Including formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative study
Abstract Background Play Intervention for Dementia is a practice initiative using play to help people living with dementia (PWD) experience engagements, autonomy, and cognitive stimulation. This program was developed under a participatory paradigm, with extensive contribution from formal and informa...
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| Format: | Article |
| Language: | English |
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BMC
2022-07-01
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| Series: | BMC Geriatrics |
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| Online Access: | https://doi.org/10.1186/s12877-022-03232-y |
| _version_ | 1817969620855816192 |
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| author | Bingyu Li Rainbow Tin Hung Ho Wing Yeung Vivian Leung Ka Tat Tsang |
| author_facet | Bingyu Li Rainbow Tin Hung Ho Wing Yeung Vivian Leung Ka Tat Tsang |
| author_sort | Bingyu Li |
| collection | DOAJ |
| description | Abstract Background Play Intervention for Dementia is a practice initiative using play to help people living with dementia (PWD) experience engagements, autonomy, and cognitive stimulation. This program was developed under a participatory paradigm, with extensive contribution from formal and informal caregivers. This article describes how caregivers contributed to the practice principles, materials, and assessment during the development phase of Play Intervention for Dementia through community-based participatory research (CBPR). Methods Three service supervisors, 16 formal caregivers and 14 informal caregivers from the community participated in this study. Based on CBPR, the study progressed in a reflexive, iterative and collaborative way. Data were collected from diverse sources, including practice journals, observation notes and reflexive focus group interviews. Two trained qualitative researchers conducted thematic analysis on the data collected, with focus on practical skills, outcomes, and caregivers’ general experience during the intervention. Results The therapeutic and liberating power of play was thoroughly discussed by the caregivers. They considered play as an innovative way to understand, engage, and connect with the PWD. Also, improvement in energy level, motivation and communicative capacity was observed among the PWD. The researcher and caregivers collaboratively refined and designed the protocol of Play Intervention for Dementia, adding localized principles and games to the original design. Conclusion Caregivers found play to be a meaningful way to engage with PWD, as it provided an equal platform for them. The intervention also enabled them to reflect upon ageing and disease at a deeper level. Caregivers have contributed significantly to the refinement and contextualisation of the intervention. The efficiency of the refined program should be further tested on a larger scale. |
| first_indexed | 2024-04-13T20:23:33Z |
| format | Article |
| id | doaj.art-0d0dd2bcb0374baaa54f310df32b1828 |
| institution | Directory Open Access Journal |
| issn | 1471-2318 |
| language | English |
| last_indexed | 2024-04-13T20:23:33Z |
| publishDate | 2022-07-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Geriatrics |
| spelling | doaj.art-0d0dd2bcb0374baaa54f310df32b18282022-12-22T02:31:26ZengBMCBMC Geriatrics1471-23182022-07-012211910.1186/s12877-022-03232-yIncluding formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative studyBingyu Li0Rainbow Tin Hung Ho1Wing Yeung Vivian Leung2Ka Tat Tsang3Department of Sociology, Shenzhen UniversityDepartment of Social Work and Social Administration; Centre on Behavioral Health; Sau Po Centre on Ageing, The University of Hong KongFactor-Inwentash Faculty of Social Work, University of TorontoFactor-Inwentash Faculty of Social Work, University of TorontoAbstract Background Play Intervention for Dementia is a practice initiative using play to help people living with dementia (PWD) experience engagements, autonomy, and cognitive stimulation. This program was developed under a participatory paradigm, with extensive contribution from formal and informal caregivers. This article describes how caregivers contributed to the practice principles, materials, and assessment during the development phase of Play Intervention for Dementia through community-based participatory research (CBPR). Methods Three service supervisors, 16 formal caregivers and 14 informal caregivers from the community participated in this study. Based on CBPR, the study progressed in a reflexive, iterative and collaborative way. Data were collected from diverse sources, including practice journals, observation notes and reflexive focus group interviews. Two trained qualitative researchers conducted thematic analysis on the data collected, with focus on practical skills, outcomes, and caregivers’ general experience during the intervention. Results The therapeutic and liberating power of play was thoroughly discussed by the caregivers. They considered play as an innovative way to understand, engage, and connect with the PWD. Also, improvement in energy level, motivation and communicative capacity was observed among the PWD. The researcher and caregivers collaboratively refined and designed the protocol of Play Intervention for Dementia, adding localized principles and games to the original design. Conclusion Caregivers found play to be a meaningful way to engage with PWD, as it provided an equal platform for them. The intervention also enabled them to reflect upon ageing and disease at a deeper level. Caregivers have contributed significantly to the refinement and contextualisation of the intervention. The efficiency of the refined program should be further tested on a larger scale.https://doi.org/10.1186/s12877-022-03232-yPlay intervention for dementiaCommunity-based participatory researchCaregivers of people with dementiaContextualised dementia care |
| spellingShingle | Bingyu Li Rainbow Tin Hung Ho Wing Yeung Vivian Leung Ka Tat Tsang Including formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative study BMC Geriatrics Play intervention for dementia Community-based participatory research Caregivers of people with dementia Contextualised dementia care |
| title | Including formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative study |
| title_full | Including formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative study |
| title_fullStr | Including formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative study |
| title_full_unstemmed | Including formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative study |
| title_short | Including formal and informal caregivers in the development of Play Intervention for Dementia: a qualitative study |
| title_sort | including formal and informal caregivers in the development of play intervention for dementia a qualitative study |
| topic | Play intervention for dementia Community-based participatory research Caregivers of people with dementia Contextualised dementia care |
| url | https://doi.org/10.1186/s12877-022-03232-y |
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