How compassionate communities are implemented and evaluated in practice: a scoping review
Abstract Background Compassionate communities are rooted in a health promotion approach to palliative care, aiming to support solidarity among community members at the end of life. Hundreds of compassionate communities have been developed internationally in recent years. However, it remains unknown...
| Main Authors: | , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2022-07-01
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| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12904-022-01021-3 |
| _version_ | 1811287159040114688 |
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| author | Katia Dumont Isabelle Marcoux Émilie Warren Farah Alem Bea Alvar Gwenvaël Ballu Anitra Bostock S. Robin Cohen Serge Daneault Véronique Dubé Janie Houle Asma Minyaoui Ghislaine Rouly Dale Weil Allan Kellehear Antoine Boivin |
| author_facet | Katia Dumont Isabelle Marcoux Émilie Warren Farah Alem Bea Alvar Gwenvaël Ballu Anitra Bostock S. Robin Cohen Serge Daneault Véronique Dubé Janie Houle Asma Minyaoui Ghislaine Rouly Dale Weil Allan Kellehear Antoine Boivin |
| author_sort | Katia Dumont |
| collection | DOAJ |
| description | Abstract Background Compassionate communities are rooted in a health promotion approach to palliative care, aiming to support solidarity among community members at the end of life. Hundreds of compassionate communities have been developed internationally in recent years. However, it remains unknown how their implementation on the ground aligns with core strategies of health promotion. The aim of this review is to describe the practical implementation and evaluation of compassionate communities. Methods We undertook a scoping review of the empirical peer-reviewed literature on compassionate communities. Bibliographic searches in five databases were developed with information specialists. We included studies in English describing health promotion activities applied to end-of-life and palliative care. Qualitative analysis used inductive and deductive strategies based on existing frameworks for categorization of health promotion activities, barriers and facilitators for implementation and evaluation measures. A participatory research approach with community partners was used to design the review and interpret its findings. Results Sixty-three articles were included for analysis. 74.6% were published after 2011. Health services organizations and providers are most often engaged as compassionate community leaders, with community members mainly engaged as target users. Adaptation to local culture and social context is the most frequently reported barrier for implementation, with support and external factors mostly reported as facilitators. Early stages of compassionate community development are rarely reported in the literature (stakeholder mobilization, needs assessment, priority-setting). Health promotion strategies tend to focus on the development of personal skills, mainly through the use of education and awareness programs. Few activities focused on strengthening community action and building healthy public policies. Evaluation was reported in 30% of articles, 88% of evaluation being analyzed at the individual level, as opposed to community processes and outcomes. Conclusions The empirical literature on compassionate communities demonstrates a wide variety of health promotion practices. Much international experience has been developed in education and awareness programs on death and dying. Health promotion strategies based on community strengthening and policies need to be consolidated. Future research should pay attention to community-led initiatives and evaluations that may not be currently reported in the peer-review literature. |
| first_indexed | 2024-04-13T03:12:42Z |
| format | Article |
| id | doaj.art-0839b22712d541d4b50436e403014eb1 |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-04-13T03:12:42Z |
| publishDate | 2022-07-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-0839b22712d541d4b50436e403014eb12022-12-22T03:04:59ZengBMCBMC Palliative Care1472-684X2022-07-0121111310.1186/s12904-022-01021-3How compassionate communities are implemented and evaluated in practice: a scoping reviewKatia Dumont0Isabelle Marcoux1Émilie Warren2Farah Alem3Bea Alvar4Gwenvaël Ballu5Anitra Bostock6S. Robin Cohen7Serge Daneault8Véronique Dubé9Janie Houle10Asma Minyaoui11Ghislaine Rouly12Dale Weil13Allan Kellehear14Antoine Boivin15Canada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Faculty of Health Sciences, University of OttawaCanada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Canada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Canada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Canada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Montreal Palliative Care InstituteDepartments of Oncology and Medicine, Faculty of Medicine and Health Sciences, McGill UniversityDepartment of Family Medicine and Emergency Medicine, Faculty of Medicine, Université de MontréalMarguerite d’Youville Research Chair On Humanistic Nursing Interventions, Faculty of Nursing, Centre-Ville Station, Université de MontréalDepartment of Psychology, Université du Québec À MontréalCanada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Canada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Montreal Palliative Care InstituteCollege of Nursing and Health Sciences, University of VermontCanada Research Chair in Partnership With Patients and Communities, University of Montreal Hospital Research Center (CRCHUM)Abstract Background Compassionate communities are rooted in a health promotion approach to palliative care, aiming to support solidarity among community members at the end of life. Hundreds of compassionate communities have been developed internationally in recent years. However, it remains unknown how their implementation on the ground aligns with core strategies of health promotion. The aim of this review is to describe the practical implementation and evaluation of compassionate communities. Methods We undertook a scoping review of the empirical peer-reviewed literature on compassionate communities. Bibliographic searches in five databases were developed with information specialists. We included studies in English describing health promotion activities applied to end-of-life and palliative care. Qualitative analysis used inductive and deductive strategies based on existing frameworks for categorization of health promotion activities, barriers and facilitators for implementation and evaluation measures. A participatory research approach with community partners was used to design the review and interpret its findings. Results Sixty-three articles were included for analysis. 74.6% were published after 2011. Health services organizations and providers are most often engaged as compassionate community leaders, with community members mainly engaged as target users. Adaptation to local culture and social context is the most frequently reported barrier for implementation, with support and external factors mostly reported as facilitators. Early stages of compassionate community development are rarely reported in the literature (stakeholder mobilization, needs assessment, priority-setting). Health promotion strategies tend to focus on the development of personal skills, mainly through the use of education and awareness programs. Few activities focused on strengthening community action and building healthy public policies. Evaluation was reported in 30% of articles, 88% of evaluation being analyzed at the individual level, as opposed to community processes and outcomes. Conclusions The empirical literature on compassionate communities demonstrates a wide variety of health promotion practices. Much international experience has been developed in education and awareness programs on death and dying. Health promotion strategies based on community strengthening and policies need to be consolidated. Future research should pay attention to community-led initiatives and evaluations that may not be currently reported in the peer-review literature.https://doi.org/10.1186/s12904-022-01021-3Compassionate communitiesImplementationEvaluationPalliative careEnd of lifeHealth promotion |
| spellingShingle | Katia Dumont Isabelle Marcoux Émilie Warren Farah Alem Bea Alvar Gwenvaël Ballu Anitra Bostock S. Robin Cohen Serge Daneault Véronique Dubé Janie Houle Asma Minyaoui Ghislaine Rouly Dale Weil Allan Kellehear Antoine Boivin How compassionate communities are implemented and evaluated in practice: a scoping review BMC Palliative Care Compassionate communities Implementation Evaluation Palliative care End of life Health promotion |
| title | How compassionate communities are implemented and evaluated in practice: a scoping review |
| title_full | How compassionate communities are implemented and evaluated in practice: a scoping review |
| title_fullStr | How compassionate communities are implemented and evaluated in practice: a scoping review |
| title_full_unstemmed | How compassionate communities are implemented and evaluated in practice: a scoping review |
| title_short | How compassionate communities are implemented and evaluated in practice: a scoping review |
| title_sort | how compassionate communities are implemented and evaluated in practice a scoping review |
| topic | Compassionate communities Implementation Evaluation Palliative care End of life Health promotion |
| url | https://doi.org/10.1186/s12904-022-01021-3 |
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