Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals
Abstract Background The use of patient‐reported outcomes measures (PROMs), such as quality of life or symptoms like pain or fatigue, is increasingly embraced within patient‐centred care and shared decision making. Objectives To investigate: (a) how patients and health professionals think about using...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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Wiley
2019-10-01
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| Series: | Health Expectations |
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| Online Access: | https://doi.org/10.1111/hex.12899 |
| _version_ | 1818433924011917312 |
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| author | Olga C. Damman Marjolein E. A. Verbiest Suzanne I. Vonk Henk W. Berendse Bastiaan R. Bloem Martine C. de Bruijne Marjan J. Faber |
| author_facet | Olga C. Damman Marjolein E. A. Verbiest Suzanne I. Vonk Henk W. Berendse Bastiaan R. Bloem Martine C. de Bruijne Marjan J. Faber |
| author_sort | Olga C. Damman |
| collection | DOAJ |
| description | Abstract Background The use of patient‐reported outcomes measures (PROMs), such as quality of life or symptoms like pain or fatigue, is increasingly embraced within patient‐centred care and shared decision making. Objectives To investigate: (a) how patients and health professionals think about using PROMs during routine medical consultations; (b) for which purpose(s), patients and health professionals want to use PROMs during those consultations; and (c) how patients interpret PROMs information presented in various formats. People with Parkinson's disease and their health professionals served as case example. Methods We performed semi‐structured interviews with patients (N = 13) and professionals (N = 7 neurologists; N = 7 physiotherapists). We also used a survey in which patients (N = 115) were shown six figures displaying different information types. Presentation formats of this information varied (line/bar graphs). Interpretation by patients, perceived usefulness of information, attitude towards using information during routine medical consultations and (hypothetical) decisions were assessed. Findings Patients and professionals were generally positive about using PROMs during medical consultations. Professionals stressed the opportunity to monitor changes in individual PROMs over time. Patients were primarily positive about aggregated PROMs to make treatment decisions. This information was also most often interpreted correctly, especially when presented through a line graph (90.1% correct). Professionals thought patients should take the initiative in discussing PROMs, whereas patients thought professionals should do so. Conclusion/Discussion When used in routine medical consultations, PROMs seem to have potential to support shared decision making and facilitate patient‐professional communication. However, training seems needed for both patients and professionals to facilitate actual discussion and proper interpretation. |
| first_indexed | 2024-12-14T16:28:49Z |
| format | Article |
| id | doaj.art-0ec3fe837afb41e6b54619ece788429d |
| institution | Directory Open Access Journal |
| issn | 1369-6513 1369-7625 |
| language | English |
| last_indexed | 2024-12-14T16:28:49Z |
| publishDate | 2019-10-01 |
| publisher | Wiley |
| record_format | Article |
| series | Health Expectations |
| spelling | doaj.art-0ec3fe837afb41e6b54619ece788429d2022-12-21T22:54:37ZengWileyHealth Expectations1369-65131369-76252019-10-0122593995110.1111/hex.12899Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionalsOlga C. Damman0Marjolein E. A. Verbiest1Suzanne I. Vonk2Henk W. Berendse3Bastiaan R. Bloem4Martine C. de Bruijne5Marjan J. Faber6Department of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The NetherlandsRadboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare) Radboud University Medical Center Nijmegen The NetherlandsDepartment of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The NetherlandsDepartment of Neurology, Amsterdam Neuroscience, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The NetherlandsDepartment of Neurology, Donders Institute for Brain, Cognition and Behaviour Radboud University Medical Centre Nijmegen The NetherlandsDepartment of Public and Occupational Health, Amsterdam Public Health Research Institute, Amsterdam UMC Vrije Universiteit Amsterdam Amsterdam The NetherlandsRadboud Institute for Health Sciences, Scientific Center for Quality of Healthcare (IQ Healthcare) Radboud University Medical Center Nijmegen The NetherlandsAbstract Background The use of patient‐reported outcomes measures (PROMs), such as quality of life or symptoms like pain or fatigue, is increasingly embraced within patient‐centred care and shared decision making. Objectives To investigate: (a) how patients and health professionals think about using PROMs during routine medical consultations; (b) for which purpose(s), patients and health professionals want to use PROMs during those consultations; and (c) how patients interpret PROMs information presented in various formats. People with Parkinson's disease and their health professionals served as case example. Methods We performed semi‐structured interviews with patients (N = 13) and professionals (N = 7 neurologists; N = 7 physiotherapists). We also used a survey in which patients (N = 115) were shown six figures displaying different information types. Presentation formats of this information varied (line/bar graphs). Interpretation by patients, perceived usefulness of information, attitude towards using information during routine medical consultations and (hypothetical) decisions were assessed. Findings Patients and professionals were generally positive about using PROMs during medical consultations. Professionals stressed the opportunity to monitor changes in individual PROMs over time. Patients were primarily positive about aggregated PROMs to make treatment decisions. This information was also most often interpreted correctly, especially when presented through a line graph (90.1% correct). Professionals thought patients should take the initiative in discussing PROMs, whereas patients thought professionals should do so. Conclusion/Discussion When used in routine medical consultations, PROMs seem to have potential to support shared decision making and facilitate patient‐professional communication. However, training seems needed for both patients and professionals to facilitate actual discussion and proper interpretation.https://doi.org/10.1111/hex.12899patient perspectivepatient‐reported outcome measuresprofessional perspectiveshared decision making |
| spellingShingle | Olga C. Damman Marjolein E. A. Verbiest Suzanne I. Vonk Henk W. Berendse Bastiaan R. Bloem Martine C. de Bruijne Marjan J. Faber Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals Health Expectations patient perspective patient‐reported outcome measures professional perspective shared decision making |
| title | Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals |
| title_full | Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals |
| title_fullStr | Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals |
| title_full_unstemmed | Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals |
| title_short | Using PROMs during routine medical consultations: The perspectives of people with Parkinson’s disease and their health professionals |
| title_sort | using proms during routine medical consultations the perspectives of people with parkinson s disease and their health professionals |
| topic | patient perspective patient‐reported outcome measures professional perspective shared decision making |
| url | https://doi.org/10.1111/hex.12899 |
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