Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities

Background: The purpose of this article is to share some lessons learnt by an interdisciplinary therapy team working with persons with profound intellectual and multiple disabilities (PIMD), implemented in diverse, low-income contexts over a period of 8 years. Objectives: The objective of all the a...

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Main Authors: Ann Bullen, Rosemary Luger, Debbie Prudhomme, Martha Geiger
Format: Article
Language:English
Published: AOSIS 2018-06-01
Series:African Journal of Disability
Subjects:
Online Access:https://ajod.org/index.php/ajod/article/view/273
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author Ann Bullen
Rosemary Luger
Debbie Prudhomme
Martha Geiger
author_facet Ann Bullen
Rosemary Luger
Debbie Prudhomme
Martha Geiger
author_sort Ann Bullen
collection DOAJ
description Background: The purpose of this article is to share some lessons learnt by an interdisciplinary therapy team working with persons with profound intellectual and multiple disabilities (PIMD), implemented in diverse, low-income contexts over a period of 8 years. Objectives: The objective of all the activities described here was to provide increased stimulation and development opportunities for persons with PIMD within different settings (day care centre, residential centre or family home). Method: We used an iterative action-learning approach where we applied existing evidence in the given context, reflected on and adapted strategies in collaboration with stakeholders on a cyclical basis. We focussed on achieving our objectives through ongoing hands-on training of the carers involved with the clients as we felt that by providing them with the knowledge and skills needed, plus ongoing support, these programmes would be more sustainable. Findings: It took some time to put systems in place in care settings, but once they became part of the daily routine, they provided increased opportunities for learning for clients with PIMD. In addition, there were often marked changes in individual clients’ communicative and physical functioning, which in turn encouraged carers to find new and different ways to interact with, and stimulate, the persons with PIMD in their care. Conclusion: Our hope is that parents and carers or professionals working in the field of PIMD in low-income contexts elsewhere may find one, some or all of these simple ideas useful in providing opportunities for learning, development and enjoyment for persons with PIMD.
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spelling doaj.art-08bda635c8be43e6b65b00b4681e34392022-12-22T02:09:35ZengAOSISAfrican Journal of Disability2223-91702226-72202018-06-0170e1e1010.4102/ajod.v7i0.273152Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilitiesAnn Bullen0Rosemary Luger1Debbie Prudhomme2Martha Geiger3The Chaeli Campaign, Cape TownThe Chaeli Campaign, Cape Town, South Africa; Centre for Rehabilitation Studies, Stellenbosch UniversityThe Chaeli Campaign, Cape TownThe Chaeli Campaign, Cape Town, South Africa; Centre for Rehabilitation Studies, Stellenbosch UniversityBackground: The purpose of this article is to share some lessons learnt by an interdisciplinary therapy team working with persons with profound intellectual and multiple disabilities (PIMD), implemented in diverse, low-income contexts over a period of 8 years. Objectives: The objective of all the activities described here was to provide increased stimulation and development opportunities for persons with PIMD within different settings (day care centre, residential centre or family home). Method: We used an iterative action-learning approach where we applied existing evidence in the given context, reflected on and adapted strategies in collaboration with stakeholders on a cyclical basis. We focussed on achieving our objectives through ongoing hands-on training of the carers involved with the clients as we felt that by providing them with the knowledge and skills needed, plus ongoing support, these programmes would be more sustainable. Findings: It took some time to put systems in place in care settings, but once they became part of the daily routine, they provided increased opportunities for learning for clients with PIMD. In addition, there were often marked changes in individual clients’ communicative and physical functioning, which in turn encouraged carers to find new and different ways to interact with, and stimulate, the persons with PIMD in their care. Conclusion: Our hope is that parents and carers or professionals working in the field of PIMD in low-income contexts elsewhere may find one, some or all of these simple ideas useful in providing opportunities for learning, development and enjoyment for persons with PIMD.https://ajod.org/index.php/ajod/article/view/273Care centreslow income contextsprofound intellectual and multiple disabilities (PIMD)therapeutic stimulation
spellingShingle Ann Bullen
Rosemary Luger
Debbie Prudhomme
Martha Geiger
Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
African Journal of Disability
Care centres
low income contexts
profound intellectual and multiple disabilities (PIMD)
therapeutic stimulation
title Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
title_full Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
title_fullStr Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
title_full_unstemmed Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
title_short Simple ideas that work: Celebrating development in persons with profound intellectual and multiple disabilities
title_sort simple ideas that work celebrating development in persons with profound intellectual and multiple disabilities
topic Care centres
low income contexts
profound intellectual and multiple disabilities (PIMD)
therapeutic stimulation
url https://ajod.org/index.php/ajod/article/view/273
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AT debbieprudhomme simpleideasthatworkcelebratingdevelopmentinpersonswithprofoundintellectualandmultipledisabilities
AT marthageiger simpleideasthatworkcelebratingdevelopmentinpersonswithprofoundintellectualandmultipledisabilities