Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements
The provision of upper limb prosthetic devices through the National Health Services (NHS) within the United Kingdom is driven by national policies. NHS England have recently published a new policy to provide multi-grip myoelectric hands. The policy highlighted that there was limited evidence to supp...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2023-12-01
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| Series: | Frontiers in Health Services |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/frhs.2023.1213752/full |
| _version_ | 1797384257054703616 |
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| author | Hannah Jones Hannah Jones Alix Chadwell Alix Chadwell Matthew Dyson |
| author_facet | Hannah Jones Hannah Jones Alix Chadwell Alix Chadwell Matthew Dyson |
| author_sort | Hannah Jones |
| collection | DOAJ |
| description | The provision of upper limb prosthetic devices through the National Health Services (NHS) within the United Kingdom is driven by national policies. NHS England have recently published a new policy to provide multi-grip myoelectric hands. The policy highlighted that there was limited evidence to support its deployment and it will be reviewed should new information arise. The clear identification of the evidence gap provides an opportunity for the academic research community to conduct studies that will inform future iterations of this and other upper limb prosthetic related policies. This paper presents a summary of findings and recommendations based on two multi-stakeholder workshops held in June 2022 and July 2022, which explored the design requirements for policy-driven research studies. The workshops involved people from a broad range of stakeholder groups: policy, academia, NHS clinical and management, industry, and a person with upper limb absence. The workshop discussions focused on the research questions that NHS England identified in the policy evidence review: (1) Clinical Effectiveness; (2) Cost Effectiveness; (3) Safety; and (4) Patient Subgroups. The recommendations based on stakeholder discussions included the need to gather qualitative and quantitative research evidence, use goal-based outcome measures, and conduct longitudinal studies. Future research studies also need to address the complexities of conducting national and international policy-driven research, such as clinical resource capacity and participant involvement. |
| first_indexed | 2024-03-08T21:32:50Z |
| format | Article |
| id | doaj.art-0d09c0cc44b2454c81f7888a76f31e62 |
| institution | Directory Open Access Journal |
| issn | 2813-0146 |
| language | English |
| last_indexed | 2024-03-08T21:32:50Z |
| publishDate | 2023-12-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Health Services |
| spelling | doaj.art-0d09c0cc44b2454c81f7888a76f31e622023-12-21T04:26:57ZengFrontiers Media S.A.Frontiers in Health Services2813-01462023-12-01310.3389/frhs.2023.12137521213752Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirementsHannah Jones0Hannah Jones1Alix Chadwell2Alix Chadwell3Matthew Dyson4Intelligent Sensing Laboratory, School of Engineering, Newcastle University, Newcastle upon Tyne, United KingdomEdinburgh Neuroprosthetics Laboratory, School of Informatics, University of Edinburgh, Edinburgh, United KingdomIntelligent Sensing Laboratory, School of Engineering, Newcastle University, Newcastle upon Tyne, United KingdomCentre for Human Movement and Rehabilitation, University of Salford, Manchester, United KingdomIntelligent Sensing Laboratory, School of Engineering, Newcastle University, Newcastle upon Tyne, United KingdomThe provision of upper limb prosthetic devices through the National Health Services (NHS) within the United Kingdom is driven by national policies. NHS England have recently published a new policy to provide multi-grip myoelectric hands. The policy highlighted that there was limited evidence to support its deployment and it will be reviewed should new information arise. The clear identification of the evidence gap provides an opportunity for the academic research community to conduct studies that will inform future iterations of this and other upper limb prosthetic related policies. This paper presents a summary of findings and recommendations based on two multi-stakeholder workshops held in June 2022 and July 2022, which explored the design requirements for policy-driven research studies. The workshops involved people from a broad range of stakeholder groups: policy, academia, NHS clinical and management, industry, and a person with upper limb absence. The workshop discussions focused on the research questions that NHS England identified in the policy evidence review: (1) Clinical Effectiveness; (2) Cost Effectiveness; (3) Safety; and (4) Patient Subgroups. The recommendations based on stakeholder discussions included the need to gather qualitative and quantitative research evidence, use goal-based outcome measures, and conduct longitudinal studies. Future research studies also need to address the complexities of conducting national and international policy-driven research, such as clinical resource capacity and participant involvement.https://www.frontiersin.org/articles/10.3389/frhs.2023.1213752/fullupper limb prostheticspolicystakeholder engagementoutcome measuresquality of life |
| spellingShingle | Hannah Jones Hannah Jones Alix Chadwell Alix Chadwell Matthew Dyson Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements Frontiers in Health Services upper limb prosthetics policy stakeholder engagement outcome measures quality of life |
| title | Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements |
| title_full | Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements |
| title_fullStr | Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements |
| title_full_unstemmed | Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements |
| title_short | Evidencing the effectiveness of upper limb prostheses: a multi-stakeholder perspective on study requirements |
| title_sort | evidencing the effectiveness of upper limb prostheses a multi stakeholder perspective on study requirements |
| topic | upper limb prosthetics policy stakeholder engagement outcome measures quality of life |
| url | https://www.frontiersin.org/articles/10.3389/frhs.2023.1213752/full |
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