Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic condition
Abstract Background Siblings of children and adolescents with a chronic condition are at risk for developing psychosocial problems. It is important, that they receive appropriate support according to their needs. A sibling-specific module of an existing online intervention (Op Koers Online) for adol...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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SpringerOpen
2019-02-01
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| Series: | Journal of Patient-Reported Outcomes |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s41687-019-0102-9 |
| _version_ | 1818777895922827264 |
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| author | M. M. H. Joosten H. Maurice-Stam L. Scholten M. A. Grootenhuis |
| author_facet | M. M. H. Joosten H. Maurice-Stam L. Scholten M. A. Grootenhuis |
| author_sort | M. M. H. Joosten |
| collection | DOAJ |
| description | Abstract Background Siblings of children and adolescents with a chronic condition are at risk for developing psychosocial problems. It is important, that they receive appropriate support according to their needs. A sibling-specific module of an existing online intervention (Op Koers Online) for adolescents with a chronic condition might be an appropriate way to offer psychosocial support to siblings. The aim of the current study is to identify siblings’ online support needs in order to develop a sibling-specific module of the existing Op Koers Online intervention. Results A total of 91 siblings (mean age 15.2 years, Standard Deviation 2.7) of children with a chronic condition completed an online questionnaire; nine semi-structured interviews were held additionally. Of all participants, 55% would like to initiate or increase contact with other siblings of children with a chronic condition and 46% of those were interested in an online chat course. The themes for online support considered most important were impact on daily life, worrying about brother’s/sister’s future, handling other people’s reactions, and how attention is divided within the family. Conclusions Siblings are interested in peer contact and online support. Op Koers Online for siblings seems to be a suitable intervention to offer online psychosocial support. The next step is to develop a sibling specific module of the Op Koers Online course, taking into account the identified themes. |
| first_indexed | 2024-12-18T11:36:06Z |
| format | Article |
| id | doaj.art-0b09f376732a407486b0db7e1f24cd05 |
| institution | Directory Open Access Journal |
| issn | 2509-8020 |
| language | English |
| last_indexed | 2024-12-18T11:36:06Z |
| publishDate | 2019-02-01 |
| publisher | SpringerOpen |
| record_format | Article |
| series | Journal of Patient-Reported Outcomes |
| spelling | doaj.art-0b09f376732a407486b0db7e1f24cd052022-12-21T21:09:30ZengSpringerOpenJournal of Patient-Reported Outcomes2509-80202019-02-01311910.1186/s41687-019-0102-9Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic conditionM. M. H. Joosten0H. Maurice-Stam1L. Scholten2M. A. Grootenhuis3Emma Children’s Hospital, Amsterdam UMC, University of Amsterdam, Psychosocial DepartmentEmma Children’s Hospital, Amsterdam UMC, University of Amsterdam, Psychosocial DepartmentEmma Children’s Hospital, Amsterdam UMC, University of Amsterdam, Psychosocial DepartmentEmma Children’s Hospital, Amsterdam UMC, University of Amsterdam, Psychosocial DepartmentAbstract Background Siblings of children and adolescents with a chronic condition are at risk for developing psychosocial problems. It is important, that they receive appropriate support according to their needs. A sibling-specific module of an existing online intervention (Op Koers Online) for adolescents with a chronic condition might be an appropriate way to offer psychosocial support to siblings. The aim of the current study is to identify siblings’ online support needs in order to develop a sibling-specific module of the existing Op Koers Online intervention. Results A total of 91 siblings (mean age 15.2 years, Standard Deviation 2.7) of children with a chronic condition completed an online questionnaire; nine semi-structured interviews were held additionally. Of all participants, 55% would like to initiate or increase contact with other siblings of children with a chronic condition and 46% of those were interested in an online chat course. The themes for online support considered most important were impact on daily life, worrying about brother’s/sister’s future, handling other people’s reactions, and how attention is divided within the family. Conclusions Siblings are interested in peer contact and online support. Op Koers Online for siblings seems to be a suitable intervention to offer online psychosocial support. The next step is to develop a sibling specific module of the Op Koers Online course, taking into account the identified themes.http://link.springer.com/article/10.1186/s41687-019-0102-9SiblingsChronic conditionOnline support needsE-healthParticipation |
| spellingShingle | M. M. H. Joosten H. Maurice-Stam L. Scholten M. A. Grootenhuis Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic condition Journal of Patient-Reported Outcomes Siblings Chronic condition Online support needs E-health Participation |
| title | Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic condition |
| title_full | Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic condition |
| title_fullStr | Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic condition |
| title_full_unstemmed | Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic condition |
| title_short | Hearing siblings’ voices: exploring the (online) support needs of siblings of children with a chronic condition |
| title_sort | hearing siblings voices exploring the online support needs of siblings of children with a chronic condition |
| topic | Siblings Chronic condition Online support needs E-health Participation |
| url | http://link.springer.com/article/10.1186/s41687-019-0102-9 |
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