Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus Statement
Background: Despite evidence-based national guidelines for ADHD in the United Kingdom (UK), ADHD is under-identified, under-diagnosed, and under-treated. Many seeking help for ADHD face prejudice, long waiting lists, and patchy or unavailable services, and are turning to service-user support groups...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2021-03-01
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| Series: | Frontiers in Psychiatry |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fpsyt.2021.649399/full |
| _version_ | 1818619765791391744 |
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| author | Susan Young Susan Young Susan Young Philip Asherson Philip Asherson Tony Lloyd Michael Absoud Michael Absoud Michael Absoud Muhammad Arif William Andrew Colley William Andrew Colley Samuele Cortese Samuele Cortese Samuele Cortese Samuele Cortese Sally Cubbin Nancy Doyle Nancy Doyle Susan Dunn Morua Susan Dunn Morua Philip Ferreira-Lay Gisli Gudjonsson Gisli Gudjonsson Valerie Ivens Christine Jarvis Alexandra Lewis Peter Mason Peter Mason Peter Mason Tamsin Newlove-Delgado Mark Pitts Helen Read Kobus van Rensburg Bozhena Zoritch Bozhena Zoritch Caroline Skirrow Caroline Skirrow |
| author_facet | Susan Young Susan Young Susan Young Philip Asherson Philip Asherson Tony Lloyd Michael Absoud Michael Absoud Michael Absoud Muhammad Arif William Andrew Colley William Andrew Colley Samuele Cortese Samuele Cortese Samuele Cortese Samuele Cortese Sally Cubbin Nancy Doyle Nancy Doyle Susan Dunn Morua Susan Dunn Morua Philip Ferreira-Lay Gisli Gudjonsson Gisli Gudjonsson Valerie Ivens Christine Jarvis Alexandra Lewis Peter Mason Peter Mason Peter Mason Tamsin Newlove-Delgado Mark Pitts Helen Read Kobus van Rensburg Bozhena Zoritch Bozhena Zoritch Caroline Skirrow Caroline Skirrow |
| author_sort | Susan Young |
| collection | DOAJ |
| description | Background: Despite evidence-based national guidelines for ADHD in the United Kingdom (UK), ADHD is under-identified, under-diagnosed, and under-treated. Many seeking help for ADHD face prejudice, long waiting lists, and patchy or unavailable services, and are turning to service-user support groups and/or private healthcare for help.Methods: A group of UK experts representing clinical and healthcare providers from public and private healthcare, academia, ADHD patient groups, educational, and occupational specialists, met to discuss shortfalls in ADHD service provision in the UK. Discussions explored causes of under-diagnosis, examined biases operating across referral, diagnosis and treatment, together with recommendations for resolving these matters.Results: Cultural and structural barriers operate at all levels of the healthcare system, resulting in a de-prioritization of ADHD. Services for ADHD are insufficient in many regions, and problems with service provision have intensified as a result of the response to the COVID-19 pandemic. Research has established a range of adverse outcomes of untreated ADHD, and associated long-term personal, social, health and economic costs are high. The consensus group called for training of professionals who come into contact with people with ADHD, increased funding, commissioning and monitoring to improve service provision, and streamlined communication between health services to support better outcomes for people with ADHD.Conclusions: Evidence-based national clinical guidelines for ADHD are not being met. People with ADHD should have access to healthcare free from discrimination, and in line with their legal rights. UK Governments and clinical and regulatory bodies must act urgently on this important public health issue. |
| first_indexed | 2024-12-16T17:42:41Z |
| format | Article |
| id | doaj.art-086b7dae3a384b2c810fc5e2bd3abe3c |
| institution | Directory Open Access Journal |
| issn | 1664-0640 |
| language | English |
| last_indexed | 2024-12-16T17:42:41Z |
| publishDate | 2021-03-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Psychiatry |
| spelling | doaj.art-086b7dae3a384b2c810fc5e2bd3abe3c2022-12-21T22:22:33ZengFrontiers Media S.A.Frontiers in Psychiatry1664-06402021-03-011210.3389/fpsyt.2021.649399649399Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus StatementSusan Young0Susan Young1Susan Young2Philip Asherson3Philip Asherson4Tony Lloyd5Michael Absoud6Michael Absoud7Michael Absoud8Muhammad Arif9William Andrew Colley10William Andrew Colley11Samuele Cortese12Samuele Cortese13Samuele Cortese14Samuele Cortese15Sally Cubbin16Nancy Doyle17Nancy Doyle18Susan Dunn Morua19Susan Dunn Morua20Philip Ferreira-Lay21Gisli Gudjonsson22Gisli Gudjonsson23Valerie Ivens24Christine Jarvis25Alexandra Lewis26Peter Mason27Peter Mason28Peter Mason29Tamsin Newlove-Delgado30Mark Pitts31Helen Read32Kobus van Rensburg33Bozhena Zoritch34Bozhena Zoritch35Caroline Skirrow36Caroline Skirrow37Psychology Services Limited, London, United KingdomDepartment of Psychology, Reykjavik University, Reykjavik, IcelandADHD Foundation, Liverpool, United KingdomSocial, Genetic and Developmental Psychiatry Centre, Institute of Psychiatry, Psychology & Neuroscience, Kings College London, London, United KingdomSouth London and Maudsley NHS Foundation Trust, London, United KingdomADHD Foundation, Liverpool, United KingdomDepartment of Children's Neurosciences, Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, United KingdomKing's Health Partners Academic Health Science Centre, London, United KingdomDepartment of Women and Children's Health, School of Life Course Sciences, Faculty of Life Sciences and Medicine, King's College London, London, United KingdomLeicestershire Partnership NHS Trust, Leicester, United Kingdom0CLC Consultancy, Perth, United Kingdom1SWB (Global), Glasgow, United Kingdom2Centre for Innovation in Mental Health, School of Psychology, Faculty of Environmental and Life Sciences & Clinical and Experimental Sciences (CNS and Psychiatry), Faculty of Medicine, University of Southampton, Southampton, United Kingdom3Solent NHS Trust, Southampton, United Kingdom4Division of Psychiatry and Applied Psychology, School of Medicine, University of Nottingham, Nottingham, United Kingdom5Hassenfeld Children's Hospital at NYU Langone, New York University Child Study Center, New York, NY, United States6The ADHD Clinic, Manor Hospital, Oxford, United Kingdom7Genius Within, Plumpton Green, United Kingdom8Department of Organizational Psychology, Birkbeck College, University of London, London, United Kingdom9AADD-United Kingdom, Bristol, United Kingdom0Bristol Adult ADHD Support Group, Bristol, United Kingdom1Surrey and Borders Partnership NHS Foundation Trust, Leatherhead, United KingdomDepartment of Psychology, Reykjavik University, Reykjavik, Iceland2Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, King's College London, London, United Kingdom3ADHD Richmond and Kingston, London, United Kingdom4ADHD Solutions CIC, Leicester, United Kingdom5Cambridge & Peterborough NHS Foundation Trust, Cambridge, United KingdomADHD Foundation, Liverpool, United Kingdom6ADHD and Psychiatry Services Limited, Liverpool, United Kingdom7Cheshire and Wirral Partnership NHS Foundation Trust, Chester, United Kingdom8University of Exeter Medical School, University of Exeter, Exeter, United KingdomSouth London and Maudsley NHS Foundation Trust, London, United Kingdom9ADHD Consultancy Limited, London, United Kingdom0Adult ADHD and Asperger's Team & Children and Young People's ADHD and ASD Service, Northamptonshire Healthcare NHS Foundation Trust, Kettering, United Kingdom1ADDmire Clinic, West Byfleet, United Kingdom2Epsom and St. Helier University Hospital, Epsom, United Kingdom3Cambridge Cognition, Cambridge, United Kingdom4Psychological Sciences, University of Bristol, Bristol, United KingdomBackground: Despite evidence-based national guidelines for ADHD in the United Kingdom (UK), ADHD is under-identified, under-diagnosed, and under-treated. Many seeking help for ADHD face prejudice, long waiting lists, and patchy or unavailable services, and are turning to service-user support groups and/or private healthcare for help.Methods: A group of UK experts representing clinical and healthcare providers from public and private healthcare, academia, ADHD patient groups, educational, and occupational specialists, met to discuss shortfalls in ADHD service provision in the UK. Discussions explored causes of under-diagnosis, examined biases operating across referral, diagnosis and treatment, together with recommendations for resolving these matters.Results: Cultural and structural barriers operate at all levels of the healthcare system, resulting in a de-prioritization of ADHD. Services for ADHD are insufficient in many regions, and problems with service provision have intensified as a result of the response to the COVID-19 pandemic. Research has established a range of adverse outcomes of untreated ADHD, and associated long-term personal, social, health and economic costs are high. The consensus group called for training of professionals who come into contact with people with ADHD, increased funding, commissioning and monitoring to improve service provision, and streamlined communication between health services to support better outcomes for people with ADHD.Conclusions: Evidence-based national clinical guidelines for ADHD are not being met. People with ADHD should have access to healthcare free from discrimination, and in line with their legal rights. UK Governments and clinical and regulatory bodies must act urgently on this important public health issue.https://www.frontiersin.org/articles/10.3389/fpsyt.2021.649399/fullADHDservice provisionhealthcare commissioningassessmenttreatment |
| spellingShingle | Susan Young Susan Young Susan Young Philip Asherson Philip Asherson Tony Lloyd Michael Absoud Michael Absoud Michael Absoud Muhammad Arif William Andrew Colley William Andrew Colley Samuele Cortese Samuele Cortese Samuele Cortese Samuele Cortese Sally Cubbin Nancy Doyle Nancy Doyle Susan Dunn Morua Susan Dunn Morua Philip Ferreira-Lay Gisli Gudjonsson Gisli Gudjonsson Valerie Ivens Christine Jarvis Alexandra Lewis Peter Mason Peter Mason Peter Mason Tamsin Newlove-Delgado Mark Pitts Helen Read Kobus van Rensburg Bozhena Zoritch Bozhena Zoritch Caroline Skirrow Caroline Skirrow Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus Statement Frontiers in Psychiatry ADHD service provision healthcare commissioning assessment treatment |
| title | Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus Statement |
| title_full | Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus Statement |
| title_fullStr | Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus Statement |
| title_full_unstemmed | Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus Statement |
| title_short | Failure of Healthcare Provision for Attention-Deficit/Hyperactivity Disorder in the United Kingdom: A Consensus Statement |
| title_sort | failure of healthcare provision for attention deficit hyperactivity disorder in the united kingdom a consensus statement |
| topic | ADHD service provision healthcare commissioning assessment treatment |
| url | https://www.frontiersin.org/articles/10.3389/fpsyt.2021.649399/full |
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