Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods Study

BackgroundPatient engagement attrition in mobile health (mHealth) remote patient monitoring (RPM) programs decreases program benefits. Systemic disparities lead to inequities in RPM adoption and use. There is an urgent need to understand patients’ experiences with RPM in the...

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Main Authors: Andrew W Liu, William Brown, III, Ndubuisi E Madu, Ali R Maiorano, Olivia Bigazzi, Eli Medina, Christopher Sorric, Steven R Hays, Anobel Y Odisho
Format: Article
Language:English
Published: JMIR Publications 2024-03-01
Series:JMIR mHealth and uHealth
Online Access:https://mhealth.jmir.org/2024/1/e51236
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author Andrew W Liu
William Brown, III
Ndubuisi E Madu
Ali R Maiorano
Olivia Bigazzi
Eli Medina
Christopher Sorric
Steven R Hays
Anobel Y Odisho
author_facet Andrew W Liu
William Brown, III
Ndubuisi E Madu
Ali R Maiorano
Olivia Bigazzi
Eli Medina
Christopher Sorric
Steven R Hays
Anobel Y Odisho
author_sort Andrew W Liu
collection DOAJ
description BackgroundPatient engagement attrition in mobile health (mHealth) remote patient monitoring (RPM) programs decreases program benefits. Systemic disparities lead to inequities in RPM adoption and use. There is an urgent need to understand patients’ experiences with RPM in the real world, especially for patients who have stopped using the programs, as addressing issues faced by patients can increase the value of mHealth for patients and subsequently decrease attrition. ObjectiveThis study sought to understand patient engagement and experiences in an RPM mHealth intervention in lung transplant recipients. MethodsBetween May 4, 2020, and November 1, 2022, a total of 601 lung transplant recipients were enrolled in an mHealth RPM intervention to monitor lung function. The predictors of patient engagement were evaluated using multivariable logistic and linear regression. Semistructured interviews were conducted with 6 of 39 patients who had engaged in the first month but stopped using the program, and common themes were identified. ResultsPatients who underwent transplant more than 1 year before enrollment in the program had 84% lower odds of engaging (odds ratio [OR] 0.16, 95% CI 0.07-0.35), 82% lower odds of submitting pulmonary function measurements (OR 0.18, 95% CI 0.09-0.33), and 78% lower odds of completing symptom checklists (OR 0.22, 95% CI 0.10-0.43). Patients whose primary language was not English had 78% lower odds of engaging compared to English speakers (OR 0.22, 95% CI 0.07-0.67). Interviews revealed 4 prominent themes: challenges with devices, communication breakdowns, a desire for more personal interactions and specific feedback with the care team about their results, understanding the purpose of the chat, and understanding how their data are used. ConclusionsCare delivery and patient experiences with RPM in lung transplant mHealth can be improved and made more equitable by tailoring outreach and enhancements toward non-English speakers and patients with a longer time between transplant and enrollment. Attention to designing programs to provide personalization through supplementary provider contact, education, and information transparency may decrease attrition rates.
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spelling doaj.art-0e1acf90fa8849b4a8e1b40b391576b72024-03-20T14:00:33ZengJMIR PublicationsJMIR mHealth and uHealth2291-52222024-03-0112e5123610.2196/51236Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods StudyAndrew W Liuhttps://orcid.org/0000-0001-8033-2598William Brown, IIIhttps://orcid.org/0000-0003-4322-4859Ndubuisi E Maduhttps://orcid.org/0009-0008-5222-6139Ali R Maioranohttps://orcid.org/0000-0002-4697-6186Olivia Bigazzihttps://orcid.org/0009-0008-0643-0163Eli Medinahttps://orcid.org/0000-0001-6189-7235Christopher Sorrichttps://orcid.org/0009-0007-5304-7426Steven R Hayshttps://orcid.org/0000-0002-2887-8451Anobel Y Odishohttps://orcid.org/0000-0003-0975-0812 BackgroundPatient engagement attrition in mobile health (mHealth) remote patient monitoring (RPM) programs decreases program benefits. Systemic disparities lead to inequities in RPM adoption and use. There is an urgent need to understand patients’ experiences with RPM in the real world, especially for patients who have stopped using the programs, as addressing issues faced by patients can increase the value of mHealth for patients and subsequently decrease attrition. ObjectiveThis study sought to understand patient engagement and experiences in an RPM mHealth intervention in lung transplant recipients. MethodsBetween May 4, 2020, and November 1, 2022, a total of 601 lung transplant recipients were enrolled in an mHealth RPM intervention to monitor lung function. The predictors of patient engagement were evaluated using multivariable logistic and linear regression. Semistructured interviews were conducted with 6 of 39 patients who had engaged in the first month but stopped using the program, and common themes were identified. ResultsPatients who underwent transplant more than 1 year before enrollment in the program had 84% lower odds of engaging (odds ratio [OR] 0.16, 95% CI 0.07-0.35), 82% lower odds of submitting pulmonary function measurements (OR 0.18, 95% CI 0.09-0.33), and 78% lower odds of completing symptom checklists (OR 0.22, 95% CI 0.10-0.43). Patients whose primary language was not English had 78% lower odds of engaging compared to English speakers (OR 0.22, 95% CI 0.07-0.67). Interviews revealed 4 prominent themes: challenges with devices, communication breakdowns, a desire for more personal interactions and specific feedback with the care team about their results, understanding the purpose of the chat, and understanding how their data are used. ConclusionsCare delivery and patient experiences with RPM in lung transplant mHealth can be improved and made more equitable by tailoring outreach and enhancements toward non-English speakers and patients with a longer time between transplant and enrollment. Attention to designing programs to provide personalization through supplementary provider contact, education, and information transparency may decrease attrition rates.https://mhealth.jmir.org/2024/1/e51236
spellingShingle Andrew W Liu
William Brown, III
Ndubuisi E Madu
Ali R Maiorano
Olivia Bigazzi
Eli Medina
Christopher Sorric
Steven R Hays
Anobel Y Odisho
Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods Study
JMIR mHealth and uHealth
title Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods Study
title_full Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods Study
title_fullStr Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods Study
title_full_unstemmed Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods Study
title_short Patient Engagement With and Perspectives on a Mobile Health Home Spirometry Intervention: Mixed Methods Study
title_sort patient engagement with and perspectives on a mobile health home spirometry intervention mixed methods study
url https://mhealth.jmir.org/2024/1/e51236
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