Burden and Parental Satisfaction in Informal Caregivers of People with Angelman Syndrome: A Mix-method Study

Burden and Parental Satisfaction in Informal Caregivers of People with Angelman Syndrome: A Mix-method Study

Background: Studies focusing on the burden of parents informally caring for offspring with chronic illnesses such as Angelman Syndrome are rare, despite the challenging task of parenting a person with such a disabling illness. The present article seeks to study the experience of being a parent and,...

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Bibliographic Details
Main Authors: Teresa Ferreira, Rute Brites, Tânia Brandão, Odete Nunes, João Hipólito
Format: Article
Language:English
Published: University of Messina 2022-08-01
Series:Mediterranean Journal of Clinical Psychology
Subjects:
angelman syndrome
informal caregiver
burden
parental satisfaction
autonomy.
Online Access:https://cab.unime.it/journals/index.php/MJCP/article/view/3439

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