Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation
<p>Abstract</p> <p>Objective</p> <p>To collaborate with consumer and community representatives in the <it>Alcohol and Pregnancy Project </it>from 2006-2008 <url>http://www.ichr.uwa.edu.au/alcoholandpregnancy</url> and evaluate researchers' a...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2011-05-01
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| Series: | Health Research Policy and Systems |
| Subjects: | |
| Online Access: | http://www.health-policy-systems.com/content/9/1/18 |
| _version_ | 1811261904048357376 |
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| author | Bartu Anne E Henley Nadine McKenzie Anne E France Kathryn E D'Antoine Heather A Payne Janet M Elliott Elizabeth J Bower Carol |
| author_facet | Bartu Anne E Henley Nadine McKenzie Anne E France Kathryn E D'Antoine Heather A Payne Janet M Elliott Elizabeth J Bower Carol |
| author_sort | Bartu Anne E |
| collection | DOAJ |
| description | <p>Abstract</p> <p>Objective</p> <p>To collaborate with consumer and community representatives in the <it>Alcohol and Pregnancy Project </it>from 2006-2008 <url>http://www.ichr.uwa.edu.au/alcoholandpregnancy</url> and evaluate researchers' and consumer and community representatives' perceptions of the process, context and impact of consumer and community participation in the project.</p> <p>Methods</p> <p>We formed two reference groups and sought consumer and community representatives' perspectives on all aspects of the project over a three year period. We developed an evaluation framework and asked consumer and community representatives and researchers to complete a self-administered questionnaire at the end of the project.</p> <p>Results</p> <p>Fifteen researchers (93.8%) and seven (53.8%) consumer and community representatives completed a questionnaire. Most consumer and community representatives agreed that the process and context measures of their participation had been achieved. Both researchers and consumer and community representatives identified areas for improvement and offered suggestions how these could be improved for future research. Researchers thought consumer and community participation contributed to project outputs and outcomes by enhancing scientific and ethical standards, providing legitimacy and authority, and increasing the project's credibility and participation. They saw it was fundamental to the research process and acknowledged consumer and community representatives for their excellent contribution. Consumer and community representatives were able to directly influence decisions about the research. They thought that consumer and community participation had significant influence on the success of project outputs and outcomes.</p> <p>Conclusions</p> <p>Consumer and community participation is an essential component of good research practice and contributed to the <it>Alcohol and Pregnancy Project </it>by enhancing research processes, outputs and outcomes, and this participation was valued by community and consumer representatives and researchers. The National Health and Medical Research Council in Australia expects researchers to work in partnership and involve consumer and community representatives in health and medical research, and to evaluate community and consumer participation. It is important to demonstrate whether consumer and community participation makes a difference to health and medical research.</p> |
| first_indexed | 2024-04-12T19:14:16Z |
| format | Article |
| id | doaj.art-0a5061ade5cb4858b6af757c5c719e44 |
| institution | Directory Open Access Journal |
| issn | 1478-4505 |
| language | English |
| last_indexed | 2024-04-12T19:14:16Z |
| publishDate | 2011-05-01 |
| publisher | BMC |
| record_format | Article |
| series | Health Research Policy and Systems |
| spelling | doaj.art-0a5061ade5cb4858b6af757c5c719e442022-12-22T03:19:47ZengBMCHealth Research Policy and Systems1478-45052011-05-01911810.1186/1478-4505-9-18Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluationBartu Anne EHenley NadineMcKenzie Anne EFrance Kathryn ED'Antoine Heather APayne Janet MElliott Elizabeth JBower Carol<p>Abstract</p> <p>Objective</p> <p>To collaborate with consumer and community representatives in the <it>Alcohol and Pregnancy Project </it>from 2006-2008 <url>http://www.ichr.uwa.edu.au/alcoholandpregnancy</url> and evaluate researchers' and consumer and community representatives' perceptions of the process, context and impact of consumer and community participation in the project.</p> <p>Methods</p> <p>We formed two reference groups and sought consumer and community representatives' perspectives on all aspects of the project over a three year period. We developed an evaluation framework and asked consumer and community representatives and researchers to complete a self-administered questionnaire at the end of the project.</p> <p>Results</p> <p>Fifteen researchers (93.8%) and seven (53.8%) consumer and community representatives completed a questionnaire. Most consumer and community representatives agreed that the process and context measures of their participation had been achieved. Both researchers and consumer and community representatives identified areas for improvement and offered suggestions how these could be improved for future research. Researchers thought consumer and community participation contributed to project outputs and outcomes by enhancing scientific and ethical standards, providing legitimacy and authority, and increasing the project's credibility and participation. They saw it was fundamental to the research process and acknowledged consumer and community representatives for their excellent contribution. Consumer and community representatives were able to directly influence decisions about the research. They thought that consumer and community participation had significant influence on the success of project outputs and outcomes.</p> <p>Conclusions</p> <p>Consumer and community participation is an essential component of good research practice and contributed to the <it>Alcohol and Pregnancy Project </it>by enhancing research processes, outputs and outcomes, and this participation was valued by community and consumer representatives and researchers. The National Health and Medical Research Council in Australia expects researchers to work in partnership and involve consumer and community representatives in health and medical research, and to evaluate community and consumer participation. It is important to demonstrate whether consumer and community participation makes a difference to health and medical research.</p>http://www.health-policy-systems.com/content/9/1/18Consumer and community participationhealth and medical researchevaluationFetal Alcohol Spectrum Disorderalcoholimpact |
| spellingShingle | Bartu Anne E Henley Nadine McKenzie Anne E France Kathryn E D'Antoine Heather A Payne Janet M Elliott Elizabeth J Bower Carol Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation Health Research Policy and Systems Consumer and community participation health and medical research evaluation Fetal Alcohol Spectrum Disorder alcohol impact |
| title | Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation |
| title_full | Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation |
| title_fullStr | Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation |
| title_full_unstemmed | Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation |
| title_short | Collaborating with consumer and community representatives in health and medical research in Australia: results from an evaluation |
| title_sort | collaborating with consumer and community representatives in health and medical research in australia results from an evaluation |
| topic | Consumer and community participation health and medical research evaluation Fetal Alcohol Spectrum Disorder alcohol impact |
| url | http://www.health-policy-systems.com/content/9/1/18 |
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