Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma
Plain English summary The goal of comparative clinical effectiveness research is to compare healthcare options and learn which work best for patients depending on their preferences and circumstances. Research efforts can be more effective when researchers engage stakeholders, such as patients, healt...
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| Format: | Article |
| Language: | English |
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BMC
2022-11-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-022-00399-x |
| _version_ | 1828183188483080192 |
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| author | Tiffany Dy Winifred J. Hamilton C. Bradley Kramer Andrea Apter Jerry A. Krishnan James W. Stout Stephen J. Teach Alex Federman John Elder Tyra Bryant-Stephens Rebecca J. Bruhl Shawni Jackson Kaharu Sumino |
| author_facet | Tiffany Dy Winifred J. Hamilton C. Bradley Kramer Andrea Apter Jerry A. Krishnan James W. Stout Stephen J. Teach Alex Federman John Elder Tyra Bryant-Stephens Rebecca J. Bruhl Shawni Jackson Kaharu Sumino |
| author_sort | Tiffany Dy |
| collection | DOAJ |
| description | Plain English summary The goal of comparative clinical effectiveness research is to compare healthcare options and learn which work best for patients depending on their preferences and circumstances. Research efforts can be more effective when researchers engage stakeholders, such as patients, healthcare providers, and other members of the community—especially those communities or groups targeted by the planned research. Stakeholders can give their input throughout the research process to make sure the study will address questions and concerns that are most important and useful for participants. In 2014, the PCORI funded eight research studies that evaluated various ways to help African Americans and Hispanics/Latinos with poorly controlled asthma. These groups are underrepresented in asthma research but have higher rates of and more severe asthma for reasons that are poorly understood. The goal of this report is to show how stakeholders—including patients with asthma from these underrepresented groups, healthcare providers who care for patients with asthma, key representatives from the communities and others—participated as full partners in the eight studies and helped to improve the overall quality of the research and the relationship between the researchers and the community. |
| first_indexed | 2024-04-12T06:28:45Z |
| format | Article |
| id | doaj.art-078bf61bee244673802bd26529fb23a5 |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-04-12T06:28:45Z |
| publishDate | 2022-11-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-078bf61bee244673802bd26529fb23a52022-12-22T03:44:03ZengBMCResearch Involvement and Engagement2056-75292022-11-018111610.1186/s40900-022-00399-xStakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthmaTiffany Dy0Winifred J. Hamilton1C. Bradley Kramer2Andrea Apter3Jerry A. Krishnan4James W. Stout5Stephen J. Teach6Alex Federman7John Elder8Tyra Bryant-Stephens9Rebecca J. Bruhl10Shawni Jackson11Kaharu Sumino12Division of Allergy and Immunology, Department of Internal Medicine, Washington University School of Medicine in St. LouisEnvironmental Health Service, Department of Family and Community Medicine, Baylor College of MedicinePublic Health - Seattle & King CountyDivision of Pulmonary, Allergy, and Critical Care Medicine, Department of Medicine, Perelman School of Medicine, University of PennsylvaniaDivision of Pulmonary, Critical Care, Sleep, and Allergy, Department of Medicine, University of Illinois Chicago and Population Health Sciences Program, University of Illinois Hospital and Health Sciences SystemDepartment of Pediatrics and Health Services, University of WashingtonDivision of Emergency Medicine and the Department of Pediatrics, Children’s National HospitalDivision of General Internal Medicine, Icahn School of Medicine at Mount SinaiInstitute for Behavioral and Community Health, School of Public Health, San Diego State UniversityDivision of Pulmonary, Allergy, and Critical Care Medicine, Department of Medicine, Perelman School of Medicine, University of PennsylvaniaEnvironmental Health Service, Department of Family and Community Medicine, Baylor College of MedicineDivision of General Medical Sciences, Department of Medicine, Washington University School of Medicine in St. LouisDivision of Pulmonary and Critical Care, Department of Internal Medicine, Washington University School of Medicine in St. LouisPlain English summary The goal of comparative clinical effectiveness research is to compare healthcare options and learn which work best for patients depending on their preferences and circumstances. Research efforts can be more effective when researchers engage stakeholders, such as patients, healthcare providers, and other members of the community—especially those communities or groups targeted by the planned research. Stakeholders can give their input throughout the research process to make sure the study will address questions and concerns that are most important and useful for participants. In 2014, the PCORI funded eight research studies that evaluated various ways to help African Americans and Hispanics/Latinos with poorly controlled asthma. These groups are underrepresented in asthma research but have higher rates of and more severe asthma for reasons that are poorly understood. The goal of this report is to show how stakeholders—including patients with asthma from these underrepresented groups, healthcare providers who care for patients with asthma, key representatives from the communities and others—participated as full partners in the eight studies and helped to improve the overall quality of the research and the relationship between the researchers and the community.https://doi.org/10.1186/s40900-022-00399-xAsthma researchStakeholder engagementComparative effectiveness researchPatient-oriented research |
| spellingShingle | Tiffany Dy Winifred J. Hamilton C. Bradley Kramer Andrea Apter Jerry A. Krishnan James W. Stout Stephen J. Teach Alex Federman John Elder Tyra Bryant-Stephens Rebecca J. Bruhl Shawni Jackson Kaharu Sumino Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma Research Involvement and Engagement Asthma research Stakeholder engagement Comparative effectiveness research Patient-oriented research |
| title | Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma |
| title_full | Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma |
| title_fullStr | Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma |
| title_full_unstemmed | Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma |
| title_short | Stakeholder engagement in eight comparative effectiveness trials in African Americans and Latinos with asthma |
| title_sort | stakeholder engagement in eight comparative effectiveness trials in african americans and latinos with asthma |
| topic | Asthma research Stakeholder engagement Comparative effectiveness research Patient-oriented research |
| url | https://doi.org/10.1186/s40900-022-00399-x |
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