‐depth, open‐ended interviews and recorded “in action” (i.e. reflections reported as in‐the‐field‐notes) and “on action” (i.e. retrospective reflections within the team reported immediately in the research diaries) narratives, with the aim of identifying challenges encountered during the research process. A content analysis process was performed to analyse the narratives collected. Results We identified three major categories of challenges: (a) obtaining approval from the ethical committee; (b) approaching nursing homes and family carers; and (c) dealing with participant‐related impairments (i.e. memory, emotional, physical).https://doi.org/10.1002/nop2.617communicationend‐of‐lifefamily carersnursing homequalitative research
spellingShingle Silvia Gonella
Paola Di Giulio
Alvisa Palese
Valerio Dimonte
Sara Campagna
Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
Nursing Open
communication
end‐of‐life
family carers
nursing home
qualitative research
title Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_full Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_fullStr Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_full_unstemmed Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_short Qualitative research on end‐of‐life communication with family carers in nursing homes: A discussion of methodological issues and challenges
title_sort qualitative research on end of life communication with family carers in nursing homes a discussion of methodological issues and challenges
topic communication
end‐of‐life
family carers
nursing home
qualitative research
url https://doi.org/10.1002/nop2.617
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